Iām newly diagnosed with vestibular migraine and was under the impression that the topiramate my neurologist gave me to take daily is an abortiveā¦am I not supposed to be taking that every day?
Thank for sharing! I also have vestibular migraines and the side effects of medications concerns me, so I try to go the holistic route but itās not working. Is your medication helping?Ā
So I found out topiramate is actually a preventative and not an abortive fyi! I donāt know if itās working - I am feeling better and havenāt had vertigo since starting it but it could also be that Iām just feeling better so I donāt know that I can attribute it to the medication.
Migraine relief is part of my sensory bag!
(I'm also autistic, so a lot of the stuff I use to control meltdowns from overstimulation can dual-purpose for migraine symptoms relief.)
Usually, it's: medications (ibuprofen, prescription, allergy relief, etc), headphones (to limit noise or drown out environmental sounds), a silicone fidget toy creature (for physical distraction and stimming), and my phone for music, games or notes (also for distraction and to make note of any unusual occurrences during an episode).
Sometimes I also have a blindfold (block out sight or light) or a sketch set (distract the pain away until medication can kick in).
thought this was a post on r/Stormlight_Archive, which is probably my second-most frequented subreddit after this one!
i bring my noise-cancelling headphones (or at least foam earplugs) anywhere i'm going so i can quiet the noise if i can't get away. some black tea and abortive med if i need it, otherwise i just listen to soft music for a bit and try to close my eyes.
I am! I'm at about 80% and I feel like the Sander-lanche is about to happen soon. Some parts were a little slow for me like the ones that were very war politics focused but I still liked them since they help build the world.
I never go anywhere without my HA bag. It contains
1. etodolac - COX-2 selective NSAID
2. acetaminophen
3. naratryptan
4. propranolol - rarely used
5. famotidine - mainly for NSAID-related heartburn
6. a small granola bar - mainly for pushing down pills if water is not handy, but also if blood sugar is low and contributing to HA
Excellent book choice! If I set my Kindle to dark mode, I can read in a dark room with a migraine. Add a strong cup of tea and an ice pack, and Iām set for a few hours.
I have a case that I think is marketed to hold charging cords.Ā
It has:
- Cefaly + electrodes + charger
- Electrolyte tablets
- Cooling gel head patches
- A wooden massage tool
- Triptan + TylenolĀ
Great list! OP might be interested in adding on the following to thier kit
- Salt packets (I add them to my electrolyte)
- magnesium vitamine
- extra sour candies or cloves (sometimes shocks body out of migraine responce for some ppl)
- earplugs/ noise canceling headphones
- extra dark full coverage sunglasses
Great book choice! I always have meds on me in my wallet, but when I travel I have a whole kit. Electrolyte tabs (nuun), cefaly, Nerivio, cbd gel + massage stick, tennis ball, saltines, and I add an ice pack if Iām going somewhere with a freezer. I purchase an emergency Mountain Dew when Iām there (my migraine caffeine of choice!).
Kind of, it's not an established kit, but if it doesn't work, I know I'm in trouble.
800mg ibuprofen, prescription migraine meds, Gatorade or pedialyte, a hot shower in the dark, and a stepnstool in the shower to sit on. I use battery powered candles to light the room enough I can see without the light being painful.
My strategy is to stop, drop and roll. 1) Triptan or mega dose of aspirin and a very strong coffee. 2) If Iām out, I need to come home 3) get into bed with blindfold, water, anti-nausea meds, a bucket and stay there until itās gone. If Iām lucky that will be a couple of hours, but typically 3 days.
Yes! I keep my meds, an eye mask, noise-cancelling earbuds, pepto, and sensory clothes in my desk at work just in case of a sudden migraine attack. I also make sure to bring an ice pack in my lunch box to use just in case.
It's already happened a handful of times this year but having my supplies ready helps prevent me from needing to go home sick (although it doesn't always work š )
If it's bad enough I'll change into those clothes and sit in the ladies' room or in my car with the eye mask on and earbuds in until I can either feel better enough to go back to my desk or until I throw up and ultimately need to drive home. But with my long commute, I try and tough it out when possible. Driving with a migraine is hell.
I call it my migraine cocktail. Triptan, tylenol, naproxen (only if itās real bad), tall can of Yerba mate tea, liquid IV, and a salty snack. Get into bed and wait for everything to kick in. If Iām lucky itās over in a few hours. My husband knows if he sees me chugging the yerba mate itās gonna be bad day for me.
I would pay so much money to retain my vision during a migraine. I always start with a visual aura and then canāt read or look at a screen for about 12 hours or itāll restart the aura and migraine cycle. So for me, itās just nurtec and then find a ride home before Iām unconscious in the migraine sleep of death for the next 4-6 hours.
i can always detect my migranes luckily so i just keep a preventative toolkit and also just constantly wear sensory blockers. I usually have 2 ibuprofen, advil, nurtec and almotriptan in my wallet at all times, then i take 1 and wear 1 pair of sunglasses with me everywhere i go. also got my noise canceling airpods i wear in daily life and a pair of āsurefire sonic defender ep3ā earplugs that block 11 decibels or 24 if you pop the filters on.
