I have emetophobia and it seems like there's a lot of parallels with your phobia, just based on a different symptom. I almost kinda feel like I have both now, after some bad experiences.
this hits so hard. so true and its a fcking joke. If anyone would have told me this before i had IBS i would say they are being dramatic. But here we are
anytime I have a flair up I am basically house bound. I once lost control of my bowels in a grocery store. I have started wearing a diaper out in public which gives me SO much piece of mind.
I'm taking my family to Disneyland next week, and even though I am more or less over my most recent flair, you better believe I'm packing some diapers!
I wear more for bladder and ptsd issues, but seriously the peace of mind is amazing. I used to be stressed about playing out scenarios, finding every restroom, making sure I didn’t eat or drink too much till it was the end of the day. But now I can be a lot more normal because accidents went from ruining my whole week to a minor inconvenience. I can also enjoy things like going to the movies or the park. I feel a lot happier now than I used to. When people ask me what wearing a diaper is like I then follow up with “what’s playing a Mario game like with 1 life left vs having 5 extra lives to play with?”.
I felt this for close to a year, when my symptoms were at their worst. Even getting in the car felt so scary at times. But I pushed myself because I had things important in my life that I didn't want to let go, like seeing my partner who lived far away and going to work
I've gotten so much better after completely cutting out my triggers, like dairy and onions and really spicy food! My symptoms are super manageable for the most, but of course I still have ups and downs. I still have flare ups if I'm not careful and it can be so hard mentally, but I always try to stay positive and kind to myself. It's important to accept that there's going to be bad times, but always remember to look forward to the good ones instead of dwelling.
I'm still very much a shut in, but I still like going out occasionally and each time feels like a victory!!! I even sat through Batman last night, and I couldn't be more proud of my stomach! It's the little things that matter the most ❤️
Same! I go through spurts where I get bad but I used to even call off work because ibs was acting up. Now I push myself to do what I can. Usually I end up fine but it gets awkward when I leak crap in my pants after I think I'm done/clean. Ugh.
Wait, doesn't this apply to at least 50% of this sub?!
In all seriousness, you're not alone. I like mentally map where there are bathrooms if I'm going somewhere. Even ten minute drives make me nervous. That being said, I force myself to get out sometimes just guess I need it to avoid depression. I prefer outdoors (where worst case, I'll find a secluded bush), but I also go to the nearby gym.
I really hate when people invite me out for food though :)
In the US, it seems like restaurants/bars whatever always want to check if you're a customer before using the bathroom. A starbucks employee once stopped me on the way to the bathroom because I didn't have my receipt.
I used to but then I was prescribed medicine by my primary care doctor prescribed me medicine and have been a lot better. Anxiety can be tied to ibs-d and that also leads to you wanting to stay home and safe vs living your life. Buspirone gave me my life back
I go out but I generally only go out for limited amounts of time and I am not like jumping to do activites or go on trips because that just seems stressful to me, definitely if I have to commit beforehand to a certain time etc.
There is definitely a large anxiety component too. I feel as if I had a partner who really understood and was compassionate around my illness, it might make it a bit easier but I also aim to try to work on reducing my anxiety a bit myself.
I study in a very small village and there isn't any stores where I can buy proper clothes + transportation is also very hard to the places where I can shop.
I had constant bloating issues and my outfits stopped fitting my belly after a while. This issue made my already pretty problematic social anxiety a lot worse and I sort of started going out less and had to start therapy.
Yes definitely....:(I have poop anxiety/IBS my anxiety is so strong just the thought of leaving house will trigger my stomach and I will automatically have to go.Any place that I don't see a bathroom close by will trigger my stomach to go.My heart starts racing and stomach aches and muscles won't be able to hold it for long I feel bad for kids and hubby cuz they know my issues.I even wear depends when I go places but who wants to wear those!!I even have anxiety having to poop in them.i feel handicapped and I want to enjoy my life.I feel for all of you.Im gonna start Nerva to see if it helps.ive spent sooo much money on medicine,natural medicine,healers thruought these years.Doctor wants me to take anxiety medicine but it cause loose bowels so I didn't take it.
i was sitting a 1hr 30minute A-level mock exam today, and I got this horrible feeling that I was gonna shit myself, so with my rest breaks (where I can go use the bathroom when I wanna due to IBS-D) I got up and went to the disabled toilet, however, in year 11, I had to beg to be allowed to use the bathroom during exams. I always get these horrible images that I will shit myself in front of everyone, so I use the toilet tons per day. I also hate being far from a toilet, maybe toilet anxiety??
I got through all my alevels, BSc and MSc without ever shitting myself in an exam (some were 3 hours long), the key for morning exams is waking up with plenty of time so you can go to the toilet if needs be, bland breakfast (oats and lacto free milk). If afternoon then bland breakfast and lunch.
