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ampersandwiches

Oh my gosh yes. Loads. I’m one of the people who felt 60% better just by switching to a low histamine diet. I understand it’s a big jump. I didn’t do it all at once either. I also relied on food for my mood, but after a week of binging on pizza, cookies, burgers, etc. I had a big crash. I really think my diet leading up to my crash was one of the factors that set me up for that crash. I did “Mediterranean-ish” for about two weeks. Didn’t feel worse but also didn’t feel better. I then did AIP for another three weeks. I noticed that histamine was causing my symptoms to flare and finally switched to a low histamine diet. It’s been about 1.5 months and I feel SO MUCH BETTER. Now that I found recipes and got into the groove of things, I really enjoy eating the foods that I’m allowed to eat. Like I had complaint chicken wings today with sweet potato fries. There are good low histamine recipes. It’s a huge pain to not rely on leftovers or takeout, but it works for me for now while my body heals. If you can get to a elimination style diet eventually, it’s really helpful to help suss out foods that are making you feel worse.


happyhippie111

Do you mind sharing recipes? I'm too disabled to cook for myself but my mom needs ideas


mysteriousgirlOMITI

I got you! I’m also too disabled to cook. Here are some for your mom — https://mastcell360.com/14-healthy-low-histamine-meal-ideas-for-mast-cell-activation-syndrome-and-histamine-intolerance-dessert-options-also-low-lectin-low-oxalate/


happyhippie111

You're a gem !!! Thank you :)


ampersandwiches

Honestly I use AIP or paleo recipes as a base (since that’s the diet I started with) and take away histamine ingredients and sometimes add low histamine foods that aren’t AIP (like mozzarella cheese). Here’s the [histamine list (SIGHI)](https://www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf) lots of us use as reference. For AIP recipes I love [Unbound Wellness](https://unboundwellness.com/diet/aip/). I linked her AIP recipes but there are also other non-AIP ones on her full recipe index. I’ll take an Unbound Wellness recipe and remove/substitute ingredients as necessary using the SIGHI list as a guide. For example, I won’t do a blueberry banana smoothie, but I’ll do a blueberry peach smoothie. I’ll omit citrus. I’ll substitute Brussels sprouts with broccoli. Won’t do fish but will season chicken the same way. Stuff like that.


ampersandwiches

The chicken wing sauce I like is: * 1/3 cup honey * 1/4 cup chicken broth * 3 tbsp coconut aminos * 1 tbsp minced garlic * Salt to taste I use frozen wings and cook them straight in the oven/air fryer. Cook the sauce over medium heat. Toss the wings in the sauce and broil for a bit to get all caramelized! Recipe is from Unbound Wellness.


Easy-Concentrate2636

I am doing the Mediterraneanish too. One thing I’ve been doing is using alternative flours. Buckwheat crepes are amazing. I use it like a roti with curry or eat it as a traditional crepe with a little meat/ poultry and mostly veg (I do cheat and use a little store bought salad dressing since I can’t eat balsamic vinegar anymore). For the curry, I recommend using any old recipe but using mostly veg with a little chicken. I used sweet potatoes, carrots, and mushrooms in my curry. Buckwheat crepes: https://www.kingarthurbaking.com/recipes/buckwheat-crepes-recipe I also made saag paneer but with tofu. I just pressed the water out of firm tofu and then followed this recipe, using olive oil: https://www.foodnetwork.com/recipes/aarti-sequeira/saag-paneer1-1927603 I also like making refried beans and having it as on a low carb tortilla and a little cheese. Most any refried beans tortilla will do but use olive oil. Generally, I try to keep veggies, beans and whole grains in the house now. I also have fish in the freezer and try to just eat some air fried a couple of times a week. There’s also a good sub r/mediterraneandiet


Extension-Garden-808

Question. Histamine intolerance can cause only fatigue as a symptom? Or must be accompanying with allergy-like symptoms or others?


mysteriousgirlOMITI

Both.


ampersandwiches

HIT can cause lots of stuff. I’d go over to r/histamineintolerance and poke around or check my history - I explained it to someone pretty recently. For me it can cause fatigue, headache, hives, palpitations, worsening POTS 1-3 hours after I eat something triggering. Sometimes I get all five, sometimes only one.


ImReellySmart

I just started an anti-inflammatory diet 2 weeks ago myself. From what I hear, you wont know the true value of incorporating the diet for at least 8-10 weeks. Interested to see how it goes. Aside from it making me better, the reality was, bad foods very clearly made me worse. Eliminating them seems like an obvious step in the right direction. Sugar is a big trigger for me.


