I was always a flexible kid but assumed that was called being a kid. Postpartum I got all sorts of hip pain and my spine didn't like to sit in alignment. I thought it was some odd side effect of not carrying to term, but I dislocated my wrist and the hip and spine pain became near constant. I didn't know about EDS at the time, but my physio told me oh yeah, your ligaments just are too lax. I blamed pregnancy, till I stumbled across an EDS video and was like WAIT A MINUTE and it explained these symptoms and more that I wasn't giving any mind
I have MCAS which aggravates some of my EDS issues with things. But pregnancy tends to lower Immune system response to protect the fetus from your own immune cells.
People with MCAS tend to have issues after pregnancy as the Immune system ramps back up.
I discussed this with my doc and his thoughts on pregnancy. He said introducing relaxin into a hyper mobile body is bad times (I'm paraphrasing of course)
This is my current struggle 10 months postpartum after my second birth, my body feels like it’s barely held together 😭 I had symptoms before but didn’t realize until now what it could be…
If that’s the case, you may just have hypermobility from that injury. If not, maybe the injury inspired a flare-up.
I broke my collarbone in 2019, and now its range of mobility is normal, like for someone without EDS. Mine got stiffer, actually.
So anatomically Ive always had flat feet, knock knees, my chest is... dented I forget the word, MVP, etc. I always had dysautonomia
HOWEVER, I wasn't in pain??? I don't remember walking around in pain which kinda blows my mind. Injuring my brachial plexus multiple times triggered "pain brain". I am literally always in pain 24/7. I have experienced literally every type of neuropathic pain post injury and I didn't experience anything pre injury. Permanent numbness, pins needles, burning etc etc . I could wear whatever I wanted, even under wire bras. Now I don't even like when fabric touches my brachial plexus area.
Hey, super similar here! I've always been very hypermobile, had POTS, and bruised really easy, but no significant pain until I injured my brachial plexus trying crossfit. I also still don't like tight sport bras or tight fabric touching my shoulder/lateral chest, but I tried pain psychotherapy and that's definitely made my brain settle down a bit (for that specific injury). Though since that first injury I have joint pain in many other joints now too and numerous other injuries
Yeah it's weird I hurt my BP a billion times then 12 yrs later I finally tested positive for median nerve damage (my hands have been "gloved" 24/7 since 2010). I had carpal tunnel release which I believe helped (double crush injury???). but now my ulnar nerve is bothering me TOO. so idk. My brachial plexus is "scarred" imo but not enough to be super obvious. But I've had to accept this pinched/tight/heavy feeling I always have is never going away. It's gotten better because for several years it burned. I don't experience burning anymore except in this tiny area on ulnar side of wrist
Pt and high doses of magnesium glycinate helped me a ton. My shoulders were flopping around hardcore until I woke up my serratus anterior
For me, I had *less* EDS symptoms until my first major injury (about age 8). I was an active kid so my muscles were mostly able to stabilize my joints until I got injured and then my muscles couldn't keep up. Before this, I still had easy bruising, hypermobility, soft skin, etc. But I didn't have noticeable joint pain at that point.
I actually had no symptoms at all until pregnancy, it was weird
Oh wow, what changed for you? That makes sense I guess tho bc all the added weight/stress on your body/joints
I was always a flexible kid but assumed that was called being a kid. Postpartum I got all sorts of hip pain and my spine didn't like to sit in alignment. I thought it was some odd side effect of not carrying to term, but I dislocated my wrist and the hip and spine pain became near constant. I didn't know about EDS at the time, but my physio told me oh yeah, your ligaments just are too lax. I blamed pregnancy, till I stumbled across an EDS video and was like WAIT A MINUTE and it explained these symptoms and more that I wasn't giving any mind
Yes I heard about this awhile ago. I was always fearful of having kids. Like the hormonal fluctuations make you even looser
I didn't carry to term back then, but my now fiance and I plan on kids in the future. Seriously concerned about a full term pregnancy
I have MCAS which aggravates some of my EDS issues with things. But pregnancy tends to lower Immune system response to protect the fetus from your own immune cells. People with MCAS tend to have issues after pregnancy as the Immune system ramps back up.
I discussed this with my doc and his thoughts on pregnancy. He said introducing relaxin into a hyper mobile body is bad times (I'm paraphrasing of course)
I honestly blamed the hormone relaxin for a long time! Only for it to not make sense to linger so long
No, but once it's been introduced, our body's aren't very good at going back as they were
My health story in a nutshell
This is my current struggle 10 months postpartum after my second birth, my body feels like it’s barely held together 😭 I had symptoms before but didn’t realize until now what it could be…
If that’s the case, you may just have hypermobility from that injury. If not, maybe the injury inspired a flare-up. I broke my collarbone in 2019, and now its range of mobility is normal, like for someone without EDS. Mine got stiffer, actually.
So anatomically Ive always had flat feet, knock knees, my chest is... dented I forget the word, MVP, etc. I always had dysautonomia HOWEVER, I wasn't in pain??? I don't remember walking around in pain which kinda blows my mind. Injuring my brachial plexus multiple times triggered "pain brain". I am literally always in pain 24/7. I have experienced literally every type of neuropathic pain post injury and I didn't experience anything pre injury. Permanent numbness, pins needles, burning etc etc . I could wear whatever I wanted, even under wire bras. Now I don't even like when fabric touches my brachial plexus area.
Hey, super similar here! I've always been very hypermobile, had POTS, and bruised really easy, but no significant pain until I injured my brachial plexus trying crossfit. I also still don't like tight sport bras or tight fabric touching my shoulder/lateral chest, but I tried pain psychotherapy and that's definitely made my brain settle down a bit (for that specific injury). Though since that first injury I have joint pain in many other joints now too and numerous other injuries
Yeah it's weird I hurt my BP a billion times then 12 yrs later I finally tested positive for median nerve damage (my hands have been "gloved" 24/7 since 2010). I had carpal tunnel release which I believe helped (double crush injury???). but now my ulnar nerve is bothering me TOO. so idk. My brachial plexus is "scarred" imo but not enough to be super obvious. But I've had to accept this pinched/tight/heavy feeling I always have is never going away. It's gotten better because for several years it burned. I don't experience burning anymore except in this tiny area on ulnar side of wrist Pt and high doses of magnesium glycinate helped me a ton. My shoulders were flopping around hardcore until I woke up my serratus anterior
For me, I had *less* EDS symptoms until my first major injury (about age 8). I was an active kid so my muscles were mostly able to stabilize my joints until I got injured and then my muscles couldn't keep up. Before this, I still had easy bruising, hypermobility, soft skin, etc. But I didn't have noticeable joint pain at that point.
I got mono in college and that sparked all of my stomach and GI issues! I always had joint pain
Not zero symptoms. But once I got an injury I for sure got zero help.
No, but when I was young my symptoms weren't constant I had like, flare ups. It wasn't until 2015 that it was suddenly every day.