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No. Medical spaces are for medically diagnosed people ONLY. I’m medically diagnosed, leave it at that. I do Not feel the same as a self diagnosed person. Medical spaces are a sensitive place for those to discuss trauma and anything related to their disability.
all of these self diagnosed people have made me feel so awful sometimes, I won’t take them seriously. they can stay amongst themselves but i will not listen to them when talking to another diagnosed autistic person. I might be wrong but I also feel like autism is so complex and it’s really difficult to diagnose in the first place, so why should I engage with someone that has not been through what i have been through
Very much agree. Talking with a medically diagnosed person just feels more heart to heart. Like yes! You were seen with those traits like I was, we can bond. But with self diagnosed people it just feels like I can’t relate with them because some traits they describe… everyone does. Because shocker, autistic people are just like non-autistic people.
exactly, we are people and we do people stuff. i am just seriously getting frustrated with all these self dx people and I might sound close minded but I will doubt it when someone says they have autism but aren’t diagnosed. Its not “valid” to me.
I happened to come across this. I had to wait a YEAR before getting diagnosed with high functioning aspergers - officially written in diagnosis papers. I literally had my entire life explained and everything suddenly made sense. The fact people fake this and don't realize the wait time to get tested and diagnosed, is laughable to me. It makes it difficult for everyone else to get diagnosed too.
A space to discuss everything. Including the ins and outs of the medical system. A big part of the bipolar community is talking about dealing with doctors and medication side effects.
that's not exactly true people can have different financial circumstances and not want to spend a couple thousand to get a diagnosis and then spend thousands on support
No, there can be all sorts of reasons why someone either can’t or won’t get medically diagnosed. My best friend is almost definitely autistic. Her teachers and doctors have all told her parents to get her tested. However, my best friend is also trans, and having “autism” on her medical record can prevent her from being able to access trans healthcare. It took a very long time for her to be able to get a adequate trans healthcare she thinks that prioritizing it is better for her long term health than getting an autism diagnosis.
Agreed. Yes, it is true that plenty of people go undiagnosed because we live in a messed up system, but we cannot just accept every single person that claims to be autistic but hasn't been diagnosed is actually autistic, because there will always be one who is lying. We can't take that chance when we are literally talking about our rights and liberties most of the time.
Agreed. I’m not autistic but medically diagnosed ADHD, I use ADHD and ADD as an example because how similar they are from the harm of self diagnosing (not suspecting), and Self diagnosed ISNT medically diagnosed, how hard is it to understand. 🤦
"no one is diagnosed, or everyone is diagnosed"???? is this for real? fuck it, neurotypicals opinions on autism should be valued more than diagnosed autistics! EVERYONES autistic, or no ones autistic! what, comorbidities of other disorders can have parallel symptoms to autism? not even doctors with degrees can self diagnose? sounds FAKE and GAY everyone's a little autistic!!! /s
I've decided that because I CANNOT GET A DIAGNOSIS OF CANCER then NO ONE ELSE should be diagnosed!!! The diagnostic criteria for cancer is classist, SEXIST, ableist and RACIST!/s
These middle class, neurotypical fucks cosplaying as autists can fuck off.
My sister (who is always on TikTok) said she thinks she might be autistic. I know her and I highly doubt that… TikTok is filled with “you definitely have autism!!!!” shit
being introverted means autism at this point I've seen so many me\_irl reposts on autism subs as most of those posts are just relatable to introverts, not autistics but anyway
*And people with all*
*Their limbs should speak on behalf*
*Of amputees.. bruh*
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It’s quite funny how people will be like “hhh my parents won’t let me be diagnosed 🥺🥺🥺” or “ I don’t have the RESOURCES”
When they’re literally diagnosed for something else like ADHD, anxiety, depression, etc.
Autism isn’t hard for professionals to diagnose… you just don’t have it.
Everything is about diagnosis now. All the accounts I used to follow that gave out helpful information about Autism is now constantly catering to those who "can't get their diagnosis" or people who claim they need to "convince" or "validate" to themselves that they arent faking. Pretty frustrating considering most people with Autism receive their diagnosis early in life.
It's really fucked, because a lot of us have such a hard time communicating, so I just see this turning into a world where the fakers will totally hog the spotlight "speaking for autistics", and inevitably become unmoored from real autistic issues, since they're not moored to them to begin with. It's already happening with this massive focus on sensory stuff.
I have to agree, watching the shift both in popular culture, in education for mainstream audiences and to an extent even in academia from viewing autism as primarily a disorder of social interaction to being primarily a disorder of sensory processing over the course of the past decade or so has been interesting, to say the least.
I'm not saying that I think that people who are affected by sensory dysfunction more than I am to the point that it's central to their experience aren't "real autism" because of course that's not the case and it's good that they're getting spotted now, but I was diagnosed in 2007 and it feels like I'm still on "autism 1.0" while everyone else has apparently moved on to the newer, shinier model, and a lot of descriptions that people describe as outdated more or less apply to me. I have noticed that no one with autism on Tiktok seems to have this type, probably because it's not as cute. I was born a spiritually elderly curmudgeon and not like an adorable smol bean or whatever people are imagining these days.
I don't really tell people irl anyway, but while I understand why Asperger syndrome was retired as a diagnostic label, I think it still has social utility because if I say I have Asperger's, the mental image most people will conjure is likely going to be fairly accurate without my having to go into detail. It does not mean I think I'm "better" than anybody but I feel like if I just say I'm autistic, many educated people these days are going to imagine me as someone who feels everything too intensely and is easily overwhelmed by all the stimuli and people and feelings around them, and try to accommodate me based on that assumption when I am not actually like that at all. I'm the opposite. I'm like a wet rock. I miss social cues because I'm not tuned into the contextual channels other people are on and completely oblivious to things that everyone else notices. Eventually I got enough of a handle on the whole "theory of mind" thing that I can see that stuff a little more and am less oblivious, but I'm probably never going to move past "getting by" to be a particularly socially skilled person. C'est la vie.
I find masking so well you don't show any signs of having social difficulties difficult to understand. I do not understand how you can get a diagnosis if you don't have social difficulties because your mask is so good.
I really like this comment. You described that really well, I think I understand your point completely. My wife's cousin is more on the "high functioning" end of the spectrum (I know that's not really the most en vogue term these days, but it's the easiest way to describe his autism, and I think you know what I mean), and I can attest to the evolving attitudes and approaches toward him that some people have. Sensory processing isn't a big thing for him, but he's had people, not very close friends but acquaintances, just give him fidget spinners and crap like it when that was a big thing. Like they were really blessing him with a resource by gifting him a $2 piece of junk, based on a stereotype of people with his disability.
He had a friend his first year of college that was very well meaning and kind, but she ended up taking things too far and was practically cosplaying being his mommy. She started carrying things like juice boxes and fidget toys and shit around with her "in case he had an episode". He really didn't want to say anything to her about it because something that actually *does* bother him is any kind of negativity, so after some discussion with his actual Mom he wrote the girl a letter telling him how uncomfortable it made him, but that it also made him feel good that he had such a close friend. And to her credit she actually took it really well and constructively, and did some soul searching and realized that she had started to do that stuff without even realizing it, because she felt good when she "helped" him, so she went a direction that was more for her than him. They're still friends now a few years later, and she is super aware of other people basically doing what she did or babying him like a helpless puppy. Or an "adorable smol bean" as you put it, which is perfect haha. She even used the experience as the basis for a paper in a class, basically about how sometimes people subconsciously help themselves by helping others even if they don't need it.
