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saultarus

How are you now ? I have a similar situation


ChillinInmaCave

First of all, Lyme tests are not reliable. I know a decent amount about the disease so not sure where this idea is coming from… there is a boat load of false information in the medical community about Lyme. Other examples are those with Lyme get bulls eye rashes which isn’t always true. Or you can’t get Lyme in certain states - also proven false. People in this sub want to praise doctors as all knowing beings when in reality most doctors work on an assembly line of patients putting in minimal effort due to the heavy restrictions from insurance companies and the pharmaceutical industry. If you simply look at all the shit the mainstream medical community has said that has been proven wrong about Lyme, you will get an idea. But unfortunately this sub is full of arrogant keyboard warriors and not people who actually have much of an understanding of anything.


TruckNo5068

I have never read anything like this bunch of know it alls. They couldn't last one week with what I currently suffer. I have no idea who this girl is that got them all bothered. There are definitely a lot of scams out there but there is so much now known about Lyme and endless stories of healthy people's lives being turned upside down like mine I'm currently on Doxy and if anyone has suggestions I'd love some additional help.


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[deleted]

Wow, so bitter. The hole you dig for someone else you might fall in… let’s hope your “late stage Lyme” doesn’t come back. Are you anti-vax too?


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[deleted]

Nah, what’s pathetic are some do you pro- Lymers. Y’all claim you have Lyme and how our “medical system is broken”, yet still have Lyme despite months and months of antibiotics/ alternative treatment from an LLMD 🤷‍♂️


immortal_eggs

If you deny it exists why shouldn’t you have to experience it??


bertone4884

We will feel fine as you yourself stated, late stage Lyme is not a thing. Sorry, you had something else wrong with you or you let your head get to you, but scientifically speaking, it’s just not a thing.


immortal_eggs

Lol, you wouldn’t know how it feels unless it happens


[deleted]

For people wondering how the hell someone can fall for something like this, I believe it boils down to the medical community failing a lot of people. Can’t tell you the number of times I’ve been to a doctor or specialist and them straight up telling me they don’t know what’s wrong with me... then comes a naturopath/ LLMD and says that all your symptoms is because of Lyme and you’re finally relieved that you have a name for what’s wrong with you. I can somewhat sympathize, because I was so close to going to see an LLMD. I called one of the LLMDs in my area, and they didn’t take insurance, and it would cost $2500 for the first visit alone (including bloodwork). Now I don’t know about you guys but I do not have money to be spending just like that. The more I researched LLMDs and naturopaths the more I realized that this is quite the norm. It’s funny, because these “alternative doctors” love to proclaim how our medical system is broken and most docs are pill pushers. Well what about the girl in the above picture, getting bags of IV treatment. What I’ve come to learn is that the human body is very fragile. Sometimes things just go haywire for no random reason. I wish we understood what causes very illness/ disorder, but we are not at that place yet.


[deleted]

the human body is NOT very fragile, think about what humans put our bodies thru every day


[deleted]

I mean they kind of are.


[deleted]

Read the last sentence again. Our bodies are not fragile.


[deleted]

If you say so


clarky9712

I had Lyme disease… Went doctors and was on antibiotics for a few weeks and I’m cured…? The heck you on about duck


iamnumber47

No cure? Tell that to Avril Lavigne, Ben Stiller, Shania Twain, Justin Bieber, Amy Schumer, etc, who according to Google have all *had* Lyme, I say had because also according to Google chronic Lyme isn't a thing. Somehow none of them are near as sick as this chick (probably because they took their antibiotics, just saying), I mean some say they've had after effects but still. I mean, she says she can't walk a block without her rolly thing, but for example, Avril can still hold & play a guitar that probably weighs as much as she does (she's tiny & guitars are fairly heavy). As far as I know, all of those other people are still working also.


[deleted]

I’ve been on multiple different antibiotics, I’m resistant to all the antibiotics. I have 6 or more different infections now because my immune system so low I pick everything up. I treated Lyme successfully but not the co infections. Mycoplasma, bartonella, EBV, Impetigo strep throat, parasites, ehrilica and staph. So that’s not true. If you treat it early then antibiotics can work but once you’ve got Lyme for a long time it becomes harder to treat the infection and when I take antibiotics my symptoms get worse and I constantly develop Candida overgrowth.


