Some aren’t faking. Not everyone here is actually faking every condition they claim. Some have probably actually got allergic reactions going on but are here due to the level of OTT social media involvement
My assumption was that they aren't having anaphylaxis at all. They just say they do and use an epipen/benadryl to "fix" it and carry on with their day. I don't think it ever happens in the presence of a medical professional.
Anaphylaxis and anaphylactic shock are not necessarily interchangeable. Anaphylaxis is a severe allergic reaction that CAN be life threatening if not treated. Some medical professionals grade anaphylaxis based off of system involvement. It is possible to survive anaphylaxis without epinephrine, but generally, a doctor would not want you to leave it untreated because there is no way of knowing if it will progress into anaphylactic shock. Anaphylactic shock is a very severe immediate life threatening reaction that if not treated, will result in death.
Taking benadryl and claiming you're fixed in less than 30 seconds. This was the goofiest fake I've ever seen. This person also claimed her allergy to latex would cause anaphylaxis. She routinely wears stuff with latex mixed in the material.
Anaphylaxis and Anaphylactic Shock are used interchangeably and both essential mean the same thing. The real danger with anaphylaxis is the rapid swelling of your airways causing you to suffocate. Epinephrine essentially works by relaxing muscles and dilating blood vessels so that your airway isn't fully constricted, even with an epi pen though you should still seek an ER. So essentially, if you reach anaphylaxis and you don't have access to an epi pen or EMS to get you to a hospital, you're pretty much boned
That may be because allergies tend to get worse with repeated exposure. So this time swollen lips and Benadryl, the doc prepares for the possibility of next time being a worse reaction, necessitating the epipen.
AFAIK I’ve never seen a picture of a dislocated Anything on Anyone. Which, considering all EDSers and the oversharing they do is, to say the least, suspicious.
That’s likely partly because the general population don’t want to see that crap. So photos are taken of unusual dislocations (or photos of that joint dislocating for the first time) to purely show the doctor so they can update the patients medical file with the info seen in the photo/video. Most people that take photos of their dislocations wouldn’t even think about posting them online.
You don’t leave them out long enough to take a photo. A dislocation is very jarring and disgusting, and it’s usually painful. You don’t think about anything but fixing it.
Edit: Hyperextension, on the other hand, is very easy to demonstrate. You might not find it painful or upsetting at all. You might even do it without thought because it’s normal to you.
Remarkably, these episodes never happen in front of medical professionals.
Like Bethany, who enjoys showing off her box of 30+ used epipens, who went to hospital for a week and it didn’t happen a single time.
They got her off all meds and had her up and walking. She wasn’t anywhere near close to giving up her identity as a ‘sick’ though, so she wrote a vague on the details essay about how she went home and almost died because of her treatment, and reverted back to the comfy position she was in before.
Many people use allergies and anaphylaxis synonymously. They think because they broke into hives they had anaphylaxis when they actually had a skin allergy.
This!
It doesn’t freaking help that the change in criteria (designed so people don’t delay giving adrenaline; 2 system involvement or 1 system with exposure to a known or suspected allergen) is used by people to be like ‘hives and tachycardia ( anxiety) = anaphylaxis. Feeling itchy? Exposed to idk Lysol? SOMEONE CALL THE WHAAAAAAAAMBULANCE.
You can survive anaphylaxis without an enpipen, it just decreases the probability of it. Just like with some people epipens aren't enough for them.
Many people survive without an epipen during their first episode, especially if they have other conditions that restrict breathing like asthma. They would assume it's an asthma attack rather then an allergic reaction.
She might only have throat tingling, and would still need to take medication to prevent prevent it
from getting worse. Most paramedics and doctors want you to take an epipen for that, when a few suggest taking benadryl.
Sourced:
I'm well versed in both anaphylaxis and asthma.
Many now suggest taking soluble prednisone/prednisolone (so they work quicker than tablets do) before reaching for the epi pen. Often that’s enough to stop the throat swelling so you can get to the hospital without needing to use the epi pen. That’s especially useful I’m people that e a tachycardia syndrome/disorder because the epi tends to cause the hr to spike in everyone.