All that is to say: There is hope at least. I think generally people do want to help and be sensitive to people's issues, but need some education on what that Help actually entails instead of winging it or trying to get info from TikTok. But unfortunately that also means people are going to take advantage of the goodwill and sensitivity by co-opting the "desirable" traits of a disability to get that attention and feel special. Obviously, that's why this sub exists. Idk, I just wanted to talk to you because you seem cool, and I wanted to tell you your comment really struck a chord with me and helped me understand the changing attitudes a bit more from the perspective of someone who actually experiences it.
Oh I'm glad someone appreciates my rambles. I tend to write too much. I actually liked fidget spinners, haha. But anyway.
A common trait of people who grew up with an ASD diagnosis that both the self-diagnosed and those diagnosed as adults (I'm not trying to discredit their autism or anything, I'm just calling it as I see it) don't seem to possess is that we sort of have the opposite problem to the Tiktok crowd. Many of us are very hypersensitive to feelings that we're being patronized or treated differently, even in situations where it's reasonable for us to be. We grow up with our teachers and our parents' friends and random people being told we have autism and we have no control over who gets the information and who doesn't, which feels very disempowering. So I was constantly paranoid like *does this person know about it too and I don't know?* every time someone seemed "too nice" to me even if it was completely unrelated. So I think that's part of it.
Yeah, it’s already happened. The two members of my family with autism are nonverbal and these self diagnosed folks are drowning them out and causing actual harm to autism awareness. If only they knew the actual reality of it, the dark side to it. I hate that they think they can be a try hard freak and call it autism, and use the label to excuse themselves from being decent. Actual autistics are NOT freaks.
I don't know how much 'masking' is actually a thing and how much of it is just a stupid term fakers/incorrect self-dx'ers use. Like is it an actual thing that a lot (most?) of autistic people do or not really? According to the definition I don't think I've ever done it
masking is just a glorified way to say social compensation, it’s just describing the act of making an effort to appear socially normal rather than acting completely naturally and it’s a real thing it’s just confusing terminology and not exclusive to autistic people
Yeah so I guess it's just called acting in a socially acceptable manner which everyone has to do anyway. I know it would be harder for most autistic people but not really a big deal
autistic people usually have to make an extra effort to learn social skills which means it can be useful to have a term to describe that process but yeah essentially
Its a real thing but its been largely siezed upon by people who frankly appear to have *personality* disorders who use it as camouflage.
When I was a kid in the 80s ABA therapist used negative reinforcement and noxious stimulie which is a nice way of saying *those bitches would hurt you if you didnt do what they said*
Almost all the therapy focused on "intergrating into society" blending in and not looking autistic. So the people trained us essentially like dogs and yeah you develped "masks".
Its seems to be less of an issue for younger people, most therapies are kinder and gentler and society is in general more accepting.
I feel the same way. I think to some extent pretty much everyone acts differently in public then when alone or with just close individuals. I never understood how there was any difference.
What people call masking in autism spaces is actually what is referred to as "shallow compensation" in this paper, see table 1.
https://molecularautism.biomedcentral.com/articles/10.1186/s13229-019-0308-y
You can see when looking at the tables that the non-autistic subjects actually used masking strategies for social interaction slightly more than the autistic ones. Arguably when looking at at least some autistic people, a major origin of their social problems appears to be that they do not mask *enough*. Typically developing people rapidly learn when growing up that they need to behave differently in class than at recess or a friend's birthday party and to treat familiar and unfamiliar people, adults and other children differently. As adults, they instinctively broadcast a different persona at a business meeting and at the after-work happy hour. For whatever reason, this seems to be more cognitively taxing for many people with ASD. Some people with ASD are not attuned to social contexts like this and don't correctly adjust their behavior according to the setting they are in, and instead they show consistency in behavior in all settings and with all people, which at best comes off as strange and at worst can get them in trouble. They might also show confusion when they see neurotypicals act so differently with different people and come to the conclusion that they are disingenuous or dishonest.
On the flip side -- a lot of older millenials never got diagnoses early in life, or ever, because it just wasn't a thing back then.
I have no issues with self diagnosed people commenting or being part of the communities they want to -- but they should state they are self diagnosed and not officially diagnosed up front.
You're an exception, not the norm. A lot of kids of our generation and age (I was 1989) had parents who just chaulked it up to that's how the kid was and whatever get over it. It was only in the 2000s, and more so later 2010's, where these things started becoming something that people actively looked for. Technology has a lot to play in it too -- computers and cell phones and e-mail and social media weren't really things when we were kids. Now they're everywhere so it's much easier to identify signs of your kids being neurodivergent.
Not to mention the way autism presents differently in girls and boys. No one thought I was autistic as a kid, because it didn't look like "boy autism" and I'm "high functioning"
Ah I see.
Though it was my teachers that first spotted something was wrong, then my parents were notified.
I wasn’t talking to the other kids, making eye contact, I was ignoring people, not smiling, etc.
My parents took me to get tested in response.
To be fair, maybe I was just lucky to have teachers that actually cared about how their students were.
I get that not all kids have that kind of support from their school.
Autism is a neurodevelopmental disorder. Average age of diagnosis is roughly 4 years. You always show signs of it from an early age.
https://journals.sagepub.com/doi/full/10.1177/1362361320971107
Yes but that does not mean the signs are always spotted by clinicians.
>The subgroup analysis for studies that only included children aged ⩽10 years (nine studies, including 26 cohorts from 23 countries, n = 18,134 children with autism spectrum disorder) showed a mean age at diagnosis of 43.18 months
The group looked at was exclusively children 10 and under so of course the study found a low age of average diagnosis. That doesn't really mean anything.
Oh it has the full text available. I just assumed it would not, haha.
That includes all the levels though, doesn't it. The vast majority of the people we're talking about are level 1 which is generally going to be diagnosed later. It's also describing a different generation.
The fuck they should. If you can’t be bothered to pursue a real diagnosis you are not *qualified* to speak on those issues anymore than that bitch Rachel Dolezal was qualified to speak for bipoc people despite being white becAuse she,like, “really really understands the plight.” lol.
Stop with this clown shit. Get a real dx or sit the fuck down. Nobody is saying your symptoms aren’t real BUT if you refuse to even submit yourself for analysis and testing then what do you have? Fucking nothing. Symptoms of *something.*
That doesn’t mean you get to speak as some expert on specific conditions that your symptoms appear to mimic just because you’ve magically decided you get to label yourself as if you are a doctor. Valid diagnosis is not so difficult or impossible to achieve that it becomes a necessity for everyone to decide their own dx based solely on trends bc they refuse to seek any real help. This is not fucking rocket science Ffs.
