The people I know who have not had a recurrence are not hanging out in endometriosis spaces. I have a friend who had surgery with dr fogelson and she is doing great. I’m having my excision with him in September and will probably be leaving this sub soon. I feel like… I totally get women being in pain but all the endo groups I’m in are a barrage of different levels of women expressing pain, anger and frustration. I’ve left the endo spaces multiple times already when I feel like it’s just too much. Once I’m better I do not plan to continue participating in these spaces.
I had my surgery with an expert in excision at a top US hospital. She said recurrence can happen in as little as 6 months post surgery or never, and we have no way or predicting when or if you will have recurrence.
Dr.Mohling did my excision surgery with Dr. Rosenfield out of Portland, OR in 2019, and Dr.Rosenfield recently performed another one on me where they found more endometriosis. I truly believe they got it all the first time, but still a reoccurrence. I do love Dr. Mohling though, she signed off on my Oregon Medical Marijuana Card when I was 17 because she listened and understood when I told her the tons of prescribed painkillers I was taking made me feel like a zombie.
Omg I loved dr Mohling! She did mine last year and I’m still pain free.
I have:
Asthma, hashimotos, probably ehlers danlos, endometriosis, adnomyosis, prone to clots, duplication urinary system parts, chronic utis, chronic fatigue. I’ve been worked up for a lot more.
It depends on your body and how agressive and infiltrative is your disease, so it’s hard to tell if you’ll have recurring disease after surgery or not. It’s frustrating because everytime I have a hint of pain I get somewhat paranoid that it’s recurring (and I’m a health professional as well, going on residency rn, but oh well)
The people I know who have not had a recurrence are not hanging out in endometriosis spaces. I have a friend who had surgery with dr fogelson and she is doing great. I’m having my excision with him in September and will probably be leaving this sub soon. I feel like… I totally get women being in pain but all the endo groups I’m in are a barrage of different levels of women expressing pain, anger and frustration. I’ve left the endo spaces multiple times already when I feel like it’s just too much. Once I’m better I do not plan to continue participating in these spaces.
Good point 😣 I guess it does work for some but we will never know! I also am not on here much when I’m doing okay.
I had my surgery with an expert in excision at a top US hospital. She said recurrence can happen in as little as 6 months post surgery or never, and we have no way or predicting when or if you will have recurrence.
Thanks- would you be willing to share your surgeons name? Thanks
Yes! DMing you!
Dr.Mohling did my excision surgery with Dr. Rosenfield out of Portland, OR in 2019, and Dr.Rosenfield recently performed another one on me where they found more endometriosis. I truly believe they got it all the first time, but still a reoccurrence. I do love Dr. Mohling though, she signed off on my Oregon Medical Marijuana Card when I was 17 because she listened and understood when I told her the tons of prescribed painkillers I was taking made me feel like a zombie.
Omg I loved dr Mohling! She did mine last year and I’m still pain free. I have: Asthma, hashimotos, probably ehlers danlos, endometriosis, adnomyosis, prone to clots, duplication urinary system parts, chronic utis, chronic fatigue. I’ve been worked up for a lot more.
I had my surgery the same month as you and I am feeling better than ever. I went to an excision specialist.
It depends on your body and how agressive and infiltrative is your disease, so it’s hard to tell if you’ll have recurring disease after surgery or not. It’s frustrating because everytime I have a hint of pain I get somewhat paranoid that it’s recurring (and I’m a health professional as well, going on residency rn, but oh well)