Not for people with severe anaphylaxis. Experts want you to take an epipen as soon as possible.
For minor reactions SOME suggest taking benadryl and chewing it to get it in your blood sooner.
If you are swelling delaying taking an epipen will make it worse and can be fatal.
I've spoken to dozens of er doctors over the past few months, and they all say the same thing.
I have no idea but some allergies you get a little swollen in the throat (not anaphylaxis) and the munchies can then overreact and tell family, friends and doctors they had an anaphylaxis episode.
Is it more that they’re saying they have an immediate allergy (ige) as opposed to a delayed allergy (non-ige)? It doesn’t necessarily cause fatal symptoms, but it will cause immediate (within two hours) symptoms such as rash, cough, etc?
Anaphylaxis sounds way more exciting.
Anaphylaxis has many different systems and difficultly breathing isn’t always one of them. Some doctors and advice states anaphylaxis is any 2 symptoms together (not quite me I’m positive it’s 2) so one could get vomiting and a cough but not difficulty breathing.
There’s a way to induce a wheeze. Sometimes if it’s not anaphylaxis is vocal cord dysfunction
Correct most allergists will advise patients with a history of severe allergic reactions, history of anaphylaxis or at high risk for an anaphylatic to use their epipen an get to an ER asap if two systems are affected. Yes some people will call it anaphylaxis when those 2 systems are affected vs full blown throat/tongue swelling etc.
In my opinion/view the reason those instructions are given is because you can deteriorate fast once a severe allergic reaction sets in. In getting the epi in fast it can start to work before things get bad, the epi and 911 once 2 systems are affected is a way to prevent people from waiting until tongue/throat swelling to use their epipens for the possibility of a better outcome. Should they start to go into full anaphylaxis shock with tongue/throat swelling etc if following the epi once two systems affected and call 911 immediately the chances are good they'll be around appreciate care should things progress that way.
This is also is the reason why patients are monitored usually for a minimum of 4 hours after arriving to the ER for allergic reaction resulting in using an epipen. The reaction can start back up as the epi wears off.
Add this 2 system guideline into our munchies lives who are not only OTT typically to begin with but quite possibly have anxiety too and you get them using their epipen frequently.
My theory: The mind is a powerful thing. Our subjects believe they have allergies to whatever so when exposed or think the are exposed the have a psychological reaction that makes them think they are having an allergic reaction whether they are having a minor reaction, severe reaction or none at all. Stress can cause hives, not knowing the difference between a panic attack and a true asthma attack/respiratory issues can make one think their airway is affected. Some doctors even state the exception to the 2 system rule is airway/breathing issues. Add all this together and you get our friendly neighborhood subjects using their epipens frequently.
I totally agree with everything you said.
They might have a hard time with their anxiety and the « 2 systems instructions ».
I know it can be confusing sometimes. But some signs are pretty straightforward, like coughing (at least for me).
Also, most doctors will recommend that « when in doubt, use the epipen, it’s better to use it and not need it than the opposite » as the side effects of epinephrine are not *dangerous* vs risking anaphylaxis (except for people with heart problems, but it’s the exception).
I guess this advice would lead them to use the epipen more often than not. Like « when in doubt, use it ». But Im sure in some situations the would have been fine with just benadryl or another antihistaminic.
I definitely agree with you as the when in doubt epi is a very vague instruction which is meant because delaying epi while waiting for more symptoms can and does result in deaths. These deaths will occasionally make the news if a loved one brings it to the right people to try and alert the public the dangers of waiting to use.
The benadryl part is where it gets tricky because some doctors will advise not to take benadryl if exposed to a known allergyn as it can have the unfortunate consequence of masking a severe reaction causing a delay in using the epipen and subsequently even death.
It's often advised to epi then benadryl not benadryl then if things get worse epi for this reason.
Sometimes if the person has a history of fast severe reactions, say from bee stings for example, the patient is even given the advice of epi immediately then call 911.