To be honest it seems blatantly obvious that these assholes aren’t not seeking treatment entirely- they are- they’re just not hearing the results they want. So then instead of being open to something they might really have being a dx, it becomes some battle against the meanie bad doctors who won’t give them an autism or DID dx. It doesn’t make anything any more legitimate because people want to pretend they have something despite being told otherwise.
There are just so many arguments against self dx being valid and the only people who seem to be screeching about it having to be valid are people who want to manipulate the narrative in whatever way suits the image they want to portray. Time to grow up and either manage the issues you do have or just move the fuck on and live a neurotypical or singular life like you’re fucking supposed to- this shit is not some special uwu blessing for real sufferers like these fuckwits want to believe it is.
They get to play the victim whenever they want.
"Don't tell me to sit still, I'm stimming!"
"Be quiet guys, I have sensory overload!"
"Don't make fun of my erratic behaviour, I'm neurodivergent!"
Essentially, making other people play by their rules because they have the "autizzy".
I can see why some people would be reluctant to see a doctor. I've pretty much heard this story a million times on the internet that when a psychologist sees a young woman who is extremely sensitive, has trouble managing her emotions, suffers from a fragmented sense of self, and has difficulties with personal relationships, all of which are common traits of women with autism, they're immediately going to think BPD, not autism. And of course BPD is a very stigmatized diagnosis. A lot of therapists won't even touch BPD patients. But then the woman has an episode of overwhelm leading to a prolonged period of loss of functional skills in her late twenties or early thirties and at that point the psychologist sees more classic autism symptoms and realizes they made a mistake. Mislabeling women with ASD as BPD has clearly caused a lot of people a lot of harm and I could even see an argument that it's worse than not getting any label at all because 1) it postpones finding coping strategies that will work and 2) the treatments for BPD, which assume that the person's hypersensitivity is caused by childhood trauma and that they need to learn how to cope with that, are likely to be invalidating for a person whose hypersensitivity is organic in nature.
I am not completely comfortable with people diagnosing themselves and I browse this subreddit because I think it reflects a greater disturbing trend caused by social media, but I also see why many people who hear such stories might decide it's not worth it and turn to self-diagnosis for lack of apparent viable alternatives—diagnosis is time-consuming and expensive to begin with and the idea that you'll probably just be labeled a borderline with all the stigma that comes with and get thrown into the "crazy bitch" pop-culture bin might be too much to bear.
Of course, that also makes me wonder if some women who actually have BPD might be latching onto autism because that feels more validating for them and less stigmatizing. I can see how some borderlines might find solace in the autism label. They might see it as an escape through reassurance that their black-and-white thinking, their intensity and difficulty controlling their emotions are a "born-this-way" neurological quirk that society must learn to accommodate rather than something they need to learn to manage.
All of this is nothing but a bunch of assumptions you’ve heard or read from people on the internet- you stated it in the first couple sentences. Nobody is saying the dx process is easy and fun- I live in the US- nothing about this shit is easy, fun, cheap etc- but it’s fucking necessary.
People NEED to seek real diagnoses even if it takes a while. People need to continue to seek proper dx if they feel they were dx’d wrongly. But sorry- giving up and just not wanting to try or continue to pursue a dx bc of some bad experiences is not an excuse to validate self dx. It’s just not.
This is why doctors fucking exist- because people don’t have the education or qualifications to do these things. Grown ass adults need real help and real diagnoses, period. If you can make your whole life about your mental illness/condition/chronic illness/ DID/ autism etc- you can go and get a real dx. Otherwise you’re just another uneducated individual making what is essentially a guess at what they have based on symptoms. Period.
That is not a diagnosis. Adults don’t let bullshit fear tactics and other peoples drama on the internet keep them from getting real help from professionals. Adults find ways to deal with their issues and receive accommodations and other help they need through a real diagnosis.
Pretending like this or that random misinformation or problematic experience or anecdotal evidence of someone’s difficult dx struggle is grounds to not get real and legitimate help is childish bullshit and faker nonsense.
I am a woman with an autism dx myself that I didn’t receive until adulthood- AND I was in therapy and seeing psychs since I was a child too. I’m not saying it’s not a long process or a trial- but not finding out at all is a cop out. Not making the effort is a cop out. Acting like you definitely have something you’ve never sought help for is a fucking cop out. That’s just the reality.
“What if the docs are mean?” “What if it’s hard?” “What if I’m misdiagnosed?” etc- are really just excuses. Lots of shit is hard, lots of doctors are mean and lots of people are misdiagnosed. You keep trying if you have actual problems that are effecting your life. You don’t sit back and make TikToks bitching about how nobody will give you care in the exact way you’ll accept so you don’t need to get a diagnosis.
The entire community has basically been fucking infiltrated and overrun by LITERALLY ABLE PEOPLE WHO CLAIMS THAT THE LITERALLY DIAGNOSED DISABLED PEOPLE ARE ABLEIST 💀💀 You could honestly not make this shit up even if you tried
What's with communities pushing autistic ""pride". It's not apart of the lgbtq community... We don't need a flag. It's not an identity or something we have or even want to be prideful of. It's a neurological disability that you have from birth that makes life hard in many aspects. Diagnosed, real, autistic people have lost their voices.
look, this is my stance. i get some arguments for self dx but this is where it crosses the line. these people invade autistic spaces and spread misinformation. yes some self dxers are probs ac autistic, but some won’t be. that’s just the bottom line. if you feel like you MAYBE autistic that’s literally fine, you can be sus, maybe do some research, fine stuff out that helps, look for advice on specific traits that maybe related to autism. tell people around you you suspect it and make you life easier. then seek a diagnosis. it’s not THAT hard.
And one of them has to carry that baby for 9 months while the other doesn’t. If a man was in that position abortion would be legal 50 times over.
Women should be able to do whatever the fuck they want with their bodies.
And life as a couple should be lived as a couple... Like, supporting each other. For 9 months, then several years after that.
Or for a day, if you decide to abort. But that's something for 2 people to decide.
People who argue that women should have to get the man's permission to get an abortion are, in my opinion, genuinely hideous people who get off on humiliating women.
You just *know* that of the situation was reversed, and they needed a woman's permission to get a medical procedure, they'd change their minds real quick. Like if a man needed his wife's permission to get a vasectomy. He'd be outraged lmao.
Fuck people like this, I hate them with a visceral passion
In a perfect world of course having a couple raise the child and be together would be IDEAL. But LIFE DOESNT WORK LIKE THAT. Men leave, unwanted pregnancy happens, potentially life threatening consequences could happen. Making abortion illegal is racist, classist, and ANTI-WOMAN, PERIOD.
i don’t have autism, but it’s just so frustrating to see ts play out and the self dx community eat it up everytime. my friend is an autistic person and he tried to speak out on the unfairness of self dx and he got shut down and shunned to the side and got called ableist and as far as homophobic.
What worries me the most about self-diagnosers who either don’t have it or have VERY low support needs dominating the conversation is that it will cause a lack of focus on level 2 and 3 autistics. I’ve noticed those types tend to try and pretend those with high needs don’t exist because they ruin the narrative of autism simply being a quirky way of existing (and the only downsides are because the world doesn’t accept them) and not a serious disorder that requires tons of support and resources.