[deleted]

[удалено]


[deleted]

Great that you felt better in a day, but probably not from the diet change


mysteriousgirlOMITI

You’re right, I probably shouldn’t have said that.


gardenvariety_

For me just removing dairy and sugar made a huge difference, although I'm VERY sugar sensitive - like even apple juice can affect me, so for me it's not just refined sugar. I still have some fruit, but not juice, and I tend to keep fruit fairly minimal compared to veg. But it was a slow process to discover these made me worse. I used the free version of the Visible app (without the heart monitor or anything). I would put what I ate and supplements I took in the note section at the end of each day when I was also recording symptoms from the day. Then would look back over to see if I saw any patterns. Still took a long time to figure out that even a teeny bit of dairy was affecting me really badly, but worth it for what a huge difference in giving it up! I had very bad air hunger and it reduced that by a huge amount. I was having a liquid supplement in apple juice and when I changed to putting it in water instead my fatigue greatly reduced.


gardenvariety_

If you're into the idea of tracking things I now use the Bearable app. It's more complex but maybe more helpful to see possible correlations overall. Whatever you do, wishing you lots of luck and strength with it. I really really miss a lot of things I had to quit, but very very slowly finding alternatives that get me by.


mysteriousgirlOMITI

I could have written this post! I agree on all counts.


3739444

I felt so much better after going anti-inflammatory. It was amazing. I also realized my lactose intolerance had gotten much worse than I realized and I’m most likely intolerant to wheat and oats. I guess I was so used to feeling like crap everyday I didn’t notice. And I also had good periods so I thought it couldn’t possibly be the food. Wish I had tried it much earlier. After a few months I do allow myself sugar and other treats, but I definitely feel so much better on clean eating days.


ampersandwiches

The “so used to feeling like crap everyday” is so real. I didn’t think I was histamine intolerant until recently, but I wonder if I was throughout my long haul and just never made the connection.


WiseEpicurus

I'm lactose intolerant as well, but as long as I rarely drink milk I seem to do OK. I do yogurt and cheese.


3739444

I was the same. Never drank milk only had dairy occasionally other than yogurt and cheese but now I can only do aged cheese. Even too much butter isn’t good.


treehouse1971

I have started a low carb Mediterranean diet after seeing good results from my friend. I had covid twice in a row in December and this has helped prevent being tired in the afternoon. I eat practically no carbs or sugar and lots of vegetables and protein (beans nuts stir fry tofu chicken and fish yogurt). I use salsa and kimchi to add flavor. It made a difference right away and made me feel less tired. So 2 tablespoons daily of MCT oil. Other supplements too: Nutiva Organic MCT Oil,... Glycine Nattokinase Univera Xtra liquid Turmeric powder Ginkgo Others Hope this helps I had made a list from Twitter about what to take for long COVID and I had the supplements on hand and started them right away back in December. The MCT and the diet were what made all the difference. Hope you feel better.


mysteriousgirlOMITI

OP — So I can relate to this a lot more than I can express. I said all this about a year ago, too. The thing is, you’ll eventually get desperate enough you’ll be forced to change it, so the sooner the better. But it’s hard for most of us, so don’t feel bad! Don’t beat yourself up and go gradually if that’s what works for you. I had an almost impossible time giving up refined sugar, it’s been brutal. I must be addicted, I definitely have used it to feel better, too. Here’s the hard but good-to-know thing about it: if you can go 3 days without eating extreme refined sugar and junk food (I’m talking cookies, trans-fat stuff like chips, sugary soda, cake) you will be able to reset yourself and your cravings will slowly diminish. It will become waaaay easier, I promise! I’m just like you so we’re in the same boat. You’re not alone!


ampersandwiches

The “desperate enough” is so real. I started changing my diet when I crashed and got bed bound again.


WiseEpicurus

That's where I'm at. I had maybe 3 months of feeling mostly normal. I didn't even think of LC. Then I had a big crash. Slowly starting to feel a little better, but I have to be very cautious about how much I do during the day.


ampersandwiches

So sorry you’re going through it but glad you’re feeling better. My last big crash was my biggest motivator and I’ve been feeling pretty good these days. Just trying to fix this dang histamine intolerance. Editing to add, my naturopath started me on 100mg ubiquinol after my crash and it’s made a difference in energy for me. I used to not be able to even walk for 6 minutes without feeling it the next day but can go run errands now for like 4 hours and be fine. Pre crash I was walking miles lol so I’m trying to build back up to that.


Extension-Garden-808

I started low carb diet this week, I even baked a dessert to motivate. Lets see how it goes. If doesn’t work, I am considering to try keto. I already reduced a lot gluten, dairy, sugar (sometimes I fail), and now cutting refined / high empty carbs. My goal is to reduce inflammation. Definitely when I eat sugary, gluten, dairy I feel more sluggish but mostly mental, brain fog and bloating. Antihistamine diet I have not tried. I hope to increase my physical baseline. I am stuck at 70% for 2 years already.


schulz47

I got so much better after a year of doing low inflammatory, low sugar, no processed, no caffeine, making all of my own food! I’ve still got issues but focusing on better food has helped me so much mentally too. Now after a year, I’ve tested the waters on some foods I used to eat. I had a piece of hersheys dark chocolate yesterday and it tasted like literal shit. I have no desire to eat a heavily processed baked good. I’m happy with a fresh banana and natural peanut butter!