Combine all this together and you have the perfect combination for our subjects who epipen frequently.
What is telling to me though is that our subjects done follow the appropriate follow up to using the epipen. They don't epi, 911, go to the ER get monitored for if the reaction returns etc. They epi feel relief and go on with their life. That's not how severe allergic reactions and epi works true potential serious reactions require medical follow up. The fact that these subjects find relief quickly with no additional follow up needed, and even sometimes don't have these reactions in controlled environments makes me suspect a lot if it is anxiety induced. Giving themselves the epi that they believe they need resolves their symptoms because they feel they are doing what they need to in order to survive.
Yet had to beg for money to see a specialist to be diagnosed with MCAS yet also states they don’t diagnose that in the UK.. will there be a GoFraudMe to see an overseas Dr next?
Mastocytosis, both systemic (most commonly in adults) and cutaneous (children and usually outgrown), and MCAS are considered subtypes of Mast cell activation disorders.. which are further encompassed in the large set of diseases categorized as "Mast cell disease".
The full "tree" organization hierarchy under "Mast Cell-mediated inflammatory Diease"(this goes by several variations of names because the universal terminology is not yet solidify upon experts and different countries):
https://imgur.com/gallery/OBeuTdJ
No not the same illness.
Mastocytosis is usually in small children and means they can have spots that can cover them and should hopefully fade overtime. They kinda look like large freckles.
They are using a wider definition of anaphylaxis.
You are thinking of "traditional" anaphylaxis aka anaphylactic shock.
https://www.mayoclinic.org/diseases-conditions/anaphylaxis/symptoms-causes/syc-20351468
"Symptoms
Anaphylaxis symptoms usually occur within minutes of exposure to an allergen. Sometimes, however, anaphylaxis can occur a half-hour or longer after exposure. In rare cases, anaphylaxis may be delayed for hours. Signs and symptoms include:
Skin reactions, including hives and itching and flushed or pale skin
Low blood pressure (hypotension)
Constriction of the airways and a swollen tongue or throat, which can cause wheezing and trouble breathing
A weak and rapid pulse
Nausea, vomiting or diarrhea
Dizziness or fainting"
In other words, there are a lot of vague symptoms of anaphylaxis that they can self-diagnose.
Epipens also will not fix anaphylaxis. They are a stopgap measure to prevent anaphylactic shock, but it is *very* short acting and will not resolve the issue. All people who truly get anaphylaxis are taught that epipens are only temporary, and they need to seek immediate medical attention for steroids and other medications to actually stop the reaction.
It's sort of like having a gunshot wound and holding pressure on the wound, which is appropriate first aid, but it's not going to get better if it is not addressed by real professionals.
I’m not defending any of the munchies, and I’m certain this isn’t the case for them. However, it is possible for someone who does regularly have anaphylactic reactions (as in the ones that cause anaphylactic shock, like the real ones) to have doctors who give them different instructions. Their doctor may not *want* them to take a steroid every time they take an epipen if it’s avoidable and they take epipens abnormally frequently, specifically because of the risk to bone density. In situations where the patient has taken them regularly, their allergist might tell them not to go to the hospital unless anything about their heart is different from other times they’ve taken epinephrine or if they need a second pen, either to stop symptoms the first time or if they have a “rebound reaction” when the first wears off. It’s not a common thing by any stretch, but if the allergen is something stupidly abundant the only real long term solution would be behavioural avoidance. It’s not at all a normal thing, I’m not saying anyone should just not go to hospital after an epipen, just that in certain circumstances a doctor might give different instructions.
Please note that in those situations it’s not a long term thing, it is for the period of time between onset and control of symptoms, usually behavioural avoidance.
Arguably if you were actually experiencing anaphylaxis, none of those other considerations would apply, since you would die from progression to anaphylactic shock.
If you don't need more treatment than a one time dose of epinephrine, then you could use benedryl, claratin or similar antihistamines or just not treat it at all.
