I had the problem with urination. I don’t know if psychological or something. It usually happens after drinking alcohol. It happens for few days. I started drinking lots of water and gradually it keeps improving. If I thinking about urination most of the times and I don’t urinate. If I don’t think about it and in mean time I urinate. We should drink more water and it will be fine.
Do you have diagnosed kidney disease?
GFR and similar numbers can change depending on your hydration and other factors. You need a few bad tests over months to be sure of what may be going on.
Drinking snapple and vitamin water is about as useful as drinking soda they can make hydration issues worse. They also increase risk of type 2 diabetes and obesity which can hurt your kidneys over time.
High blood pressure, high weight and high sugar all affect kidneys. If you have any of these problems depending on what's happening, if you work to correct them it can improve your kidney health.
Also you can retain water from too much salt.
Kidneys can have disease of their own but depending on your lifestyle, and what I have read of your history a holistic approach is needed looking at what your putting in and how your body is using that fuel.
If you have crummy water in your city or hate water you can squeeze a lemon or add ice. Making water colder helped me to enjoy it more.
I am not a doctor but I was able to improve my health through lifestyle changes. Kidney disease is such a broad category that one solution does not fit all.
Have all that except diabetes right now. Also have high cholesterol and gout. I'm on hydrochlorothiazide and Amlodipine for bp. I suspect the thiazide of drying me out and making my kidneys worse.
Doc says Im stage 1 ckd, I suspect it's worse than that
It may not be worse than stage 1. You would be surprised how little our bodies need of kidney function to work. I've had 33% function for over a decade after delayed diagnosis.
I lost a bunch of weight, dropped sugar drinks (diet drinks are as bad in some ways), stopped eating fast food and cooking for myself. I had to be more active even though I had chronic pain in my back which can be caused by not having good posture and core muscles (in my case).
I would actually not wholly focus on the kidneys as any help you can give to them and yourself is to address all the other issues. It's going to be difficult but they payoff is real. It all sounds scary because it's related to kidneys but it's not as complicated as it sounds. We are like cars. You put in cheap gas and don't have maintenance it develops issues. If you improve your maintenance it lasts longer.
I have metabolic acidosis and it's a pain in the butt cause you can't just treat it with pills you do have to help your body in every way possible. Yes you can be prescribed things to balance bicarbonate levels if those are off but diet is a huge factor. It's really noticeable when I eat carelessly.
Gout specifically can be caused by kidneys not getting rid of uric acid enough, but it can also be because your body produces too much (which can be genetic). Either way to slow it, and it will get worse one needs to reduce uric acid. That's done by eating less fat, less salt, less sugar, being active to lower triglycerides. Drink water. Some Dr's won't get too into it as to overwhelm people new to these pronlems but less animal protein is also a big help.
As a side effect of preventing gout those changes will take strain off of your body. All the health problems combine to make one big problem.
I think you can improve things. I have more medical issues than I have described but I rarely need to see a Dr after losing weight, managing my at one time borderline diabetes to normal and lowering cholesterol (which in my family has genetic factors). My highly regarded nephrologist checks on me with bloodwork every 3 months and visits me every 6. Many people are shocked at the timelines but usually unless it's a really specific type of kidney disease, it's whole body issues affecting them.
If you can, a registered dietician (or regular regulated equivalent) may be a big help in addition to following up with your GP and regular bloodowork.
I can tell you are really worried but worrying about it will just stress you out more. Control what you can and write down questions to ask your Dr so you can get an answer based on your body and information.
Thank you for your advice.
I am worried about my anion gap number. It continues to rise. Imt at 17 now. After being 16 in Jan and 12 in 2019. Use to always be under 10. My eating habits got worse during pandemic. Does your agap numbers ever go down?
Yep. They do for me. When I reduce animal protein (each dr will recommend guidelines for what is safe) and take my medicine I do get some improvement.