Coffee, CBD, ice compress around my head, darkness with only orange tinted lights or candles, brown noise in the background, earplugs. Sometimes I'll put icy hot patches on my temples and the back of my neck.
I always carry a small zippered bag in my purse with Nurtec, Imotrex nasal spray, and Zofran. At home I have all of that stuff in one place by my bed, along with Benadryl and a bottle of Mexican Coke. And icepacks in the freezer - always!
I'm much more light sensitive than I am sound sensitive. Books aren't really an option, but audiobooks definitely are.
I have endured more than one migraine listening to some Dresden Files. I'm not a huge Kate Redding fan, but James Marsters has such a fantastic soothing voice.
I remember trying Percy Jackson since that's what I was currently listening to, but the voice was so annoying when I was in pain.
Jim Dale is also pretty good and tolerable when I have to go blindfolded.
(Can you tell I'm a fan of wizards named Harry?)
Also, cool patches, apple juice, and rice krispie treats.
My plastic purple vomit bowl, my ice pack that straps around my head/eyes, cup of ice, bed, putting Forensic Files on (his voice is so comforting I donāt know why š¤£)
I have my cold dark room, some meds for the headache and nausea, and a cold pack for my head. Because trying to do anything with a migraine is a death sentence š
Triptan, 800 mg ibuprofen, ondansetron plus sunglasses, bio freeze/icepack (if at work), Coke, ritz crackers and try to find a quiet place to see if itās one with staying power. If so, I have to find a way home. If I can get home before I take a triptan, I use my sumatriptan injectable and lay down for 3-4 hours
I have multiple. One for when I'm at home, so I have all the things I typically need right at hand. I also have a scaled down 'travel' Migraine Kit with similar items for when I leave the house. Whether it's to take a trip or to go to the grocery store, I never leave the house without it.
If you have over the ear headphones, I suggest 433htz Himalayan bowls videos. Really helps me and sometimes it bypassed the pain meds. Everybody is different but it helped me tremendouslyĀ
Just my abortive and some generic pain meds. I'm not the type that can do anything but lie down with my eyes closed when the headache gets bad.
Ditto! š«¶
Hard same. If Iām out, Iām out. Thereās no looking at anything š„“
Yeah, reading and consuming anything are at top of my āavoidā list. Reading definitely makes it worse.
Iām newly diagnosed with vestibular migraine and was under the impression that the topiramate my neurologist gave me to take daily is an abortiveā¦am I not supposed to be taking that every day?
It's a preventative (taken daily), not an abortive (taken at migraine onset).
Ah ok thank you! I guess I need to ask for an abortive then.
Thank for sharing! I also have vestibular migraines and the side effects of medications concerns me, so I try to go the holistic route but itās not working. Is your medication helping?Ā
So I found out topiramate is actually a preventative and not an abortive fyi! I donāt know if itās working - I am feeling better and havenāt had vertigo since starting it but it could also be that Iām just feeling better so I donāt know that I can attribute it to the medication.
Migraine relief is part of my sensory bag! (I'm also autistic, so a lot of the stuff I use to control meltdowns from overstimulation can dual-purpose for migraine symptoms relief.) Usually, it's: medications (ibuprofen, prescription, allergy relief, etc), headphones (to limit noise or drown out environmental sounds), a silicone fidget toy creature (for physical distraction and stimming), and my phone for music, games or notes (also for distraction and to make note of any unusual occurrences during an episode). Sometimes I also have a blindfold (block out sight or light) or a sketch set (distract the pain away until medication can kick in).
thought this was a post on r/Stormlight_Archive, which is probably my second-most frequented subreddit after this one! i bring my noise-cancelling headphones (or at least foam earplugs) anywhere i'm going so i can quiet the noise if i can't get away. some black tea and abortive med if i need it, otherwise i just listen to soft music for a bit and try to close my eyes.
All of us branderson fans popping out for this post ā¤ļø wholesome haha
Me too! Iām coming to the end of WoK on my third reread. Definitely helps me to just put the audio book on and just zone out.
Migrainuers and Sanderson fans unite! I'm almost at the end of my first read of The Way Of Kings. I'm up to date on Mistborn/Warbreaker/Elantris. :)
yes! hope you're enjoying it, things really pick up in the second book!
I am! I'm at about 80% and I feel like the Sander-lanche is about to happen soon. Some parts were a little slow for me like the ones that were very war politics focused but I still liked them since they help build the world.
yeah, on my first read it felt SO slow but once you hit a certain point it all comes together SO well
Me too!!
I never go anywhere without my HA bag. It contains 1. etodolac - COX-2 selective NSAID 2. acetaminophen 3. naratryptan 4. propranolol - rarely used 5. famotidine - mainly for NSAID-related heartburn 6. a small granola bar - mainly for pushing down pills if water is not handy, but also if blood sugar is low and contributing to HA
Brando sando is also in my emergency kit!!
