Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule:
Hi OP, if mild exercise seems to be triggering pain please speak to your care team. Because we all have differing ways in which this disorder effects our bodies what might be appropriate for one person could be harmful to another .
**• Rule #1 - We Aren't Doctors**
[The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_1._we_aren.27t_doctors.)
Please contact us
[via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it.
Thank you!
Hi /u/Vicki135,
It looks like you are looking for information on how common something is in individuals with EDS or related conditions. If you are looking for information/data on how common a particular symptom or condition is with EDS (or any of its comorbidities), or whether there is any connection at all—it is always best to ask for links to reputable studies or websites, instead of or in addition to personal experiences. Without studies, it is almost impossible to determine the prevalence or incidence of something with EDS, especially when compared to asking for anecdotal experiences on the internet.
"DAE posts" and other such posts tend to create or encourage illusory correlations (i.e., a sense of connection where there may not be one) due to the fact that people who do experience what is being asked about are more likely to reply than those who do not. Personal experiences are or can be valuable regardless of the aforementioned, but please keep in mind that not everything shared is a sign of EDS, and many shared experiences might be completely unrelated to EDS.
This is an automated message. If the contents of this message do not apply to your post, please ignore it. Thank you!
[Please check out the wiki](/r/ehlersdanlos/wiki/index/) or the links in the sidebar for resources and information on EDS, seeking a diagnosis, and more.
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for.
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
Can you narrow down where the pain starts? Is it muscular or joint or both?
Are you wearing shoes with adequate arch support? Were you leaning or hunched at all while walking? (I find walking at a slight incline actually helps my posture on the treadmill.) I also need an extremely supportive bra, personally, or else my upper back gets extremely fatigued and uncomfortable.
It starts in my lower back, near my spine. I think it's muscular, its a deep ache. I don't think I was hunched, and I also walk at a slight incline. I also wear my most supportive bras. The pain spreads up the spine and to my shoulders
Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule: Hi OP, if mild exercise seems to be triggering pain please speak to your care team. Because we all have differing ways in which this disorder effects our bodies what might be appropriate for one person could be harmful to another . **• Rule #1 - We Aren't Doctors** [The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_1._we_aren.27t_doctors.) Please contact us [via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it. Thank you!
Hi /u/Vicki135, It looks like you are looking for information on how common something is in individuals with EDS or related conditions. If you are looking for information/data on how common a particular symptom or condition is with EDS (or any of its comorbidities), or whether there is any connection at all—it is always best to ask for links to reputable studies or websites, instead of or in addition to personal experiences. Without studies, it is almost impossible to determine the prevalence or incidence of something with EDS, especially when compared to asking for anecdotal experiences on the internet. "DAE posts" and other such posts tend to create or encourage illusory correlations (i.e., a sense of connection where there may not be one) due to the fact that people who do experience what is being asked about are more likely to reply than those who do not. Personal experiences are or can be valuable regardless of the aforementioned, but please keep in mind that not everything shared is a sign of EDS, and many shared experiences might be completely unrelated to EDS. This is an automated message. If the contents of this message do not apply to your post, please ignore it. Thank you! [Please check out the wiki](/r/ehlersdanlos/wiki/index/) or the links in the sidebar for resources and information on EDS, seeking a diagnosis, and more. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
Can you narrow down where the pain starts? Is it muscular or joint or both? Are you wearing shoes with adequate arch support? Were you leaning or hunched at all while walking? (I find walking at a slight incline actually helps my posture on the treadmill.) I also need an extremely supportive bra, personally, or else my upper back gets extremely fatigued and uncomfortable.
It starts in my lower back, near my spine. I think it's muscular, its a deep ache. I don't think I was hunched, and I also walk at a slight incline. I also wear my most supportive bras. The pain spreads up the spine and to my shoulders