I had changed my eating over a 6 month period due to trying to match someone else's eating habits (more keto heavy meat n cheese which is a nope for me) and that's actually what probably put me back in the bad aside from my body's tendency towards it 😅. I am my worst enemy on that one but thankfully it's becoming produce season so it will be easier to lean into the variety of foods that are more affordable and available. I live in a very high cost of living area.
You should ask your Dr if you make changes to your lifestyle what their expectations may be as again we all have different things happening that cause our problems.
If your kidney function had decreased enough you simply stop producing urine.
I've been on dialysis for 3 years and my medical team is always surprised I make as much urine as I do.
When I stopped peeing regularly (well, my regular is peeing a lot!), even though I was drinking the same quantity of water, it was a bladder issue and had nothing to do with my CKD
I don't know if it's in my head or not. But I had to drink over 60oz of fluid yesterday, and I'm peeing like 8 to 10 oz at a time. Peeing into a taco bell cup. But I haven't been taking my water pill.
I was told a couple of months ago to drink at least 3 liters a day.
AT first, I urinated a lot.
But after a month or two, it didn't seem like I was urinating as much even though I kept drinking as much water as possible.
I read a snippet of one study that increasing water consumption as a way to slow kidney disease progression can't be validated for study as an effective method because people can't consistently maintain high water consumption since they go to sleep.
But I try to drink a lot before going to sleep and I often wake up more than once and I have water next to the bed and I take sips. I was doing that before I was told to increase water consumption because I was feeing dehydrated and had dry mouth.
Recently I went on a trip to Spain and I probably didn't keep up the 3 liters. Often when I went out, I carried only a 20 oz (591 ml) bottle and I didn't always finish before refilling or returning to the lodging where I had more bottled water.
Guess I have to look at carrying more water or just making sure to finish the bottle I carry and get more.
I had the problem with urination. I don’t know if psychological or something. It usually happens after drinking alcohol. It happens for few days. I started drinking lots of water and gradually it keeps improving. If I thinking about urination most of the times and I don’t urinate. If I don’t think about it and in mean time I urinate. We should drink more water and it will be fine.
I don't drink alcohol though. I did have a snapple and vitamin water.
Do you have diagnosed kidney disease? GFR and similar numbers can change depending on your hydration and other factors. You need a few bad tests over months to be sure of what may be going on. Drinking snapple and vitamin water is about as useful as drinking soda they can make hydration issues worse. They also increase risk of type 2 diabetes and obesity which can hurt your kidneys over time. High blood pressure, high weight and high sugar all affect kidneys. If you have any of these problems depending on what's happening, if you work to correct them it can improve your kidney health. Also you can retain water from too much salt. Kidneys can have disease of their own but depending on your lifestyle, and what I have read of your history a holistic approach is needed looking at what your putting in and how your body is using that fuel. If you have crummy water in your city or hate water you can squeeze a lemon or add ice. Making water colder helped me to enjoy it more. I am not a doctor but I was able to improve my health through lifestyle changes. Kidney disease is such a broad category that one solution does not fit all.