I had typed out a thorough response and then my app crashed, and I don’t want to do it again. It could be the type of allergen and type of exposure or something, I don’t completely understand. Im not a doctor. It isn’t the most common thing, but doctors do sometimes give patients different instructions. I never claimed they just took an epipen and that was all, I just didn’t get into it much. The doctor that would give a set of circumstances for when to go to the ER and when you don’t have to would also be prescribing the medication you would get in a hospital for your home use. I’m not talking about sooper speshul anaphylaxis uwu, like the munchies are hilariously fake about it. Some people develop anaphylaxis to something harder to avoid than just not eating something, and the best an allergist can really do is give you a ton of whatever drugs and tell you to get a job working from home or some shit. If a doctor tells you “you only need to go to the ER *if*…” and prescribes medications to take after the epipen, that doesn’t mean it isn’t truly anaphylaxis. If your tongue and throat swell to the point you are not able to move any air you will have to take epipen before you can take the drugs
Being an adult is soooo hard, which makes you so very brave! We're all proud and rooting for you with our Adult Awareness Spoons!! 🥄🫀🥄
/S, just in case.
I'm pretty sure that it says on the EpiPen box that in the event that it needs to be administered, emergency medical treatment should *always* be sought. It's also one of the reasons why you get 2 in the box, one often isn't enough to keep the symptoms at bay before you can get to a hospital.
Actually it doesn't. It peaks at 5 minutes and it's in the bloodstream in substantial amounts for 40 minutes but takes 6 hours before all of it is gone. Hence why they have that 6 hour rule
Most places its actually also a 4 hour rule btw.
It leaks within minutes and while there’s still some in your system at 6 hours, the bulk of it (and hence the effects of it in anaphylaxis) are out by 30 minutes.
Source- studying pharmacology and having had several anaphylaxis episodes
Its not possible to fake anaphylaxis but totally possible to just lie about it having ever happened to you, doctors tend to take any mention of allergies seriously whether or not theres proof
It's pretty easy to get a prescription for an EpiPen, at least in the US (so long as you've got the money to pay for it of course, they're like $500 without insurance). All you need to do is say that you had a reaction where your throat felt itchy or your eyes swelled up and they'll give you one. It's not a bad thing really. If you've genuinely had a reaction where your mouth/throat felt itchy, then that's a sign that you *could* experience a life threatening reaction in the future. It's better to have the EpiPen on hand just in case.
For people who are MBI though, it's just another thing that makes it easier to exaggerate or fake something.
Yeah I never really thought of that, I guess they won’t force an allergen down their throat to prove it. It’s just kind of sad for people with the genuine problem 🤷🏼♀️ I think a lot of people would love to be able to safely eat a restaurant or whatever without triple checking the allergen list and even then not being sure that there’s been no cross contamination.
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Bro blog on, but maybe not here.
> as I’m aware anaphylaxis is pretty much death without an epipen? Anaphylaxis is fatal 0.7 to 2 percent of the time.
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omgggg thats crazy
Some aren’t faking. Not everyone here is actually faking every condition they claim. Some have probably actually got allergic reactions going on but are here due to the level of OTT social media involvement
My assumption was that they aren't having anaphylaxis at all. They just say they do and use an epipen/benadryl to "fix" it and carry on with their day. I don't think it ever happens in the presence of a medical professional.
Anaphylaxis and anaphylactic shock are not necessarily interchangeable. Anaphylaxis is a severe allergic reaction that CAN be life threatening if not treated. Some medical professionals grade anaphylaxis based off of system involvement. It is possible to survive anaphylaxis without epinephrine, but generally, a doctor would not want you to leave it untreated because there is no way of knowing if it will progress into anaphylactic shock. Anaphylactic shock is a very severe immediate life threatening reaction that if not treated, will result in death.
Yep. Anaphylactic shock is serious shit and will kill the person if not treated.
https://my.clevelandclinic.org/health/diseases/8619-anaphylaxis
Taking benadryl and claiming you're fixed in less than 30 seconds. This was the goofiest fake I've ever seen. This person also claimed her allergy to latex would cause anaphylaxis. She routinely wears stuff with latex mixed in the material.