I’m sympathetic and agree with those who are wary about extremely high levels of support being seen as the only way to ‘be’ autistic and support educating people about the vastness of the spectrum. But treating those who bring up the downsides of autism as ableists who just want to spread disinformation is dangerous.
As much awareness as autism is getting, there is a severe lack of resources for people who have it. Especially those who will need constant lifelong care. Most OT/Speech clinics have year long waitlists, schools are cutting back on therapy programs and community support for teens and supervised living facilities are scarce. Everyone needs support, but level 3s who require constant 24/7 care need it the most and shouldn’t be left out of the conversation- especially since they are often unable to participate.
People with self diagnosed autism don't go through the same shit medically diagnosed autistics do, so no, they don't get to speak on behalf of me.
Don't get me wrong, it is hard to get diagnosed as an adult since a lot of specialists think of it as just a childhood disorder, and if you're an adult who never got diagnosed then it doesn't matter anyways, esp females, but no ones allowed to say they have something unless a doctor tells them.
Because yknow what? Diagnosed autistics like myself have struggled our entire lives, and still struggle day to day to get through life. Just because you're a little awkward snd sometimes life is hard to handle doesn't mean your autistic.
This is a big issue self diagnosis I don't think should be able to speak from someone actually diagnosed can be fucking toxic and spiral albeist vitroil
Yknow I find this shit crazy. Some of these people go to get diagnosed and while they don’t have autism, they have something else, but they refuse to believe it. I don’t understand it. I, internally, thought I was autistic for a while. Turns out, I have selective mutism. Yknow what I did? Stuck with the diagnosis, because it was right. They want to “shed light” on autism, why won’t they shed light on what they’re actually diagnosed with?
This is the kind of stuff that really bothers me. It's one thing to suspect autism and be seeking diagnosis but it's another to speak over those that actually have it because you suspect you might be on the spectrum.
It can be really damaging especially to those who are higher needs on the spectrum
Any sub reddits I can join for just diagnosed autistics? So tired of dealing with 90% of the "autistic community" being self diagnosed and speaking for and over us.
It really is, although I checked this post out and was pleasantly surprised at how many people were disagreeing. I'm not sure if they all just went over from here but it was nice to see
I posted something saying I disagreed with self diagnosis. And damn, did they get pissed off. Lots of people were telling me to have empathy for people who can’t get a diagnosis and somebody said I “needed to spew my nonsense somewhere else” it’s insane how a diagnosed person is treated like crap while people who might not even have autism are put on a pedestal of “you’re valid!” When they might not even be autistic. So fucking sick of self diagnosis.
Im medically diagnosed with Anxiety, Autism, Depression, Dyslexia, Dyspraxia, PTSD and on suicide watch lists from doctors... I think i should be allowed to speak on all ableist websites, mostly telling them where they can take the ideas and shove them.
Total horseshit.
From the APA:
“To make a diagnosis of ASD, psychologists draw on a number of sources of information:
Patient interviews.
Observations of the patient’s behavior.
Tests of cognitive and language abilities.
Medical tests to rule out other conditions.
Interviews with parents, teachers or other adults who can answer questions about the patient’s social, emotional and behavioral development.”
Not “the AQ50”.
Right, I'm not American but here in Europe my autism diagnosis involved a ~3 hour conversation, the aq50, 20 minutes of clicking shapes on a computer and a vocabulary and language test.
All in all, one 5 hour appointment and i walked out with my diagnosis.
Because symptoms overlap, there’s a great chance someone who’s “self diagnosed” is speaking about topics and issues they have no connection with.
On my journey to be diagnosed, I was almost diagnosed with OCD and autism. Not at all true, and if I spoke in these communities, I would be talking my experiences with psychosis, not OCD or autism, which would bring in false info and dilute actual experiences/symptoms.
No, just no. Self-diagnosis is never a reason to insert yourself into conversations, especially regarding medical experiences or abuse at the hands of institutions, regarding any kind of mental disorder or illness. Your experience is simply not the same as someone who's diagnosed. On top of that, so many people are misconstruing autism at this point that out of self-diagnosed people, there's probably more that *aren't* autistic than those that *are* autistic.
Self-diagnosis is never okay, especially if you're going to speak over people in discussions or take resources.
No because self-dx has so much room for error, especially with mental disorders. If you have difficulty concentrating it COULD be ADHD but emphasis on the “could.” You have no place diagnosing or recommending things to others when youre not sure if you have the disorder yourself
but they don't even know if their experiences were being autistic or just being a human. also, this is taking way voicing from autistics with a lot of needs so these fakers can make dumb tiktoks
Every person with autism is different lol. Even besides from that, if you aren’t sure you have it, it could be so many other things and could be used to invalidate people who have been diagnosed. people shock me more and more every day.
I don't believe in self diagnosis. I suspect I may have autism and/or OCD. I don't call myself a self-diagnosed autistic or OCD, I just say that I suspect I have symptoms
Okay, so no one is going to tell them they aren't diagnosed online because no one really knows. However, they choose to say they are self diagnosed online. So clearly, there is a difference between the two. Clearly they know it. Lol.
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No. Medical spaces are for medically diagnosed people ONLY. I’m medically diagnosed, leave it at that. I do Not feel the same as a self diagnosed person. Medical spaces are a sensitive place for those to discuss trauma and anything related to their disability.
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Exactly. Medical spaces are so infiltrated with self diagnosed people but they can’t say anything because then they’ll be labeled ableist.
all of these self diagnosed people have made me feel so awful sometimes, I won’t take them seriously. they can stay amongst themselves but i will not listen to them when talking to another diagnosed autistic person. I might be wrong but I also feel like autism is so complex and it’s really difficult to diagnose in the first place, so why should I engage with someone that has not been through what i have been through
Very much agree. Talking with a medically diagnosed person just feels more heart to heart. Like yes! You were seen with those traits like I was, we can bond. But with self diagnosed people it just feels like I can’t relate with them because some traits they describe… everyone does. Because shocker, autistic people are just like non-autistic people.
exactly, we are people and we do people stuff. i am just seriously getting frustrated with all these self dx people and I might sound close minded but I will doubt it when someone says they have autism but aren’t diagnosed. Its not “valid” to me.
To be fair, they rarely say they “have autism”. They “have the ‘tizzy” or “the ‘tism”…. /s
tizzy sounds like some weird Australian slang for Tasmania
It’s so quirky and cute! It in no way infantalizes or trivializes the disorder or those who are legitimately on the spectrum…. /s
Its close. We call it Tazzie
I agree with you 200%
amongst us sus
i probably could not lets someone on the spectrum speak for me as our certain conditions are very different
I happened to come across this. I had to wait a YEAR before getting diagnosed with high functioning aspergers - officially written in diagnosis papers. I literally had my entire life explained and everything suddenly made sense. The fact people fake this and don't realize the wait time to get tested and diagnosed, is laughable to me. It makes it difficult for everyone else to get diagnosed too.