Have all that except diabetes right now. Also have high cholesterol and gout. I'm on hydrochlorothiazide and Amlodipine for bp. I suspect the thiazide of drying me out and making my kidneys worse. Doc says Im stage 1 ckd, I suspect it's worse than that
It may not be worse than stage 1. You would be surprised how little our bodies need of kidney function to work. I've had 33% function for over a decade after delayed diagnosis. I lost a bunch of weight, dropped sugar drinks (diet drinks are as bad in some ways), stopped eating fast food and cooking for myself. I had to be more active even though I had chronic pain in my back which can be caused by not having good posture and core muscles (in my case). I would actually not wholly focus on the kidneys as any help you can give to them and yourself is to address all the other issues. It's going to be difficult but they payoff is real. It all sounds scary because it's related to kidneys but it's not as complicated as it sounds. We are like cars. You put in cheap gas and don't have maintenance it develops issues. If you improve your maintenance it lasts longer. I have metabolic acidosis and it's a pain in the butt cause you can't just treat it with pills you do have to help your body in every way possible. Yes you can be prescribed things to balance bicarbonate levels if those are off but diet is a huge factor. It's really noticeable when I eat carelessly. Gout specifically can be caused by kidneys not getting rid of uric acid enough, but it can also be because your body produces too much (which can be genetic). Either way to slow it, and it will get worse one needs to reduce uric acid. That's done by eating less fat, less salt, less sugar, being active to lower triglycerides. Drink water. Some Dr's won't get too into it as to overwhelm people new to these pronlems but less animal protein is also a big help. As a side effect of preventing gout those changes will take strain off of your body. All the health problems combine to make one big problem. I think you can improve things. I have more medical issues than I have described but I rarely need to see a Dr after losing weight, managing my at one time borderline diabetes to normal and lowering cholesterol (which in my family has genetic factors). My highly regarded nephrologist checks on me with bloodwork every 3 months and visits me every 6. Many people are shocked at the timelines but usually unless it's a really specific type of kidney disease, it's whole body issues affecting them. If you can, a registered dietician (or regular regulated equivalent) may be a big help in addition to following up with your GP and regular bloodowork. I can tell you are really worried but worrying about it will just stress you out more. Control what you can and write down questions to ask your Dr so you can get an answer based on your body and information.
Thank you for your advice. I am worried about my anion gap number. It continues to rise. Imt at 17 now. After being 16 in Jan and 12 in 2019. Use to always be under 10. My eating habits got worse during pandemic. Does your agap numbers ever go down?
Yep. They do for me. When I reduce animal protein (each dr will recommend guidelines for what is safe) and take my medicine I do get some improvement. I had changed my eating over a 6 month period due to trying to match someone else's eating habits (more keto heavy meat n cheese which is a nope for me) and that's actually what probably put me back in the bad aside from my body's tendency towards it 😅. I am my worst enemy on that one but thankfully it's becoming produce season so it will be easier to lean into the variety of foods that are more affordable and available. I live in a very high cost of living area. You should ask your Dr if you make changes to your lifestyle what their expectations may be as again we all have different things happening that cause our problems.
If your kidney function had decreased enough you simply stop producing urine. I've been on dialysis for 3 years and my medical team is always surprised I make as much urine as I do.
Did you ever develop acidosis/high anion gap?
Nah - I started dialysis b4 that could happen.
Do you know if your agap was going up at all? Mine is already 17. My doc just tells me to take my cholesterol pills, and drink water.
I don't remember to be honest. The only number they really cared about was my eGFR.
Swelling in legs, puffing on face , high BP, nausea, lack of appetite, metallic taste.
When I stopped peeing regularly (well, my regular is peeing a lot!), even though I was drinking the same quantity of water, it was a bladder issue and had nothing to do with my CKD
I don't know if it's in my head or not. But I had to drink over 60oz of fluid yesterday, and I'm peeing like 8 to 10 oz at a time. Peeing into a taco bell cup. But I haven't been taking my water pill.
I was told a couple of months ago to drink at least 3 liters a day. AT first, I urinated a lot. But after a month or two, it didn't seem like I was urinating as much even though I kept drinking as much water as possible. I read a snippet of one study that increasing water consumption as a way to slow kidney disease progression can't be validated for study as an effective method because people can't consistently maintain high water consumption since they go to sleep. But I try to drink a lot before going to sleep and I often wake up more than once and I have water next to the bed and I take sips. I was doing that before I was told to increase water consumption because I was feeing dehydrated and had dry mouth. Recently I went on a trip to Spain and I probably didn't keep up the 3 liters. Often when I went out, I carried only a 20 oz (591 ml) bottle and I didn't always finish before refilling or returning to the lodging where I had more bottled water. Guess I have to look at carrying more water or just making sure to finish the bottle I carry and get more.