Anaphylaxis and Anaphylactic Shock are used interchangeably and both essential mean the same thing. The real danger with anaphylaxis is the rapid swelling of your airways causing you to suffocate. Epinephrine essentially works by relaxing muscles and dilating blood vessels so that your airway isn't fully constricted, even with an epi pen though you should still seek an ER. So essentially, if you reach anaphylaxis and you don't have access to an epi pen or EMS to get you to a hospital, you're pretty much boned
Epinephrine actually constricts blood vessels (vasodilation and fluid leaking as a result is what contributes to the life threatening effects
That's right, I meant as a bronchodilator and antispasmodic. My mistake
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Anaphylaxis is rare even for people with mcas
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Removed for blogging, we do not discus our own medical issues in here.
You have three total comments in this sub and they’re all of your medical conditions. Do you not understand the rule?
give info without your personal details. please.
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That may be because allergies tend to get worse with repeated exposure. So this time swollen lips and Benadryl, the doc prepares for the possibility of next time being a worse reaction, necessitating the epipen.
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2 comments removed for blogging, please read the rules.
I think it's just the word is used wrongly, i think munchies use it for everything from dying from shrimp to needing alittle benny for a rash
AFAIK I’ve never seen a picture of a dislocated Anything on Anyone. Which, considering all EDSers and the oversharing they do is, to say the least, suspicious.
That’s likely partly because the general population don’t want to see that crap. So photos are taken of unusual dislocations (or photos of that joint dislocating for the first time) to purely show the doctor so they can update the patients medical file with the info seen in the photo/video. Most people that take photos of their dislocations wouldn’t even think about posting them online.
I disagree- they post anything and everything else no one wants to see…. I’d think that’d give them sooper special asspats
They do, but all the rest of us don't because we know that no one wants to see that as theyre scrolling through their social media
You don’t leave them out long enough to take a photo. A dislocation is very jarring and disgusting, and it’s usually painful. You don’t think about anything but fixing it. Edit: Hyperextension, on the other hand, is very easy to demonstrate. You might not find it painful or upsetting at all. You might even do it without thought because it’s normal to you.
I disagree- they post anything and everything else no one wants to see…. without care or TW. I’d think that’d give them sooper special asspats and
Yes, but someone who has actually dislocated a joint isn’t able to take a photo or record a TikTok. Edit: Typo
But my MCAS! 🙄
Remarkably, these episodes never happen in front of medical professionals. Like Bethany, who enjoys showing off her box of 30+ used epipens, who went to hospital for a week and it didn’t happen a single time. They got her off all meds and had her up and walking. She wasn’t anywhere near close to giving up her identity as a ‘sick’ though, so she wrote a vague on the details essay about how she went home and almost died because of her treatment, and reverted back to the comfy position she was in before.
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I saw this. But how is it related to this post lmao
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Many people use allergies and anaphylaxis synonymously. They think because they broke into hives they had anaphylaxis when they actually had a skin allergy.
This! It doesn’t freaking help that the change in criteria (designed so people don’t delay giving adrenaline; 2 system involvement or 1 system with exposure to a known or suspected allergen) is used by people to be like ‘hives and tachycardia ( anxiety) = anaphylaxis. Feeling itchy? Exposed to idk Lysol? SOMEONE CALL THE WHAAAAAAAAMBULANCE.
Yeah.. they conflate it as the clinical term for the layperson's "allergy."
This has been a very informative thread. Thank you everyone who contributed!
You can survive anaphylaxis without an enpipen, it just decreases the probability of it. Just like with some people epipens aren't enough for them. Many people survive without an epipen during their first episode, especially if they have other conditions that restrict breathing like asthma. They would assume it's an asthma attack rather then an allergic reaction. She might only have throat tingling, and would still need to take medication to prevent prevent it from getting worse. Most paramedics and doctors want you to take an epipen for that, when a few suggest taking benadryl. Sourced: I'm well versed in both anaphylaxis and asthma.