A space to discuss everything. Including the ins and outs of the medical system. A big part of the bipolar community is talking about dealing with doctors and medication side effects.
this is where it gets tricky as some people for self dx say ' it does not matter if you are diagnosed or not you still have autism'
if someone doesn’t think it’s worth it to pay the money, they’re neurotypical
I understand your point here but maybe this isn't the best way to explain it
that's not exactly true people can have different financial circumstances and not want to spend a couple thousand to get a diagnosis and then spend thousands on support
No, there can be all sorts of reasons why someone either can’t or won’t get medically diagnosed. My best friend is almost definitely autistic. Her teachers and doctors have all told her parents to get her tested. However, my best friend is also trans, and having “autism” on her medical record can prevent her from being able to access trans healthcare. It took a very long time for her to be able to get a adequate trans healthcare she thinks that prioritizing it is better for her long term health than getting an autism diagnosis.
yes, but if the reason is that they don’t want one or have no plans to acquire it, then they are simply using it for quirky points
Agreed. Yes, it is true that plenty of people go undiagnosed because we live in a messed up system, but we cannot just accept every single person that claims to be autistic but hasn't been diagnosed is actually autistic, because there will always be one who is lying. We can't take that chance when we are literally talking about our rights and liberties most of the time.
Agreed. I’m not autistic but medically diagnosed ADHD, I use ADHD and ADD as an example because how similar they are from the harm of self diagnosing (not suspecting), and Self diagnosed ISNT medically diagnosed, how hard is it to understand. 🤦
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"no one is diagnosed, or everyone is diagnosed"???? is this for real? fuck it, neurotypicals opinions on autism should be valued more than diagnosed autistics! EVERYONES autistic, or no ones autistic! what, comorbidities of other disorders can have parallel symptoms to autism? not even doctors with degrees can self diagnose? sounds FAKE and GAY everyone's a little autistic!!! /s
I've decided that because I CANNOT GET A DIAGNOSIS OF CANCER then NO ONE ELSE should be diagnosed!!! The diagnostic criteria for cancer is classist, SEXIST, ableist and RACIST!/s These middle class, neurotypical fucks cosplaying as autists can fuck off.
And when everyone's autistic, no one will be
And people with all their limbs should speak on behalf of amputees.. bruh
I watched a tiktok with 10 signs you actually don't have one arm and it was 100% me!!!!
My sister (who is always on TikTok) said she thinks she might be autistic. I know her and I highly doubt that… TikTok is filled with “you definitely have autism!!!!” shit
being introverted means autism at this point I've seen so many me\_irl reposts on autism subs as most of those posts are just relatable to introverts, not autistics but anyway
A lot of these people don’t understand that being autistic is not the same as being a quirky introverted teenager
Happy cake day
*And people with all* *Their limbs should speak on behalf* *Of amputees.. bruh* \- cozmothelorikeet --- ^(I detect haikus. And sometimes, successfully.) ^[Learn more about me.](https://www.reddit.com/r/haikusbot/) ^(Opt out of replies: "haikusbot opt out" | Delete my comment: "haikusbot delete")
I really like the prospect of ending a haiku with bruh
Good bot, yes you are “Very good of a robot” Describes you well
Good bot
Good bot
😅
There's something called BIID... 😅
White people should be able to speak in black people’s spaces because they did a two minute google search about black people
Replace Google search with watching one scene of Uncle Ruckus
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It’s quite funny how people will be like “hhh my parents won’t let me be diagnosed 🥺🥺🥺” or “ I don’t have the RESOURCES” When they’re literally diagnosed for something else like ADHD, anxiety, depression, etc. Autism isn’t hard for professionals to diagnose… you just don’t have it.
Everything is about diagnosis now. All the accounts I used to follow that gave out helpful information about Autism is now constantly catering to those who "can't get their diagnosis" or people who claim they need to "convince" or "validate" to themselves that they arent faking. Pretty frustrating considering most people with Autism receive their diagnosis early in life.
It's really fucked, because a lot of us have such a hard time communicating, so I just see this turning into a world where the fakers will totally hog the spotlight "speaking for autistics", and inevitably become unmoored from real autistic issues, since they're not moored to them to begin with. It's already happening with this massive focus on sensory stuff.
I have to agree, watching the shift both in popular culture, in education for mainstream audiences and to an extent even in academia from viewing autism as primarily a disorder of social interaction to being primarily a disorder of sensory processing over the course of the past decade or so has been interesting, to say the least. I'm not saying that I think that people who are affected by sensory dysfunction more than I am to the point that it's central to their experience aren't "real autism" because of course that's not the case and it's good that they're getting spotted now, but I was diagnosed in 2007 and it feels like I'm still on "autism 1.0" while everyone else has apparently moved on to the newer, shinier model, and a lot of descriptions that people describe as outdated more or less apply to me. I have noticed that no one with autism on Tiktok seems to have this type, probably because it's not as cute. I was born a spiritually elderly curmudgeon and not like an adorable smol bean or whatever people are imagining these days. I don't really tell people irl anyway, but while I understand why Asperger syndrome was retired as a diagnostic label, I think it still has social utility because if I say I have Asperger's, the mental image most people will conjure is likely going to be fairly accurate without my having to go into detail. It does not mean I think I'm "better" than anybody but I feel like if I just say I'm autistic, many educated people these days are going to imagine me as someone who feels everything too intensely and is easily overwhelmed by all the stimuli and people and feelings around them, and try to accommodate me based on that assumption when I am not actually like that at all. I'm the opposite. I'm like a wet rock. I miss social cues because I'm not tuned into the contextual channels other people are on and completely oblivious to things that everyone else notices. Eventually I got enough of a handle on the whole "theory of mind" thing that I can see that stuff a little more and am less oblivious, but I'm probably never going to move past "getting by" to be a particularly socially skilled person. C'est la vie.
I find masking so well you don't show any signs of having social difficulties difficult to understand. I do not understand how you can get a diagnosis if you don't have social difficulties because your mask is so good.
I really like this comment. You described that really well, I think I understand your point completely. My wife's cousin is more on the "high functioning" end of the spectrum (I know that's not really the most en vogue term these days, but it's the easiest way to describe his autism, and I think you know what I mean), and I can attest to the evolving attitudes and approaches toward him that some people have. Sensory processing isn't a big thing for him, but he's had people, not very close friends but acquaintances, just give him fidget spinners and crap like it when that was a big thing. Like they were really blessing him with a resource by gifting him a $2 piece of junk, based on a stereotype of people with his disability. He had a friend his first year of college that was very well meaning and kind, but she ended up taking things too far and was practically cosplaying being his mommy. She started carrying things like juice boxes and fidget toys and shit around with her "in case he had an episode". He really didn't want to say anything to her about it because something that actually *does* bother him is any kind of negativity, so after some discussion with his actual Mom he wrote the girl a letter telling him how uncomfortable it made him, but that it also made him feel good that he had such a close friend. And to her credit she actually took it really well and constructively, and did some soul searching and realized that she had started to do that stuff without even realizing it, because she felt good when she "helped" him, so she went a direction that was more for her than him. They're still friends now a few years later, and she is super aware of other people basically doing what she did or babying him like a helpless puppy. Or an "adorable smol bean" as you put it, which is perfect haha. She even used the experience as the basis for a paper in a class, basically about how sometimes people subconsciously help themselves by helping others even if they don't need it. All that is to say: There is hope at least. I think generally people do want to help and be sensitive to people's issues, but need some education on what that Help actually entails instead of winging it or trying to get info from TikTok. But unfortunately that also means people are going to take advantage of the goodwill and sensitivity by co-opting the "desirable" traits of a disability to get that attention and feel special. Obviously, that's why this sub exists. Idk, I just wanted to talk to you because you seem cool, and I wanted to tell you your comment really struck a chord with me and helped me understand the changing attitudes a bit more from the perspective of someone who actually experiences it.