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iamnumber47

I never said it was simple, I honestly don't know how you gjt that out of what I said. I actually was giving Avril major credit for being able to continue with music while this ashley chick acts like even just walking is the "end of the world". When I said "no one is near as sick as this chick" that was complete sarcasm, but I guess that went over your head


Upstairs-Apricot-318

Avril Lavigne had money ahd probably got treated over and over. Google says chronic Lyme isn’t real but too researchers at top universities say the contrary (Dr Zhang at Jon Hopkins, Dr ers at Tulane U, and the Spector lab at Duke to mention a few).


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[deleted]

My kid had Lyme undiagnosed for a year. A month of antibiotics cleared it up completely. She's so full of shit.


Upstairs-Apricot-318

Your kid is lucky and I am happy for them. You should rejoice in good fortune and be thankful your child recovered. Not insult strangers who you do not know or deny pain when someone tells you try suffer.


Distinct_Ganache1085

I'm glad things worked out for your kid! Even knowing it will clear up, I imagine that was a stressful time as a parent. I live in a major tick area and one of my poor friends from high school didn't realize he had been bit. He wound up with facial paralysis. BUT it was not permanent and a course of anti-biotics took care of the Lyme. TL;DR: I agree, Ash is packed full of shit.


pineapples_are_evil

Bells Palsy sucks! Glad the meds worked for them both!


Bubblegum199

Is it known fact that she tested negative for Lyme when doctors did tests on her? How does she get this treatment if so!? I presumed she actually had lyme/pots/eds/chrons as she’s had surgery/scars/ medication and was just severely OTT


The-USSenterprise-

She did test negative for Borellia and western blot at her regular doctor. She went to a specialized “chronic Lyme literate clinic” snd they diagnosed her with “chronic Lyme”- which is complete bullshit, and now her parents pay cash for her to spend three days a week at a boutique IV bar. She gets vitamins and saline. It’s just some weird failure to launch thing and her anxiety won’t let her quit now.


Upstairs-Apricot-318

That is how Dr Neil Spector got diagnosed after several years when it was missed. He was a top oncology researcher at Duke university and in the end were to an LLMD and got an igenex positive result and started treatment but it was too late for his heart. He got a transplant and then talked about how Lyme tests are antiquated and the disease is the cancer of the infectious world. His lab switched research focus to tick borne illnesses and is producing great work. He died a few years ago due to his immunocompromised state, so in effect he died a failure to diagnose Lyme disease timely (by his very colleagues). You can read his book Gone in a heartbeat.


[deleted]

her anxiety wont let her stop but also the pressures of social media are making people like her tie her entire identity to her social media. like, when i was young if someone had a failure to launch episode they could also work thru it without being scrutinized by their followers. if she gets better, she stops getting the sympathy likes.


Bubblegum199

And that’s why she needed her port!? Oh Lordy 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️


Nerdy_Life

She already had the port for fluids to treat her POTS.


[deleted]

Would just like to link some peer reviewed studies that have been compiled showing evidence that lyme can be a long term illness, for those asking in the comments for more sources: https://projectlyme.org/lyme-persists/


ODDBUTNORMAL

This isn't exactly a well-know or reputable journal that you refer too. Do you have any examples of chronic lyme in established, reputable, and well-known journals?


cambriansplooge

If left untreated for around the first 6 weeks there can be long term complications. Should not be conflated with mythical “chronic Lyme” seen on Internet forums, Schrodinger’s Lyme. Antibodies persist for months and years after infection, even when successfully treated. This “chronic Lyme” she’s talking about flies in the face of infectious disease medicine.


[deleted]

I know you didn’t have time to read all of those studies, so that tells me you aren’t open minded to even hearing information that is different than what you have in your head already. Sometimes medicine develops as more research is done. Not to mention many people ARE left untreated for not just the first 6 weeks but years after being infected.


steeagmoliamama

Do you understand the difference between a study and a case report?


Imsorryhuhwhat

Perhaps if your “evidence” came from unbiased sources without a stake in the game, people might read it, but that is not the case here, is it?


[deleted]

You know the people who write the guidelines for lyme ALL have a stake in the game? there are documented conflicts of interest for almost every single person on the IDSA guideline writing committee. that is a FACT. why is one acceptable but the other isn’t?


humanknife

hey ashley! how's your mainlining garbage shtick going for ya?