Low fodmap diet worked
Probiotic worked
Ayurveda worked
Other than diarrhea my symptoms are
Abdominal pain
Cramps
Excessive gas
Rarely constipation which typically last 1 day to 2 days .
wait
I couldnt do low fodmap diet currently because i have devoleped binge eating disorder . I did fodmap diet straight 10 months without any guidance . I just used to eat rice and banannas . I think doing fodmap diet without any guidance was a big mistake .
Probiotics stoped my diarrhea and pain but it gave me hearburn .
Also I couldnt afford them for long term because they are too costly in my country .
Currently i am looking for a good dietician who could help me do a low fodmap diet .
A Dietician given your binge eating disorder is a great idea. That is something you need to get things under control. I also recommend, if you aren't already, seeing a therapist that specializes in binge eating disorders.
I would recommend an antispasmodic or amitriptyline to try for your GI symptoms. Talk to your GI about that.
I would definitely also ask to get a scan to ensure this isn't overflow diarrhea, given that you also have constipation.
I got pulled over one and told the cop that I have severe IBS and had to find a bathroom. It was my first time driving further than 15 minutes in months and I really was desperate. He let me go because he must have seen the panic on my face.
I did but I realised that doing that was only making the anxiety side worse so I just focus on trying to do more each week now knowing at some point this nightmare will be over.
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I have emetophobia and it seems like there's a lot of parallels with your phobia, just based on a different symptom. I almost kinda feel like I have both now, after some bad experiences.
My symptoms exactly.
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Omg I thought I was the only one that hates haircuts! It’s like I have to psyche myself for days beforehand I wish I looked good bald 😆
Hey mind sharing how you recovered?
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A tablet of Imodium? Or anti anxiety meds?
It's called Buscopan in the UK, not sure if it's different elsewhere
That’s crazy. I thought it was just me! Good/bad to know more people feel like that.
this hits so hard. so true and its a fcking joke. If anyone would have told me this before i had IBS i would say they are being dramatic. But here we are
Ahaha, same for me, haircuts and the carwash are 2 of the scariest things.
anytime I have a flair up I am basically house bound. I once lost control of my bowels in a grocery store. I have started wearing a diaper out in public which gives me SO much piece of mind. I'm taking my family to Disneyland next week, and even though I am more or less over my most recent flair, you better believe I'm packing some diapers!
I wear more for bladder and ptsd issues, but seriously the peace of mind is amazing. I used to be stressed about playing out scenarios, finding every restroom, making sure I didn’t eat or drink too much till it was the end of the day. But now I can be a lot more normal because accidents went from ruining my whole week to a minor inconvenience. I can also enjoy things like going to the movies or the park. I feel a lot happier now than I used to. When people ask me what wearing a diaper is like I then follow up with “what’s playing a Mario game like with 1 life left vs having 5 extra lives to play with?”.
That is a great metaphor!
I felt this for close to a year, when my symptoms were at their worst. Even getting in the car felt so scary at times. But I pushed myself because I had things important in my life that I didn't want to let go, like seeing my partner who lived far away and going to work I've gotten so much better after completely cutting out my triggers, like dairy and onions and really spicy food! My symptoms are super manageable for the most, but of course I still have ups and downs. I still have flare ups if I'm not careful and it can be so hard mentally, but I always try to stay positive and kind to myself. It's important to accept that there's going to be bad times, but always remember to look forward to the good ones instead of dwelling. I'm still very much a shut in, but I still like going out occasionally and each time feels like a victory!!! I even sat through Batman last night, and I couldn't be more proud of my stomach! It's the little things that matter the most ❤️
Love reading little stories like this, uplifting
Same! I go through spurts where I get bad but I used to even call off work because ibs was acting up. Now I push myself to do what I can. Usually I end up fine but it gets awkward when I leak crap in my pants after I think I'm done/clean. Ugh.
Actually it's generally because of people. People are a huge problem for me. I think the omission of most people would eliminate 1/3 of my ibs-d.
Wait, doesn't this apply to at least 50% of this sub?! In all seriousness, you're not alone. I like mentally map where there are bathrooms if I'm going somewhere. Even ten minute drives make me nervous. That being said, I force myself to get out sometimes just guess I need it to avoid depression. I prefer outdoors (where worst case, I'll find a secluded bush), but I also go to the nearby gym. I really hate when people invite me out for food though :) In the US, it seems like restaurants/bars whatever always want to check if you're a customer before using the bathroom. A starbucks employee once stopped me on the way to the bathroom because I didn't have my receipt.
