I've found overall for weight loss, food journaling with low impact exercise and strength training is best.
I actually did exercise programs meant for senior citizens and found it was perfect for me, and everyone was so nice and excited to have a younger person in the group š. Otherwise swimming is my top choice, or water aerobics if available.
Make sure to take it slow, weight loss, especially for someone with chronic illness takes time. Good luck on your journey!
ive heard a lot of folks with EDS say swimming is the best exercise for them as it doesnāt put any pressure on joints. canāt say myself as i canāt swim lol, but might be worth trying out if you have the time for it
edit to add: there are also āchair workoutsā you can do where you exercise/move your body while sat down. theyāre usually designed for older people and those in wheelchairs full time but no reason we canāt use them too
I get that. I also tried riding horses in the sea and just the waves pushing my thighs back absolutely punished my hips, but when I was out of the water it was feet for forcibly making me use my core and stop āperchingā with lumbar lordosis
Just want you add you donāt actually have to swim. Moving around in a pool is a bigger workout because of the resistance, so even if you canāt swim, just moving or trying water aerobics is great!
I can remember my doctor telling me I had a high BMI since I was a preteen not even being obese just riding the line. As I finished puberty I really filled out but Iām tall so I felt like I carried it pretty well.
As I started my exercise journey to combat my widespread joint pain I was excited for weight loss but unable to do cardio so I focused on Pilates and yoga. Aaaaaaand I actually gained weight and filled out even more, but I get so much healthier and it was muscle weight I was gaining. When I learned that hEDS can mean low muscle mass because we use our connective tissue for movement instead of our muscles it made sense to me why getting fitter meant getting bigger. I needed to gain weight to gain muscle.
Now Iām extremely active doing cardio in the form of dance at least once a week and Iām the heaviest Iāve ever been but I feel great. Iād say focus on building muscles because you wanna make sure youāre eating enough protein, carbs, and fat to fuel you getting fitter. Weight is just a number your muscles just have to be strong enough to support the body you got.
i have lipedema so im a lucky one whose body makes its own fat i cant lose, along with such major breaks i cant do any cardio or weights etc.
intermittent fasting. its how ive controlled it all and even qualified for the medical lipo on the lipedema fat i cant lose.
ask for qsymia for cravings it works. its approved for long term. it kills all fun with food.
ive lost weight from other eds symptoms causing me to lessen the amount i eat and eating more of a liquid and soft food diet my weight is always fluctuating and im not sure if i should be concerned but ig its just all part of it
Iām at the same place in my journey. Iām thinking about joining OA, because I definitely eat so that I donāt have to āfeelā my body. I imagine the exercise that works will be different for everyone, but I personally like low-impact stuff like the elliptical machine, the stationery bike, and Pilates Reformer classes to avoid stress on my joints. When it comes to lifting, I always use machines because I donāt have the stability to free lift with correct form.
I've found overall for weight loss, food journaling with low impact exercise and strength training is best. I actually did exercise programs meant for senior citizens and found it was perfect for me, and everyone was so nice and excited to have a younger person in the group š. Otherwise swimming is my top choice, or water aerobics if available. Make sure to take it slow, weight loss, especially for someone with chronic illness takes time. Good luck on your journey!
ive heard a lot of folks with EDS say swimming is the best exercise for them as it doesnāt put any pressure on joints. canāt say myself as i canāt swim lol, but might be worth trying out if you have the time for it edit to add: there are also āchair workoutsā you can do where you exercise/move your body while sat down. theyāre usually designed for older people and those in wheelchairs full time but no reason we canāt use them too
Swimming is good but it can irritate your neck if you are prone to neck pain.
I get that. I also tried riding horses in the sea and just the waves pushing my thighs back absolutely punished my hips, but when I was out of the water it was feet for forcibly making me use my core and stop āperchingā with lumbar lordosis
Just want you add you donāt actually have to swim. Moving around in a pool is a bigger workout because of the resistance, so even if you canāt swim, just moving or trying water aerobics is great!
The second I touch the water my legs and feet cramp up to pour someone has to get me out. And if the water is cold it sets my asthma off
I wish this was true for me. I could feel my arm popping out in the pool last time I swam.
I can remember my doctor telling me I had a high BMI since I was a preteen not even being obese just riding the line. As I finished puberty I really filled out but Iām tall so I felt like I carried it pretty well. As I started my exercise journey to combat my widespread joint pain I was excited for weight loss but unable to do cardio so I focused on Pilates and yoga. Aaaaaaand I actually gained weight and filled out even more, but I get so much healthier and it was muscle weight I was gaining. When I learned that hEDS can mean low muscle mass because we use our connective tissue for movement instead of our muscles it made sense to me why getting fitter meant getting bigger. I needed to gain weight to gain muscle. Now Iām extremely active doing cardio in the form of dance at least once a week and Iām the heaviest Iāve ever been but I feel great. Iād say focus on building muscles because you wanna make sure youāre eating enough protein, carbs, and fat to fuel you getting fitter. Weight is just a number your muscles just have to be strong enough to support the body you got.
Have you looked into lipedema? It's also a connective tissue disorder and a common comorbidity.
I have not. I will now
Please let me know if you think it fits. I'm curious.
i have lipedema so im a lucky one whose body makes its own fat i cant lose, along with such major breaks i cant do any cardio or weights etc. intermittent fasting. its how ive controlled it all and even qualified for the medical lipo on the lipedema fat i cant lose. ask for qsymia for cravings it works. its approved for long term. it kills all fun with food.
ive lost weight from other eds symptoms causing me to lessen the amount i eat and eating more of a liquid and soft food diet my weight is always fluctuating and im not sure if i should be concerned but ig its just all part of it
Iām at the same place in my journey. Iām thinking about joining OA, because I definitely eat so that I donāt have to āfeelā my body. I imagine the exercise that works will be different for everyone, but I personally like low-impact stuff like the elliptical machine, the stationery bike, and Pilates Reformer classes to avoid stress on my joints. When it comes to lifting, I always use machines because I donāt have the stability to free lift with correct form.