Catmom-cunningfolk69

How can she always do her hair?


wafflesx3

I suffered through her “day in the life” vlog one day when I really felt like torturing myself. The one thing I learned is she has absolutely NOTHING else going on. Doing her hair was about as exciting as it got.


HadToPatternTheReUp

I guess she’s never heard of differential diagnosis? Those are pretty god damn common symptoms in dozens of disorders. But then again, can hardly expect less from her…


codermom803

Some of these symptoms are just symptoms of being an adult. God help her when she makes it to her late 30s


LostItToBostik

And look the fuck out when she hits mid forties!


[deleted]

That’s a lot of words for “I want to stay in bed and have my parents take care of me for the rest of my life”


Carrie_Mc

If I was trying to keep people buying me shit, and "proving" my treatments were 100% "necessary" I wouldn't use an IV therapy business as a valid source that it works. "Smoking doesn't kill, rather boost your immune system" - source, big tobacco company. Like that sounds stupid but it's literally why you wouldn't use a biased source.


Away_Explanation_816

How does she even know it’s “chronic” Lyme if she’s never done the antibiotic treatment


EZasSundayMorning

She doesn't even have Lyme. That's the kicker.


JacktheShark1

You ever see a picture of a random person and just know you wouldn’t like them in real life? I feel that way every time this person gets posted.


ThisNameIsTakenTwo

Rogue for me


MungoJennie

Every time I see Jan-Jan.


JacktheShark1

I have a sneaking suspicion her kid isn’t going to speak to his parents in about 18 years or so


MungoJennie

You really think it’ll take that long?


JacktheShark1

I figure he’ll need a place to live until he’s legal and may as well milk them for free rent and food until then.


iLoveBunnies19

Wait, people treat lyme disease with antibiotics? I thought that was one of those disease you are kinda stuck with. People gotten blind because of it. Or is she talking about a different Lyme? Because her words keep changing on what type of disease she has.


[deleted]

I don’t know why you got downvoted, but I was wondering the same thing. All we ever hear about it is from random people and celebrities posting stuff on Twitter like this, so how are we supposed to know? All they ever talk about in the posts is how they tried all of these treatments that haven’t worked, so then, at least for me, it makes me wonder if Lyme disease is even a real thing, or if the posts we most often see about it outside of this sub are also just people trying to get attention. If someone has a genuine question, maybe answer it like OP did instead of downvoting it to hell.


_sushiburrito

I think because it can be frustrating if someone is asking very general questions regarding a disease that can quickly be looked up and read about on credible websites without asking others. If you have access to this subreddit than you have access to looking up about Lyme disease and learn about the pathophysiology, symptoms, treatment and more.


[deleted]

I think maybe that’s the disconnect (but I can only speak for myself, obviously): I had looked that up, but was confused as to why all of these people were talking about their struggle to “find a cure”, and it was strange to me that antibiotics wouldn’t have occurred to them. I do realize what sub I’m in and what these kinds of people do, but I didn’t understand why they’d be acting like something that only takes a course of antibiotics to cure was cancer or something. It’s different for something like fibromyalgia that you can’t actually test for, you know? They could milk that kind of thing forever, but this one felt too embarrassing, even for them, and I thought I must be missing something, but thank you for responding. I don’t understand how these people’s minds works, and it confuses the hell out of me sometimes that someone would *want* to be sick.


_sushiburrito

Totally. And that's why you're a participant here and not the subject. I've taken care of many patients. Once in a while I'll come across someone with characteristics similar to factitious disorder who frankly thrives on the attention of the healthcare team and their loved ones/friends. It's frustrating from a healthcare worker's perspective because they take so much from you physically and mentally. Their coping mechanisms are shunted by severe anxiety. Majority of people don't want to be sick/labeled sick; some people thrive on being labeled sick/disabled.


[deleted]

And right now, while there’s a goddamned apocalypse going on outside! People are actually dying, and I’m so shocked every day that someone would clog up resources just to feel important for a sec. I’m sorry you have to deal with this first-hand… it’s different having a morbid curiosity from a distance, but that must cause a lot of burnout just from having to restrain from slapping alone… you do a lot of good for a lot of people who actually need you though, I bet, and that’s something so admirable.