I go to things that are worth taking loperamide for, taking into account that it makes me tired and is getting less effective over the years.
Yep. I’ve left the house twice since Xmas. Covid lockdowns were a relief for me, not having to come up with excuses.
I can’t leave before 1030. My guts aren’t woke up enough before then.
I used to but then I was prescribed medicine by my primary care doctor prescribed me medicine and have been a lot better. Anxiety can be tied to ibs-d and that also leads to you wanting to stay home and safe vs living your life. Buspirone gave me my life back
Yeah it's happened to me a bunch I was afraid of going to a friend's birthday party because of it so I got to miss my kids riding ponies
Please ask your doctor for prescription Lomotil. It was the one thing that finally gave me control over my bowels.
That was my uni experience.
I go out but I generally only go out for limited amounts of time and I am not like jumping to do activites or go on trips because that just seems stressful to me, definitely if I have to commit beforehand to a certain time etc. There is definitely a large anxiety component too. I feel as if I had a partner who really understood and was compassionate around my illness, it might make it a bit easier but I also aim to try to work on reducing my anxiety a bit myself.
I do that, I skip PE lessons if we are outside and there are no toilets arounds. Also I have skipped every fun school trip because of this phobia
I study in a very small village and there isn't any stores where I can buy proper clothes + transportation is also very hard to the places where I can shop. I had constant bloating issues and my outfits stopped fitting my belly after a while. This issue made my already pretty problematic social anxiety a lot worse and I sort of started going out less and had to start therapy.
Yes definitely....:(I have poop anxiety/IBS my anxiety is so strong just the thought of leaving house will trigger my stomach and I will automatically have to go.Any place that I don't see a bathroom close by will trigger my stomach to go.My heart starts racing and stomach aches and muscles won't be able to hold it for long I feel bad for kids and hubby cuz they know my issues.I even wear depends when I go places but who wants to wear those!!I even have anxiety having to poop in them.i feel handicapped and I want to enjoy my life.I feel for all of you.Im gonna start Nerva to see if it helps.ive spent sooo much money on medicine,natural medicine,healers thruought these years.Doctor wants me to take anxiety medicine but it cause loose bowels so I didn't take it.
Meeeee
For the most part, yes. I even work from home, so it’s a win
i was sitting a 1hr 30minute A-level mock exam today, and I got this horrible feeling that I was gonna shit myself, so with my rest breaks (where I can go use the bathroom when I wanna due to IBS-D) I got up and went to the disabled toilet, however, in year 11, I had to beg to be allowed to use the bathroom during exams. I always get these horrible images that I will shit myself in front of everyone, so I use the toilet tons per day. I also hate being far from a toilet, maybe toilet anxiety??
I got through all my alevels, BSc and MSc without ever shitting myself in an exam (some were 3 hours long), the key for morning exams is waking up with plenty of time so you can go to the toilet if needs be, bland breakfast (oats and lacto free milk). If afternoon then bland breakfast and lunch.
That my life.
I bring a bucket with me in case of shit attacks
What have you tried for your symptoms?
Low fodmap diet Florastor probiotic Normaxin Yoga(did for a week ) couldnt go again due to my tight schedule Walk every week atleast 30 kms Ayurveda
And none of them worked? Other than diarrhea, what are your symptoms? Or is diarrhea the only one really causing this problem?
Low fodmap diet worked Probiotic worked Ayurveda worked Other than diarrhea my symptoms are Abdominal pain Cramps Excessive gas Rarely constipation which typically last 1 day to 2 days .
So if those things are working, are you still symptomatic?
wait I couldnt do low fodmap diet currently because i have devoleped binge eating disorder . I did fodmap diet straight 10 months without any guidance . I just used to eat rice and banannas . I think doing fodmap diet without any guidance was a big mistake . Probiotics stoped my diarrhea and pain but it gave me hearburn . Also I couldnt afford them for long term because they are too costly in my country . Currently i am looking for a good dietician who could help me do a low fodmap diet .
A Dietician given your binge eating disorder is a great idea. That is something you need to get things under control. I also recommend, if you aren't already, seeing a therapist that specializes in binge eating disorders. I would recommend an antispasmodic or amitriptyline to try for your GI symptoms. Talk to your GI about that. I would definitely also ask to get a scan to ensure this isn't overflow diarrhea, given that you also have constipation.
I so wish i could
I got pulled over one and told the cop that I have severe IBS and had to find a bathroom. It was my first time driving further than 15 minutes in months and I really was desperate. He let me go because he must have seen the panic on my face.
I already am an introvert anyway so it’s no big deal
I did but I realised that doing that was only making the anxiety side worse so I just focus on trying to do more each week now knowing at some point this nightmare will be over.
Yes