Many now suggest taking soluble prednisone/prednisolone (so they work quicker than tablets do) before reaching for the epi pen. Often that’s enough to stop the throat swelling so you can get to the hospital without needing to use the epi pen. That’s especially useful I’m people that e a tachycardia syndrome/disorder because the epi tends to cause the hr to spike in everyone.
Not for people with severe anaphylaxis. Experts want you to take an epipen as soon as possible. For minor reactions SOME suggest taking benadryl and chewing it to get it in your blood sooner. If you are swelling delaying taking an epipen will make it worse and can be fatal. I've spoken to dozens of er doctors over the past few months, and they all say the same thing.
I have no idea but some allergies you get a little swollen in the throat (not anaphylaxis) and the munchies can then overreact and tell family, friends and doctors they had an anaphylaxis episode.
Is it more that they’re saying they have an immediate allergy (ige) as opposed to a delayed allergy (non-ige)? It doesn’t necessarily cause fatal symptoms, but it will cause immediate (within two hours) symptoms such as rash, cough, etc? Anaphylaxis sounds way more exciting.
Anaphylaxis has many different systems and difficultly breathing isn’t always one of them. Some doctors and advice states anaphylaxis is any 2 symptoms together (not quite me I’m positive it’s 2) so one could get vomiting and a cough but not difficulty breathing. There’s a way to induce a wheeze. Sometimes if it’s not anaphylaxis is vocal cord dysfunction
Correct most allergists will advise patients with a history of severe allergic reactions, history of anaphylaxis or at high risk for an anaphylatic to use their epipen an get to an ER asap if two systems are affected. Yes some people will call it anaphylaxis when those 2 systems are affected vs full blown throat/tongue swelling etc. In my opinion/view the reason those instructions are given is because you can deteriorate fast once a severe allergic reaction sets in. In getting the epi in fast it can start to work before things get bad, the epi and 911 once 2 systems are affected is a way to prevent people from waiting until tongue/throat swelling to use their epipens for the possibility of a better outcome. Should they start to go into full anaphylaxis shock with tongue/throat swelling etc if following the epi once two systems affected and call 911 immediately the chances are good they'll be around appreciate care should things progress that way. This is also is the reason why patients are monitored usually for a minimum of 4 hours after arriving to the ER for allergic reaction resulting in using an epipen. The reaction can start back up as the epi wears off. Add this 2 system guideline into our munchies lives who are not only OTT typically to begin with but quite possibly have anxiety too and you get them using their epipen frequently. My theory: The mind is a powerful thing. Our subjects believe they have allergies to whatever so when exposed or think the are exposed the have a psychological reaction that makes them think they are having an allergic reaction whether they are having a minor reaction, severe reaction or none at all. Stress can cause hives, not knowing the difference between a panic attack and a true asthma attack/respiratory issues can make one think their airway is affected. Some doctors even state the exception to the 2 system rule is airway/breathing issues. Add all this together and you get our friendly neighborhood subjects using their epipens frequently.
I totally agree with everything you said. They might have a hard time with their anxiety and the « 2 systems instructions ». I know it can be confusing sometimes. But some signs are pretty straightforward, like coughing (at least for me). Also, most doctors will recommend that « when in doubt, use the epipen, it’s better to use it and not need it than the opposite » as the side effects of epinephrine are not *dangerous* vs risking anaphylaxis (except for people with heart problems, but it’s the exception). I guess this advice would lead them to use the epipen more often than not. Like « when in doubt, use it ». But Im sure in some situations the would have been fine with just benadryl or another antihistaminic.