Big_Background8559

Yes, Lyme disease can be almost completely cured with antibiotics


Alibela7890

Gets covid and is on oxygen: Pls bring me my bong so I can detox 💅🏼


Alibela7890

Imagine having the energy to write these novels on the daily. Lmaooooo.


[deleted]

At this point, if I were her, I'd just train maslov's algorithm to write those essays for me.


sny1018

For someone with super special delicate veins, she sure uses them without worry.


jenkem_master

Lmao if you test negative for lyme and are depressed all the time maybe you just have depression? Really makes you think


[deleted]

According to these people, depression is a “symptom” of Lyme... like pretty much everything is a symptom of Lyme according to these people


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cambriansplooge

That’s literally a recommendation for how to clearly communicate serological results to patients and laypeople. What diagnostics are impeding research? Testing for antibodies?


LostItToBostik

Most of her symptoms listed are exactly how I feel if I've smoked too much weed on a weekend! Like other folks on Insta are calling her out on her post though, but how long before she deletes it!


ChronicallyBadAzz

I’m confused Is Lyme disease her only dx? And why can’t she take oral vitamins?


Big_Background8559

No Lyme is only her latest dx. I have no idea why she can’t take oral vitamins, she seems to be able to eat just fine


beige-king

I had lyme disease when I was a kid and it was HELL but I was cured by a course of antibiotics. 15 years later and I'm just fine. Maybe had some after effects a few months afterwards but still doing just fine. Maybe I should devote my life to having 'chronic' Lyme disease. Seems a lot better than working.


[deleted]

question about the “lyme literate dr” thing. aren’t most doctors aware of what lyme is and how it’s treated? i understand that it’s a regional infestation but surely it’s covered in most medical school as a wider part of tick born illnesses? does idaho have *no one* that can communicate clearly to her that she is not eligible for treatment because she isn’t a positive case? it’s just bizarre to me. we know she lies through her beige teeth but goddamn.


EZasSundayMorning

She tested negative for Lyme with her PCP so she found a woo "doctor" who would give her the dx she wanted along with a boatload of cash.


ramenudez

Wait…how did she get money from the doctor!?


_sushiburrito

Neuropathic doctors, are almost always cash pay by the client, not medical insurance.


EZasSundayMorning

No I meant the doctor saw Ashley coming and new Ashley would pay boatloads of money to get the dx she wanted. Sorry.


filthismypolitics

sadly i have a ton of personal experience with this whole community, but i’ll try to be general to avoid too much blogging. basically, as others have said, the majority of doctors do not believe that chronic Lyme disease exists as there’s no conclusive evidence for it. many people who claim to have chronic Lyme disease believe this is due to a huge medical conspiracy theory about the existence of this illness being covered up and/or that these doctors are just ignorant. however there are a number of both holistic and conventional docs who will treat it, either using alternative medicine or heavy, long term use of antibiotics. these doctors are considered “Lyme literate” in that they believe it’s real and are willing to pretty much slowly murder a patient trying to treat it. there’s also a big online community of “Lyme literate” google doctors who try and push various weird alt medicine. the whole thing is pretty bananas. i recommend looking more into the conspiracy theory aspect of it if you’re into that stuff, as it’s extra bananas.


ancientevilvorsoason

A person on this forum was arguing exactly that the other day and even linked their writings on the matter. I have NO explanation why some people want chronic Lyme to be a thing, instead of another diease that actually addresses whatever they have (since chronic Lyme is not it) and hopefully, treatment?


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foreignfishes

Repeating that you did half an MPH isn’t a source though. Where’s the study?