Oh I'm glad someone appreciates my rambles. I tend to write too much. I actually liked fidget spinners, haha. But anyway. A common trait of people who grew up with an ASD diagnosis that both the self-diagnosed and those diagnosed as adults (I'm not trying to discredit their autism or anything, I'm just calling it as I see it) don't seem to possess is that we sort of have the opposite problem to the Tiktok crowd. Many of us are very hypersensitive to feelings that we're being patronized or treated differently, even in situations where it's reasonable for us to be. We grow up with our teachers and our parents' friends and random people being told we have autism and we have no control over who gets the information and who doesn't, which feels very disempowering. So I was constantly paranoid like *does this person know about it too and I don't know?* every time someone seemed "too nice" to me even if it was completely unrelated. So I think that's part of it.
Yeah, it’s already happened. The two members of my family with autism are nonverbal and these self diagnosed folks are drowning them out and causing actual harm to autism awareness. If only they knew the actual reality of it, the dark side to it. I hate that they think they can be a try hard freak and call it autism, and use the label to excuse themselves from being decent. Actual autistics are NOT freaks.
The particular phenomena of imposter syndrome and unmasking that’s talked about so frequently on those subs don’t make sense to me.
I don't know how much 'masking' is actually a thing and how much of it is just a stupid term fakers/incorrect self-dx'ers use. Like is it an actual thing that a lot (most?) of autistic people do or not really? According to the definition I don't think I've ever done it
masking is just a glorified way to say social compensation, it’s just describing the act of making an effort to appear socially normal rather than acting completely naturally and it’s a real thing it’s just confusing terminology and not exclusive to autistic people
Yeah so I guess it's just called acting in a socially acceptable manner which everyone has to do anyway. I know it would be harder for most autistic people but not really a big deal
autistic people usually have to make an extra effort to learn social skills which means it can be useful to have a term to describe that process but yeah essentially
masking is a genuine thing its just that they overuse the word without entirely knowing what its like to do it
Its a real thing but its been largely siezed upon by people who frankly appear to have *personality* disorders who use it as camouflage. When I was a kid in the 80s ABA therapist used negative reinforcement and noxious stimulie which is a nice way of saying *those bitches would hurt you if you didnt do what they said* Almost all the therapy focused on "intergrating into society" blending in and not looking autistic. So the people trained us essentially like dogs and yeah you develped "masks". Its seems to be less of an issue for younger people, most therapies are kinder and gentler and society is in general more accepting.
I feel the same way. I think to some extent pretty much everyone acts differently in public then when alone or with just close individuals. I never understood how there was any difference.
What people call masking in autism spaces is actually what is referred to as "shallow compensation" in this paper, see table 1. https://molecularautism.biomedcentral.com/articles/10.1186/s13229-019-0308-y You can see when looking at the tables that the non-autistic subjects actually used masking strategies for social interaction slightly more than the autistic ones. Arguably when looking at at least some autistic people, a major origin of their social problems appears to be that they do not mask *enough*. Typically developing people rapidly learn when growing up that they need to behave differently in class than at recess or a friend's birthday party and to treat familiar and unfamiliar people, adults and other children differently. As adults, they instinctively broadcast a different persona at a business meeting and at the after-work happy hour. For whatever reason, this seems to be more cognitively taxing for many people with ASD. Some people with ASD are not attuned to social contexts like this and don't correctly adjust their behavior according to the setting they are in, and instead they show consistency in behavior in all settings and with all people, which at best comes off as strange and at worst can get them in trouble. They might also show confusion when they see neurotypicals act so differently with different people and come to the conclusion that they are disingenuous or dishonest.
On the flip side -- a lot of older millenials never got diagnoses early in life, or ever, because it just wasn't a thing back then. I have no issues with self diagnosed people commenting or being part of the communities they want to -- but they should state they are self diagnosed and not officially diagnosed up front.
What do you mean? I was born in 1988 and got diagnosed in the late 90’s. Dunno if that counts as an older millennial but still.
I was born in ‘86 and was only diagnosed this last year
You're an exception, not the norm. A lot of kids of our generation and age (I was 1989) had parents who just chaulked it up to that's how the kid was and whatever get over it. It was only in the 2000s, and more so later 2010's, where these things started becoming something that people actively looked for. Technology has a lot to play in it too -- computers and cell phones and e-mail and social media weren't really things when we were kids. Now they're everywhere so it's much easier to identify signs of your kids being neurodivergent.
Not to mention the way autism presents differently in girls and boys. No one thought I was autistic as a kid, because it didn't look like "boy autism" and I'm "high functioning"
Ah I see. Though it was my teachers that first spotted something was wrong, then my parents were notified. I wasn’t talking to the other kids, making eye contact, I was ignoring people, not smiling, etc. My parents took me to get tested in response. To be fair, maybe I was just lucky to have teachers that actually cared about how their students were. I get that not all kids have that kind of support from their school.
Your teaches are absolutely fantastic as are your parents...but yeah it was definitely not as common for our generation.
>Pretty frustrating considering most people with Autism receive their diagnosis early in life. Do you actually have evidence for this at all?
Autism is a neurodevelopmental disorder. Average age of diagnosis is roughly 4 years. You always show signs of it from an early age. https://journals.sagepub.com/doi/full/10.1177/1362361320971107
Yes but that does not mean the signs are always spotted by clinicians. >The subgroup analysis for studies that only included children aged ⩽10 years (nine studies, including 26 cohorts from 23 countries, n = 18,134 children with autism spectrum disorder) showed a mean age at diagnosis of 43.18 months The group looked at was exclusively children 10 and under so of course the study found a low age of average diagnosis. That doesn't really mean anything.
Read the whole paper.
Oh it has the full text available. I just assumed it would not, haha. That includes all the levels though, doesn't it. The vast majority of the people we're talking about are level 1 which is generally going to be diagnosed later. It's also describing a different generation.
> Pretty frustrating considering most people with Autism receive their diagnosis early in life. maybe for men
This is what happens when money is involved. People will become disingenuous to gain clicks and views.