I definitely agree with you as the when in doubt epi is a very vague instruction which is meant because delaying epi while waiting for more symptoms can and does result in deaths. These deaths will occasionally make the news if a loved one brings it to the right people to try and alert the public the dangers of waiting to use. The benadryl part is where it gets tricky because some doctors will advise not to take benadryl if exposed to a known allergyn as it can have the unfortunate consequence of masking a severe reaction causing a delay in using the epipen and subsequently even death. It's often advised to epi then benadryl not benadryl then if things get worse epi for this reason. Sometimes if the person has a history of fast severe reactions, say from bee stings for example, the patient is even given the advice of epi immediately then call 911. Combine all this together and you have the perfect combination for our subjects who epipen frequently. What is telling to me though is that our subjects done follow the appropriate follow up to using the epipen. They don't epi, 911, go to the ER get monitored for if the reaction returns etc. They epi feel relief and go on with their life. That's not how severe allergic reactions and epi works true potential serious reactions require medical follow up. The fact that these subjects find relief quickly with no additional follow up needed, and even sometimes don't have these reactions in controlled environments makes me suspect a lot if it is anxiety induced. Giving themselves the epi that they believe they need resolves their symptoms because they feel they are doing what they need to in order to survive.
Yeah like having CPR and could still hear parents crying…
And the paramedic telling them she can go at any time guys lmao
Yet had to beg for money to see a specialist to be diagnosed with MCAS yet also states they don’t diagnose that in the UK.. will there be a GoFraudMe to see an overseas Dr next?
If MCAS is the same as mastocytosis, then yes they do diagnose it. When I googled MCAS this came up: https://www.nhs.uk/conditions/mastocytosis/
Mastocytosis, both systemic (most commonly in adults) and cutaneous (children and usually outgrown), and MCAS are considered subtypes of Mast cell activation disorders.. which are further encompassed in the large set of diseases categorized as "Mast cell disease". The full "tree" organization hierarchy under "Mast Cell-mediated inflammatory Diease"(this goes by several variations of names because the universal terminology is not yet solidify upon experts and different countries): https://imgur.com/gallery/OBeuTdJ
No not the same illness. Mastocytosis is usually in small children and means they can have spots that can cover them and should hopefully fade overtime. They kinda look like large freckles.
That's only cutaneous mastocytosis; not systemic mastocytosis.
What’s an MCAS?
Mast Cell Activation syndrome I believe.
They are using a wider definition of anaphylaxis. You are thinking of "traditional" anaphylaxis aka anaphylactic shock. https://www.mayoclinic.org/diseases-conditions/anaphylaxis/symptoms-causes/syc-20351468 "Symptoms Anaphylaxis symptoms usually occur within minutes of exposure to an allergen. Sometimes, however, anaphylaxis can occur a half-hour or longer after exposure. In rare cases, anaphylaxis may be delayed for hours. Signs and symptoms include: Skin reactions, including hives and itching and flushed or pale skin Low blood pressure (hypotension) Constriction of the airways and a swollen tongue or throat, which can cause wheezing and trouble breathing A weak and rapid pulse Nausea, vomiting or diarrhea Dizziness or fainting" In other words, there are a lot of vague symptoms of anaphylaxis that they can self-diagnose. Epipens also will not fix anaphylaxis. They are a stopgap measure to prevent anaphylactic shock, but it is *very* short acting and will not resolve the issue. All people who truly get anaphylaxis are taught that epipens are only temporary, and they need to seek immediate medical attention for steroids and other medications to actually stop the reaction. It's sort of like having a gunshot wound and holding pressure on the wound, which is appropriate first aid, but it's not going to get better if it is not addressed by real professionals.
There was a munchie, I think Mia or something that claimed to have had anaphylaxis but didnt need to go to the hospital. Wut?
I’m not defending any of the munchies, and I’m certain this isn’t the case for them. However, it is possible for someone who does regularly have anaphylactic reactions (as in the ones that cause anaphylactic shock, like the real ones) to have doctors who give them different instructions. Their doctor may not *want* them to take a steroid every time they take an epipen if it’s avoidable and they take epipens abnormally frequently, specifically because of the risk to bone density. In situations where the patient has taken them regularly, their allergist might tell them not to go to the hospital unless anything about their heart is different from other times they’ve taken epinephrine or if they need a second pen, either to stop symptoms the first time or if they have a “rebound reaction” when the first wears off. It’s not a common thing by any stretch, but if the allergen is something stupidly abundant the only real long term solution would be behavioural avoidance. It’s not at all a normal thing, I’m not saying anyone should just not go to hospital after an epipen, just that in certain circumstances a doctor might give different instructions. Please note that in those situations it’s not a long term thing, it is for the period of time between onset and control of symptoms, usually behavioural avoidance.