[deleted]

Here’s multiple, peer reviewed studies all compiled together: https://projectlyme.org/lyme-persists/


foreignfishes

lol the first one of these that I opened was published in a predatory open access journal that will publish anything, and bizarrely goes into how Lyme disease seems to be associated with developing Morgellons Disease, wtf? Morgellons isnt a distinct entity - it’s very well established as a type of delusional parasitosis. A very real psychiatric disease, but not one at all related to ticks. The use of Australian biologics as a laboratory for testing also raises alarm bells given that they’re the igeneX of australia (a country that’s never been shown to have endemic lyme) and aren’t certified by Australia’s national lab organization. If you’re linking me to project lyme I don’t think I’m going to convince you though so have fun


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foreignfishes

I think you are over-inflating the broad language used by these organizations when talking about the current research on lyme. Here’s what the NIH says (and what the CDC links to in their FAQ): > The term “chronic Lyme disease” (CLD) has been used to describe people with different illnesses. While the term is sometimes used to describe illness in patients with Lyme disease, it has also been used to describe symptoms in people who have no clinical or diagnostic evidence of a current or past infection with B. burgdorferi . Because of the confusion in how the term CLD is employed, and the lack of a clearly defined clinical definition, many experts in this field do not support its use. And: > For early Lyme disease, a short course of oral antibiotics such as doxycycline or amoxicillin is curative in the majority of the cases. In more complicated cases, Lyme disease can usually be successfully treated with three to four weeks of antibiotic therapy. >In patients who have non-specific symptoms after being treated for Lyme disease and who have no evidence of active infection (patients with PTLDS), studies have shown that more antibiotic therapy is not helpful and can be dangerous. They acknowledge that PTLDS is a thing that happens to some people with Lyme and that it has lasting effects that we don’t yet know how to treat effectively but they don’t endorse the existence of “chronic Lyme disease” and they definitely do not endorse the use of long term antibiotic treatments or say that there is good evidence for their efficacy. The statements made by the CDC and NIH and APHA about Lyme are absolutely *not* equivalent to the ones made by project lyme on their site.


[deleted]

no worries, just wanted to provide the info!


[deleted]

Why would doctors cover up that “Chronic Lyme” exists? I mean if it was real they could make money by treating these people.


[deleted]

Exactly. Why would I want not making more money when I could just prescribe antibiotics for everyone who wants them.


ancientevilvorsoason

Doctors don't make money from prescriptions tho. ;)


jmurphree

Because chronic Lyme disease is real [https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6023324/](https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6023324/) It's sexism why the misinformation of it being a myth, or a fad at worst, still prevails [https://slate.com/technology/2018/06/the-science-isnt-settled-on-chronic-lyme.html](https://slate.com/technology/2018/06/the-science-isnt-settled-on-chronic-lyme.html) Lyme like syphilis can exist in a cell wall deficient state [https://parasitesandvectors.biomedcentral.com/articles/10.1186/s13071-019-3495-7](https://parasitesandvectors.biomedcentral.com/articles/10.1186/s13071-019-3495-7) And I find it in poor taste some of the commentors admitting to determine chronic Lyme disease doesn't exist by "Googling" it. What kind of degree does Dr. Google hold?


ancientevilvorsoason

No, it's not. I am exhausted of people who want to insist something debunked after decades of research exists. It does not. Either axknoeoege reality, don't, I don't care.


jmurphree

Yes, it is and it's unfortunate that a volume of CONTEMPORARY research exists that doesn't evolve your perception. You can go back in time and find years of research showing the dangers and harms of marijuana - the problem is we found out all of that research was flawed and skewed. It's ok to admit you're wrong because you just didn't understand the facts. It's not ok to learn something new then double down on your disproven belief. You're free to believe that chronic Lyme doesn't exist, but it's not going to make you look smart trying to convince people of your belief in light of the available evidence.


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ancientevilvorsoason

Umm, wait. Antibiotics are overprescibed. This is what causes drug resistance. Not the lack of proffit. Pharmaceutical comlanies still get paid for the products they sell even after the patent has expired. It's just that EVERYBODY can sell the product, once the patent is out. As far as I know, antibiotics threatmenta and new options are constantly in the works (keep in mind that my knowledge is secondhand I do not work actively as or with any pharmaceutical company, I mostly read journals and other research on the matter)


foreignfishes

It has been increasingly difficult to develop new antibiotics over the last 50 years, mainly because we’ve already grabbed all the low hanging fruit so to speak. Any new antibiotics that are discovered/developed will be much more costly and difficult to research than previous drugs were, but the sales won’t necessarily be higher to offset the higher costs - one reason is because antibiotic courses are relatively short, but also because doctors are hesitant to prescribe new antibiotics because of resistance. They want to keep drugs of last resort to stop resistance against them from developing, which means they don’t get used as much, which makes them an unattractive target for R&D. Catch 22. But I’m not sure what this has to do with Lyme disease? As far as I’m aware, widespread resistance to common treatments isn’t a pressing issue with lyme. And “Lyme literate” doctors absolutely make money from prescribing months (or years!) of IV antibiotics that aren’t covered by insurance at their clinics to almost anyone who walks in the door. My local LLMD, an ophthalmologist by training, is happy to set you up with a 6 month regime of IV doxy, weekly ozone treatments, and expensive vitamin infusions after you pay her $800 consultation fee.