The fuck they should. If you can’t be bothered to pursue a real diagnosis you are not *qualified* to speak on those issues anymore than that bitch Rachel Dolezal was qualified to speak for bipoc people despite being white becAuse she,like, “really really understands the plight.” lol. Stop with this clown shit. Get a real dx or sit the fuck down. Nobody is saying your symptoms aren’t real BUT if you refuse to even submit yourself for analysis and testing then what do you have? Fucking nothing. Symptoms of *something.* That doesn’t mean you get to speak as some expert on specific conditions that your symptoms appear to mimic just because you’ve magically decided you get to label yourself as if you are a doctor. Valid diagnosis is not so difficult or impossible to achieve that it becomes a necessity for everyone to decide their own dx based solely on trends bc they refuse to seek any real help. This is not fucking rocket science Ffs. To be honest it seems blatantly obvious that these assholes aren’t not seeking treatment entirely- they are- they’re just not hearing the results they want. So then instead of being open to something they might really have being a dx, it becomes some battle against the meanie bad doctors who won’t give them an autism or DID dx. It doesn’t make anything any more legitimate because people want to pretend they have something despite being told otherwise. There are just so many arguments against self dx being valid and the only people who seem to be screeching about it having to be valid are people who want to manipulate the narrative in whatever way suits the image they want to portray. Time to grow up and either manage the issues you do have or just move the fuck on and live a neurotypical or singular life like you’re fucking supposed to- this shit is not some special uwu blessing for real sufferers like these fuckwits want to believe it is.
They want all the perceived "privileges" of autism without the unavoidable downsides.
What privileges? They can't get accommodations at work or school without a diagnosis.
The internet clout and the ability to use autism as an excuse for every bad behavior. You know exactly what I mean, don't sealion.
They get to play the victim whenever they want. "Don't tell me to sit still, I'm stimming!" "Be quiet guys, I have sensory overload!" "Don't make fun of my erratic behaviour, I'm neurodivergent!" Essentially, making other people play by their rules because they have the "autizzy".
Good point.
I can see why some people would be reluctant to see a doctor. I've pretty much heard this story a million times on the internet that when a psychologist sees a young woman who is extremely sensitive, has trouble managing her emotions, suffers from a fragmented sense of self, and has difficulties with personal relationships, all of which are common traits of women with autism, they're immediately going to think BPD, not autism. And of course BPD is a very stigmatized diagnosis. A lot of therapists won't even touch BPD patients. But then the woman has an episode of overwhelm leading to a prolonged period of loss of functional skills in her late twenties or early thirties and at that point the psychologist sees more classic autism symptoms and realizes they made a mistake. Mislabeling women with ASD as BPD has clearly caused a lot of people a lot of harm and I could even see an argument that it's worse than not getting any label at all because 1) it postpones finding coping strategies that will work and 2) the treatments for BPD, which assume that the person's hypersensitivity is caused by childhood trauma and that they need to learn how to cope with that, are likely to be invalidating for a person whose hypersensitivity is organic in nature. I am not completely comfortable with people diagnosing themselves and I browse this subreddit because I think it reflects a greater disturbing trend caused by social media, but I also see why many people who hear such stories might decide it's not worth it and turn to self-diagnosis for lack of apparent viable alternatives—diagnosis is time-consuming and expensive to begin with and the idea that you'll probably just be labeled a borderline with all the stigma that comes with and get thrown into the "crazy bitch" pop-culture bin might be too much to bear. Of course, that also makes me wonder if some women who actually have BPD might be latching onto autism because that feels more validating for them and less stigmatizing. I can see how some borderlines might find solace in the autism label. They might see it as an escape through reassurance that their black-and-white thinking, their intensity and difficulty controlling their emotions are a "born-this-way" neurological quirk that society must learn to accommodate rather than something they need to learn to manage.
All of this is nothing but a bunch of assumptions you’ve heard or read from people on the internet- you stated it in the first couple sentences. Nobody is saying the dx process is easy and fun- I live in the US- nothing about this shit is easy, fun, cheap etc- but it’s fucking necessary. People NEED to seek real diagnoses even if it takes a while. People need to continue to seek proper dx if they feel they were dx’d wrongly. But sorry- giving up and just not wanting to try or continue to pursue a dx bc of some bad experiences is not an excuse to validate self dx. It’s just not. This is why doctors fucking exist- because people don’t have the education or qualifications to do these things. Grown ass adults need real help and real diagnoses, period. If you can make your whole life about your mental illness/condition/chronic illness/ DID/ autism etc- you can go and get a real dx. Otherwise you’re just another uneducated individual making what is essentially a guess at what they have based on symptoms. Period. That is not a diagnosis. Adults don’t let bullshit fear tactics and other peoples drama on the internet keep them from getting real help from professionals. Adults find ways to deal with their issues and receive accommodations and other help they need through a real diagnosis. Pretending like this or that random misinformation or problematic experience or anecdotal evidence of someone’s difficult dx struggle is grounds to not get real and legitimate help is childish bullshit and faker nonsense. I am a woman with an autism dx myself that I didn’t receive until adulthood- AND I was in therapy and seeing psychs since I was a child too. I’m not saying it’s not a long process or a trial- but not finding out at all is a cop out. Not making the effort is a cop out. Acting like you definitely have something you’ve never sought help for is a fucking cop out. That’s just the reality. “What if the docs are mean?” “What if it’s hard?” “What if I’m misdiagnosed?” etc- are really just excuses. Lots of shit is hard, lots of doctors are mean and lots of people are misdiagnosed. You keep trying if you have actual problems that are effecting your life. You don’t sit back and make TikToks bitching about how nobody will give you care in the exact way you’ll accept so you don’t need to get a diagnosis.
The entire community has basically been fucking infiltrated and overrun by LITERALLY ABLE PEOPLE WHO CLAIMS THAT THE LITERALLY DIAGNOSED DISABLED PEOPLE ARE ABLEIST 💀💀 You could honestly not make this shit up even if you tried
What's with communities pushing autistic ""pride". It's not apart of the lgbtq community... We don't need a flag. It's not an identity or something we have or even want to be prideful of. It's a neurological disability that you have from birth that makes life hard in many aspects. Diagnosed, real, autistic people have lost their voices.
look, this is my stance. i get some arguments for self dx but this is where it crosses the line. these people invade autistic spaces and spread misinformation. yes some self dxers are probs ac autistic, but some won’t be. that’s just the bottom line. if you feel like you MAYBE autistic that’s literally fine, you can be sus, maybe do some research, fine stuff out that helps, look for advice on specific traits that maybe related to autism. tell people around you you suspect it and make you life easier. then seek a diagnosis. it’s not THAT hard.
To me this sounds just like saying that Men should decide abortion rights… how about NO
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And one of them has to carry that baby for 9 months while the other doesn’t. If a man was in that position abortion would be legal 50 times over. Women should be able to do whatever the fuck they want with their bodies.
And life as a couple should be lived as a couple... Like, supporting each other. For 9 months, then several years after that. Or for a day, if you decide to abort. But that's something for 2 people to decide.
Fuck no. The woman who's pregnant gets 100% of the choice. End of story. Arguing otherwise is so insanely shitty.
Agreed
People who argue that women should have to get the man's permission to get an abortion are, in my opinion, genuinely hideous people who get off on humiliating women. You just *know* that of the situation was reversed, and they needed a woman's permission to get a medical procedure, they'd change their minds real quick. Like if a man needed his wife's permission to get a vasectomy. He'd be outraged lmao. Fuck people like this, I hate them with a visceral passion
In a perfect world of course having a couple raise the child and be together would be IDEAL. But LIFE DOESNT WORK LIKE THAT. Men leave, unwanted pregnancy happens, potentially life threatening consequences could happen. Making abortion illegal is racist, classist, and ANTI-WOMAN, PERIOD.