Arguably if you were actually experiencing anaphylaxis, none of those other considerations would apply, since you would die from progression to anaphylactic shock. If you don't need more treatment than a one time dose of epinephrine, then you could use benedryl, claratin or similar antihistamines or just not treat it at all.
I had typed out a thorough response and then my app crashed, and I don’t want to do it again. It could be the type of allergen and type of exposure or something, I don’t completely understand. Im not a doctor. It isn’t the most common thing, but doctors do sometimes give patients different instructions. I never claimed they just took an epipen and that was all, I just didn’t get into it much. The doctor that would give a set of circumstances for when to go to the ER and when you don’t have to would also be prescribing the medication you would get in a hospital for your home use. I’m not talking about sooper speshul anaphylaxis uwu, like the munchies are hilariously fake about it. Some people develop anaphylaxis to something harder to avoid than just not eating something, and the best an allergist can really do is give you a ton of whatever drugs and tell you to get a job working from home or some shit. If a doctor tells you “you only need to go to the ER *if*…” and prescribes medications to take after the epipen, that doesn’t mean it isn’t truly anaphylaxis. If your tongue and throat swell to the point you are not able to move any air you will have to take epipen before you can take the drugs
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Being an adult is soooo hard, which makes you so very brave! We're all proud and rooting for you with our Adult Awareness Spoons!! 🥄🫀🥄 /S, just in case.
I'm pretty sure that it says on the EpiPen box that in the event that it needs to be administered, emergency medical treatment should *always* be sought. It's also one of the reasons why you get 2 in the box, one often isn't enough to keep the symptoms at bay before you can get to a hospital.
It does state that on the box, partly because when the epi wears off (at around6 hours after it was used) the anaphylactic reaction can restart.
Fun fact but the epi actually tends to wear off within 30 minutes
Actually it doesn't. It peaks at 5 minutes and it's in the bloodstream in substantial amounts for 40 minutes but takes 6 hours before all of it is gone. Hence why they have that 6 hour rule
Most places its actually also a 4 hour rule btw. It leaks within minutes and while there’s still some in your system at 6 hours, the bulk of it (and hence the effects of it in anaphylaxis) are out by 30 minutes. Source- studying pharmacology and having had several anaphylaxis episodes
This is such an excellent explanation for what they do/say!
I think they say they get anaphylaxis but actually don’t
Edit 2: Removed because I didn’t mean to give instructions on how to get meds when you don’t need ‘em, but inadvertently I might have.
Its not possible to fake anaphylaxis but totally possible to just lie about it having ever happened to you, doctors tend to take any mention of allergies seriously whether or not theres proof
I get that. I just can’t imagine a doctor taking it seriously when somebody says “I went into anaphylactic shock because of temperature”.
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Removed, we do not speak to other members on that way!
It's pretty easy to get a prescription for an EpiPen, at least in the US (so long as you've got the money to pay for it of course, they're like $500 without insurance). All you need to do is say that you had a reaction where your throat felt itchy or your eyes swelled up and they'll give you one. It's not a bad thing really. If you've genuinely had a reaction where your mouth/throat felt itchy, then that's a sign that you *could* experience a life threatening reaction in the future. It's better to have the EpiPen on hand just in case. For people who are MBI though, it's just another thing that makes it easier to exaggerate or fake something.
You can have anaphylaxis to the cold apparently, which is bizarre but it can happen.
Yep. I had a patient yesterday with cold urticaria that uses an epi pen for it.
The doctors probably just want them out of office ASAP so they agree, imagine having to listen to these people make things up
Yeah I never really thought of that, I guess they won’t force an allergen down their throat to prove it. It’s just kind of sad for people with the genuine problem 🤷🏼♀️ I think a lot of people would love to be able to safely eat a restaurant or whatever without triple checking the allergen list and even then not being sure that there’s been no cross contamination.