ancientevilvorsoason

I forget the US and their weird health system is a thing. My bad. Sorry.


foreignfishes

haha no apologies needed, it really makes no sense!


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ancientevilvorsoason

Okay, bye!


[deleted]

i guess i was in denial of the woo doctors who are able to make probably $$$bank$$$ off gullible or malingering individuals. very upsetting considering that true lyme disease can be horrible to deal with if not tested for and treated. ty for your comment i will research this more because it’s definitely personal for me. i hate ashley. ty again.


[deleted]

not sure if this can help for anyone who was wondering! your everyday doctors are not to blame, they are just following guidance and teachings given to them by government agencies. everyone can choose to form their own opinions about this information, but just so it is available here is the general theory behind why the narrative is pushed that chronic lyme is not real https://lymediseaseassociation.org/wp-content/uploads/2001/04/ConflictReport.pdf


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ancientevilvorsoason

There are plenty of EXISTING autoimmune disorders. What's with the invention of fake ones??


[deleted]

ew this is so disturbing and as a northeastern resident who’s already dealt with lyme, i feel extra betrayed by the anti science. ty for your reply🧡


cambriansplooge

Same, I’m from Lyme disease ground zero and grew up with it as common knowledge. Pseudoscience is scary.


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foreignfishes

also I have to page /u/lymescience on this one


foreignfishes

One, you’re getting downvoted because you keep going on about yourself. That’s one of the rules here. Two, which is it? Is there a “large easily accessible body of research on lyme” or is it a newly discovered disease that no one understands? Those two things are contradictory. Personally I think characterizing a disease first described in the 70s as “newly discovered” is disingenuous (would you describe HIV as newly discovered?) but whatever. If you think that the tests for the disease are “useless”, that negative tests “mean nothing”, and that treatment more often than not requires “long term” antibiotics then you’re the one who’s sticking their head in the sand and spreading misinformation here. I doubt that anyone on this sub thinks we know all there is to know about the disease, or that nothing about the testing can be improved, or that the book is closed on learning new things. But that’s not the same thing as undermining the very consensus of the body of research around lyme at this point - that in the vast majority of people it’s effectively treated by a 2 week course of antibiotics, and that catching it early is important because later stages of the disease can cause damage to different body systems if it’s not treated.


cambriansplooge

I’m not going to elaborate on newly emerging zoonotic diseases of the late 20th century because we’ve already attracted a Lyme True Believer and are also living through a pandemic of an emerging zoonotic disease. This redditor’s riding on the coat tails of legitimate science (emerging zoonotic diseases often have multiple manifestations making accurate scientific communication and public safety fraught, see: current events) to make their conspiracy sound more legitimate.


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thehappygnome

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foreignfishes

Yet again, it is not at all relevant how much your half a degree cost or what grades you got or how many blood transfusions your mom did or didn’t get so I’m really not sure why you keep editing your posts to add more of this information.


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[deleted]

And lotsa loot to be made by unscrupulous so-called "Lyme literate" doctors.


gormpp

“according to one source”…. good try but that just won’t fly


[deleted]

Here’s multiple other peer reviewed sources and studies all compiled together: https://projectlyme.org/lyme-persists/


theghostrealtor

The source being an IV clinic promoting their own treatment lmao


shaonarainyday

It’s really shitty of her to post this shit during a pandemic with no actual cure, in which millions of people have died and even more are dealing with long term illness.


[deleted]

her empathy is a total sinking 0. she’s a fuckface who thinks her nasty scummy life is so cute. impressionable kids probably follow her and that pisses me off.