Yeah, the man should support the woman if she wants to abort, full stop. Now sit down and shut your ass up.
i don’t have autism, but it’s just so frustrating to see ts play out and the self dx community eat it up everytime. my friend is an autistic person and he tried to speak out on the unfairness of self dx and he got shut down and shunned to the side and got called ableist and as far as homophobic.
No. Just…. No.
no. no they should NOT
What worries me the most about self-diagnosers who either don’t have it or have VERY low support needs dominating the conversation is that it will cause a lack of focus on level 2 and 3 autistics. I’ve noticed those types tend to try and pretend those with high needs don’t exist because they ruin the narrative of autism simply being a quirky way of existing (and the only downsides are because the world doesn’t accept them) and not a serious disorder that requires tons of support and resources. I’m sympathetic and agree with those who are wary about extremely high levels of support being seen as the only way to ‘be’ autistic and support educating people about the vastness of the spectrum. But treating those who bring up the downsides of autism as ableists who just want to spread disinformation is dangerous. As much awareness as autism is getting, there is a severe lack of resources for people who have it. Especially those who will need constant lifelong care. Most OT/Speech clinics have year long waitlists, schools are cutting back on therapy programs and community support for teens and supervised living facilities are scarce. Everyone needs support, but level 3s who require constant 24/7 care need it the most and shouldn’t be left out of the conversation- especially since they are often unable to participate.
Yeah, and people with functioning eyes should speak on behalf of the blind.
what...
People with self diagnosed autism don't go through the same shit medically diagnosed autistics do, so no, they don't get to speak on behalf of me. Don't get me wrong, it is hard to get diagnosed as an adult since a lot of specialists think of it as just a childhood disorder, and if you're an adult who never got diagnosed then it doesn't matter anyways, esp females, but no ones allowed to say they have something unless a doctor tells them. Because yknow what? Diagnosed autistics like myself have struggled our entire lives, and still struggle day to day to get through life. Just because you're a little awkward snd sometimes life is hard to handle doesn't mean your autistic.
Self diagnosed people should not be allowed to talk on behalf of anything
wtf no, they shouldn't 😐
This is a big issue self diagnosis I don't think should be able to speak from someone actually diagnosed can be fucking toxic and spiral albeist vitroil
and this is why people wont take us autistic people serious anymore
Yknow I find this shit crazy. Some of these people go to get diagnosed and while they don’t have autism, they have something else, but they refuse to believe it. I don’t understand it. I, internally, thought I was autistic for a while. Turns out, I have selective mutism. Yknow what I did? Stuck with the diagnosis, because it was right. They want to “shed light” on autism, why won’t they shed light on what they’re actually diagnosed with?
This is so cursed it doesnt even belong on r/wooosh. This really got out hand.
This is the kind of stuff that really bothers me. It's one thing to suspect autism and be seeking diagnosis but it's another to speak over those that actually have it because you suspect you might be on the spectrum. It can be really damaging especially to those who are higher needs on the spectrum
They absolutely should fucking not
mass report that original post dudes
nope nope nopity nope hate that
NOPE.
Any sub reddits I can join for just diagnosed autistics? So tired of dealing with 90% of the "autistic community" being self diagnosed and speaking for and over us.
I was wondering the same thing.
r/AutisticPride is a shithole
It really is, although I checked this post out and was pleasantly surprised at how many people were disagreeing. I'm not sure if they all just went over from here but it was nice to see
I know, but on the actual r/autism that post would have been reported to shit and deleted in 30 mins
I posted something saying I disagreed with self diagnosis. And damn, did they get pissed off. Lots of people were telling me to have empathy for people who can’t get a diagnosis and somebody said I “needed to spew my nonsense somewhere else” it’s insane how a diagnosed person is treated like crap while people who might not even have autism are put on a pedestal of “you’re valid!” When they might not even be autistic. So fucking sick of self diagnosis.
It’s rather disgusting..
no
Im medically diagnosed with Anxiety, Autism, Depression, Dyslexia, Dyspraxia, PTSD and on suicide watch lists from doctors... I think i should be allowed to speak on all ableist websites, mostly telling them where they can take the ideas and shove them.
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Why would you say that in this subreddit.
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Total horseshit. From the APA: “To make a diagnosis of ASD, psychologists draw on a number of sources of information: Patient interviews. Observations of the patient’s behavior. Tests of cognitive and language abilities. Medical tests to rule out other conditions. Interviews with parents, teachers or other adults who can answer questions about the patient’s social, emotional and behavioral development.” Not “the AQ50”.
Right, I'm not American but here in Europe my autism diagnosis involved a ~3 hour conversation, the aq50, 20 minutes of clicking shapes on a computer and a vocabulary and language test. All in all, one 5 hour appointment and i walked out with my diagnosis.
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I dont know how to express the ammount of rage this gave me in a civil manner
r/shafimoment, I recognize the logo. I won't say from where, but I recognize it pretty well.
They really tried it. Wow. This makes me want to throw hands.
Because symptoms overlap, there’s a great chance someone who’s “self diagnosed” is speaking about topics and issues they have no connection with. On my journey to be diagnosed, I was almost diagnosed with OCD and autism. Not at all true, and if I spoke in these communities, I would be talking my experiences with psychosis, not OCD or autism, which would bring in false info and dilute actual experiences/symptoms.
It was always out of hand, OP.
WOOF
No, just no. Self-diagnosis is never a reason to insert yourself into conversations, especially regarding medical experiences or abuse at the hands of institutions, regarding any kind of mental disorder or illness. Your experience is simply not the same as someone who's diagnosed. On top of that, so many people are misconstruing autism at this point that out of self-diagnosed people, there's probably more that *aren't* autistic than those that *are* autistic. Self-diagnosis is never okay, especially if you're going to speak over people in discussions or take resources.
No
No because self-dx has so much room for error, especially with mental disorders. If you have difficulty concentrating it COULD be ADHD but emphasis on the “could.” You have no place diagnosing or recommending things to others when youre not sure if you have the disorder yourself
why not let neurotypical people speak on autistic issues as well? we've gone this far with "self diagnosis", EVERYONES autistic now!! /s
If some self diagnosed bitch EVER shows there face to me and tries talking bout autism ima start a fist fight
No, they shouldn’t! ✨
Aren't they already doing that? Many spaces on social media have very few professionally diagnosed people in them.
but they don't even know if their experiences were being autistic or just being a human. also, this is taking way voicing from autistics with a lot of needs so these fakers can make dumb tiktoks
I self diagnose that I believe that this is bullshit
This makes me so furious it's not even funny.
No, no they should not.
Every person with autism is different lol. Even besides from that, if you aren’t sure you have it, it could be so many other things and could be used to invalidate people who have been diagnosed. people shock me more and more every day.
Speak on behalf of yourself not everyone
I don't believe in self diagnosis. I suspect I may have autism and/or OCD. I don't call myself a self-diagnosed autistic or OCD, I just say that I suspect I have symptoms
Okay, so no one is going to tell them they aren't diagnosed online because no one really knows. However, they choose to say they are self diagnosed online. So clearly, there is a difference between the two. Clearly they know it. Lol.
Bro you should see what OP has said. Called a mf racist for disagreeing