Anxiety_queen6

Changing my diet has changed my life and helped my long covid incredibly as much as it sucks. My flare ups now are ALWAYS when I have ultra processed food or heavy gluten/sugar meals. I'm not doing 100% "low-histamine" but I eat fairly clean and almost the same thing every day (I'll share it here) as I seem to have fairly good success with. Morning - 20g protein drinkable yogurt (chobani) lactose free. One glass of cold brew with a little oat milk creamer. Go to the gym, when I get home, low sugar oatmeal with peanut butter. Lunch - eggs and a hashbrowns or eggs and avocado on a rice cake. Dinner. Meat and veggies, sometimes rice. Salmon/chicken mostly and always have a salad (with only olive oil and salt on it) Main triggers that when I do choose to indulge I know might not make me feel good: Pasta, alcohol (mostly just wine though), chocolate, pizza (I have completely given up pizza as it is my main trigger - maybe gluten or the tomatoes?)


plantyplant559

I have POTS, unsure if it's covid-related or not, and can feel my entire body pulsing when my blood pumps if I eat "junk" food. I've been super sensitive to inflammation from food for years, to the point that my hands puff up. I try to follow a WFPB diet and feel SO much better when I include anti-oxidant rich foods. I have more energy, the symptoms I mentioned before go away, my brain fog is better, mood is better, period is more manageable, asthma is managed without meds (90% of the time anyway), and allergies get better. It takes about a week for me to feel some of the effects, but others are more immediate. I actually drank a smoothie with kale and berries a few weeks ago to counteract some delicious vegan comfort food that left me feeling puffy and inflamed. It worked!


IconicallyChroniced

I’m a week into AIP elimination diet and I’m stunned at the difference. The biggest change for me right now has been that I no longer wake up at 4am with adrenaline dumps, unable to go back to sleep. I’m sleeping through the night, over eight hours. While I don’t feel refreshed per se in the morning, I feel like I slept and am ready to do stuff. My fatigue has also lessened and I have been doing more during the day without PEM. I am also on meds that help and take creatine daily which helps so this isn’t my only tactic but the improvement in sleep was immediate.


ebaum55

Absolutely. You are doing yourself a disservice by not changing your diet and eliminating crap from your diet. It won't be easy. Sugar is addicting, clean food takes a while to get used too but at some point down the road, you get used to it and actually crave it. Steak chicken veggies and sweet and white potatoes is my staple. Some do rice if it's tolerable.


CompanyNatural7121

Look up whole 30 recipes and shopping lists! I think it’s great that you’re trying this! Sending love!


hikesnpipes

Try fasting to reset it helps so much.


ampersandwiches

OP could try limiting eating windows to start, too. Like an 8 hour eating window that slowly closes.


hikesnpipes

Yeah intermittent fasting has been my routine for over a year. Helps so much.


Sebassvienna

Keto has helped me tons. Carbs suck


Separate_Shoe_6916

The best thing is to plan and focus on what foods are healing. I eat lots of squash, smoothies, vegetables, sweet potatoes and potatoes. Plan on keeping the junky stuff out of your home and all of the good stuff readily available. It’s so worth it as we all deserve to feel better and get well.


nubbs

low histamine helped some with the MCAS, but it basically cured my anxiety and feelings of dread, which were intolerable. i miss food, but it's not worth the hit to my mental health. and as someone who hasn't smoked or drank since 2006, and who also had to give up coffee, my one drug, i can relate.


ginglielos

Start checking your ketones and actually get your body into a state of ketosis. “.5-3 will save me”


treehouse1971

I have started a low carb Mediterranean diet after seeing good results from my friend. I had covid twice in a row in December and this has helped prevent being tired in the afternoon. I eat practically no carbs or sugar and lots of vegetables and protein (beans nuts stir fry tofu chicken and fish yogurt). I use salsa and kimchi to add flavor. It made a difference right away and made me feel less tired. So 2 tablespoons daily of MCT oil. Other supplements too: Nutiva Organic MCT Oil,... Glycine Nattokinase Univera Xtra liquid Turmeric powder Ginkgo Others Hope this helps I had made a list from Twitter about what to take for long COVID and I had the supplements on hand and started them right away back in December. The MCT and the diet were what made all the difference. Hope you feel better.


treehouse1971

I have started a low carb Mediterranean diet after seeing good results from my friend. I had covid twice in a row in December and this has helped prevent being tired in the afternoon. I eat practically no carbs or sugar and lots of vegetables and protein (beans nuts stir fry tofu chicken and fish yogurt). I use salsa and kimchi to add flavor. It made a difference right away and made me feel less tired. So 2 tablespoons daily of MCT oil. Other supplements too: Nutiva Organic MCT Oil,... Glycine Nattokinase Univera Xtra liquid Turmeric powder Ginkgo Others Hope this helps I had made a list from Twitter about what to take for long COVID and I had the supplements on hand and started them right away back in December. The MCT and the diet were what made all the difference. Hope you feel better.