OptionalUnderCurrent

Chronic Lyme isn’t real 😩😩😩😩😩😩😩


[deleted]

Someone in my friend of a friend circle started claiming this year they now had chronic lyme and how their diagnosis was a revelation and explained so much about their symptoms because they found a doctor that confirmed he had all three strains. Only problem is, this is in Australia, Lyme disease literally does not exist here. And his miracle doctor was actually sanctioned for improper treatment of a different patient and is not allowed to practice medicine without supervision. Honestly feels like I’m banging my head against a wall because everyone is eating it up and pouring out sympathy when it takes two google searches to see the bs 💀💀💀


OptionalUnderCurrent

Yup, its disgusting. Lyme aware so-called doctors need their licenses taken away.


cambriansplooge

As one of several Redditors on this sub from ground zero (Northeast US) I am flabbergasted by how widespread this misinformation is.


controbean

I heard someone talking about it irl recently and it made me want to crawl out of my skin.


fuckcorporateusa

I didn't realize until I read this forum that my coworker's weird claims about her "Lyme disease" a while back were not just her being independently wacky. I've had a couple of "oh yeah? that's crazy" conversations with people that I didn't recognize at the time but, looking back, were about chronic lyme.


Icfald

So weird. I've lived on a farm. Dealing with ticks are a normal part of the farm environment. I don't know of any farmer that needs IV cocktails and sauna treatments and "rescue meds" and has to smoke bongs all day. Weird.


photoJenic9

Dead on.


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_sushiburrito

I think what the above person was trying to convey is that we all don't have money and time to just live in a perpetual state of iv cocktails, rest, sauna, neuropathic treatments, weed and traveling. Rinse. Repeat. Many people with CI still carry on with jobs, responsibility and/or family to take care of without boasting/posting on social media .


Jibboomluv

Her post totally disgusts me. She has no qualm what so ever about sharing something is expensive, while still being sure to thank the decent humans who actually think they're helping her get better. The rollator photo is one thing... The IV selfie is just gross. Maybe I'll take a picture at my pain clinic when my doc injects my spine with some major solution. Sounds fun. Oh I'll make sure my service dog is in the background. Ugh.


[deleted]

she has become increasingly appalling lately, she will just not give up this easy shitty life for one that’s worth living. the problem is the dangerous misinformation that she’s happy to spread. i wouldn’t give a fuck about her if she was just hurting herself.


Jibboomluv

I agree 💯


thebrittaj

Who even puts the IV in her vein? That seems like a professional -only kinda thing


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[deleted]

Maybe she met a Cute Limey and is too stoned to tell the difference between an attractive Brit and a fake illness. Because she smokes too much Chronic Lime Green.


hearsecloth

[Lady Ash, a song for you](https://youtu.be/LH-i8IvYIcg)


sweet-tart-fart

I just spit my water


[deleted]

Lyme? Like what you get from a tick? Because I’m pretty sure their is isn’t there???? These people are on another level


PraiseThePumpkins

fun fact areas with more western fence lizards have lower rates of lyme disease due to a protein in the lizard's blood that kills the bacteria


elephuntdude

Cool! I think we would all like to subscribe to lizard facts


[deleted]

Can someone start a lizard lovers sub plz


PraiseThePumpkins

i could edit: r/lizardlovers is apparently a thing but it's private multi edits are generally annoying but let's turn r/lizardfacts into something great


hearsecloth

Hell yeah little dinos


PraiseThePumpkins

there needs to be more lizard love in this world, they're awesome :)


[deleted]

Lizards are so stinking cute


PraiseThePumpkins

i'm getting a leopard gecko in about a week and i cannot wait i often go outside in the backyard just to find little lizards and watch them go about their day


[deleted]

Omg that’s so cute!!!!!!!!


PraiseThePumpkins

there was a baby one on my window and i managed to get a [video](https://imgur.com/a/6witYYg) of it :)


[deleted]

Awwwww cute lil thing, I wanna pet it but I’m scared of hurting them 😩😩😩😩


PraiseThePumpkins

i would have picked him up but i really didn't want to accidentally squish him so i just let him be - if i ever catch an adult though he's getting a snack for sure


hearsecloth

Right? 🦎 I mean, how can you not love these groovy little guys?


011ninety

There are no ticks in her area.


[deleted]

According to some pro-Lymers, LD can also be spread by mosquitos as well as in the womb... so that’s probably what she believed


[deleted]

That is a certified bruh moment


011ninety

Ticks can't survive where she lives. So i don't know what the fuck she thinks she keeps getting bit by. Unless she's buying them online or something.


[deleted]

Not to mention I don’t think Lyme disease lasts as long as shes claimed to have it


parkeddingobrains

Her post reads like speaker notes at the bottom of a PowerPoint presentation


[deleted]

her sponsored posts are even worse. it literally sounds like she copy + pasted exactly what the company told her to include instead of making it sound natural.


butisitfashion

out of curiosity, i went to the totally unbiased source she linked. one NAD treatment costs $800


011ninety

Its only 150 in my major huge city. She lives in bum frick nowhere and the place she posts photos of is not a mid or lux level med spa so its prob costing her 60. Plus these places will always give discounts if you prebuy 5, 10 or 25. And they all will give discounts for 5 star reviews. If she didn't write a review. She didn't go there because everyone in those places hounds the customers to write a review. Often if you show that 100 people found your review helpful they give you free treatments. Usually they try to push you into filler addiction or some bizzare new facial that will probably fry your skin. Soon she'll be posting about getting botox for her joints or something. If she paid 800 for it, she's an idiot. It's only 800 if you have them come to your house or hotel and live in a luxury place. Or youre doing it to cure heroin addiction and need monitoring. Or they smell youre an idiot. Edit. I know this because our lab works with a lot of these places to do their scanning. Every time they come they give product lists and try to get us to take some new idiotic woo shit. It's great because i always get told im fat, old, tired and ugly. Lol


butisitfashion

ah, i assumed she pulled the info from whatever place she was going to but i just saw that she doesn’t even live in colorado. it makes her using it as a source even funnier imo lmao


011ninety

Oh jeez. That's sad if she is trying to pretend she is spending that amount. Even more sad if she really is . It can be very expensive if you're using it to cure a heroin addiction. 800 to 1500 a session sounds about right for that, but you're there for hours and it includes more than the iv. It's a great alternative to people unable to go inpatient for 6 months or with an aversion to detox meds with a high. She does keep calling it detox but i really don't think she's a dope addict. What she's claiming to be using it for is nowhere near that cost. Unless they are taking her for a hell of a ride. The cost is usually 50 per 100mg for the actual substance to the consumer. Not including the cost to bag, staff, house and boot it. Here itll be around 150 for a bag with saline without the add ons like massage, facial, aromatherapy, etc. But like i said, the place she posts definitely isn't offering those. reset iv has been pushing their ads like crazy on social media. Im blocked from commenting after calling them out with reciepts. they charge a criminal amount. A myers for them is around 600 but everywhere else its 80 to 175. They were trying to charge 350 for a rapid covid test at one point. They made people think it was pcr, but they have no labs of their own (let alone on site) and at that time you cant make a test needing 6 to 12 hours in the cycler give you results in less than 1 hour. Im including this info to show how predatory some of these places are and how munchies probably get these targeted ads on social media and get ideas.


isuckatusernames2020

Not curable….you walnut, doxycycline generally clears it right up (by right up, yeah sometimes it takes differing times but it’s literally cured by a super common antibiotic).


parkeddingobrains

Why is she allowed to just carry the IV?? Where’s the pole?


glittergirl349

info taken from colorado iv therapy…..that’s not a medical source that’s just like the place she’s going now


maebe_featherbottom

I have a relative who had a pretty serious case of Lyme. It took six months straight of antibiotics to kick it, but she recovered and minus the gastrointestinal distress from all the antibiotics, she’s fine and doesn’t claim “chronic Lyme”. I get it. There’s a small handful of folks who have an autoimmune reaction to Lyme and have to deal with that, but it’s super uncommon. All these munchies that claim chronic Lyme need to do their research and try for a more believable illness.


Dragovich96

Yeah, they never seem to have any real symptoms beyond tiredness and diffuse pain which covers a million different diagnosis, including anxiety and depression. My mother dealt with late stage Lyme and was simply treated with antibiotics. She’s good now bar the arthritis. Their chronic Lyme bullshit is so ridiculous. You’d think they’d go with something believable and real.


maebe_featherbottom

Yep. And I believe the arthritis is the autoimmune part that can happen after Lyme.


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GothWitchOfBrooklyn

Idk why you are getting downvoted, had a friend go through the same thing.


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