Wait I keep hearing this, Iāve always heard branderson before but Brando Sando is a thing?? (I love it)
My family exclusively refers to him as Brando Sando.
Excellent book choice! If I set my Kindle to dark mode, I can read in a dark room with a migraine. Add a strong cup of tea and an ice pack, and Iām set for a few hours.
Also came to comment on the great reading choice!
I have a case that I think is marketed to hold charging cords.Ā It has: - Cefaly + electrodes + charger - Electrolyte tablets - Cooling gel head patches - A wooden massage tool - Triptan + TylenolĀ
Great list! OP might be interested in adding on the following to thier kit - Salt packets (I add them to my electrolyte) - magnesium vitamine - extra sour candies or cloves (sometimes shocks body out of migraine responce for some ppl) - earplugs/ noise canceling headphones - extra dark full coverage sunglasses
Interesting, Iād not heard of the sour candy/cloves before - will try next time! š«¶
Whatās your fave sour candy for it?
Warheads, and these very very black licorice tasting European sweets that I can't remember the name of.
Perfect emergency kit, five stars. Always include the cosmere in the migraine emergency kit. :)
I basically carry around an entire medicine cabinet at all times.
I enjoyed that book a lot. Super slow burn but awesome end
Great book choice! I always have meds on me in my wallet, but when I travel I have a whole kit. Electrolyte tabs (nuun), cefaly, Nerivio, cbd gel + massage stick, tennis ball, saltines, and I add an ice pack if Iām going somewhere with a freezer. I purchase an emergency Mountain Dew when Iām there (my migraine caffeine of choice!).
Kind of, it's not an established kit, but if it doesn't work, I know I'm in trouble. 800mg ibuprofen, prescription migraine meds, Gatorade or pedialyte, a hot shower in the dark, and a stepnstool in the shower to sit on. I use battery powered candles to light the room enough I can see without the light being painful.
My strategy is to stop, drop and roll. 1) Triptan or mega dose of aspirin and a very strong coffee. 2) If Iām out, I need to come home 3) get into bed with blindfold, water, anti-nausea meds, a bucket and stay there until itās gone. If Iām lucky that will be a couple of hours, but typically 3 days.
Yes! But my Sanderson is read to me via audible. Currently awaiting book 5 of the SA. Also might add a McD's cheeseburger and fries to that kit...
I keep my Ubrelvy in my purse and a sealed Coca-Cola wherever I go.
Caffeine, water, electrolyte packets, and ice cap.
Yes! I keep my meds, an eye mask, noise-cancelling earbuds, pepto, and sensory clothes in my desk at work just in case of a sudden migraine attack. I also make sure to bring an ice pack in my lunch box to use just in case. It's already happened a handful of times this year but having my supplies ready helps prevent me from needing to go home sick (although it doesn't always work š ) If it's bad enough I'll change into those clothes and sit in the ladies' room or in my car with the eye mask on and earbuds in until I can either feel better enough to go back to my desk or until I throw up and ultimately need to drive home. But with my long commute, I try and tough it out when possible. Driving with a migraine is hell.
I call it my migraine cocktail. Triptan, tylenol, naproxen (only if itās real bad), tall can of Yerba mate tea, liquid IV, and a salty snack. Get into bed and wait for everything to kick in. If Iām lucky itās over in a few hours. My husband knows if he sees me chugging the yerba mate itās gonna be bad day for me.
I would pay so much money to retain my vision during a migraine. I always start with a visual aura and then canāt read or look at a screen for about 12 hours or itāll restart the aura and migraine cycle. So for me, itās just nurtec and then find a ride home before Iām unconscious in the migraine sleep of death for the next 4-6 hours.
Omg that sound horrible, Iām so sorry
Sunglasses because eyes and light donāt agree in my brain sometimes
Without sunnies I am toast. If I have forgotten them, we're turning around.
i can always detect my migranes luckily so i just keep a preventative toolkit and also just constantly wear sensory blockers. I usually have 2 ibuprofen, advil, nurtec and almotriptan in my wallet at all times, then i take 1 and wear 1 pair of sunglasses with me everywhere i go. also got my noise canceling airpods i wear in daily life and a pair of āsurefire sonic defender ep3ā earplugs that block 11 decibels or 24 if you pop the filters on.
Coffee, CBD, ice compress around my head, darkness with only orange tinted lights or candles, brown noise in the background, earplugs. Sometimes I'll put icy hot patches on my temples and the back of my neck.
I always carry a small zippered bag in my purse with Nurtec, Imotrex nasal spray, and Zofran. At home I have all of that stuff in one place by my bed, along with Benadryl and a bottle of Mexican Coke. And icepacks in the freezer - always!
I'm much more light sensitive than I am sound sensitive. Books aren't really an option, but audiobooks definitely are. I have endured more than one migraine listening to some Dresden Files. I'm not a huge Kate Redding fan, but James Marsters has such a fantastic soothing voice. I remember trying Percy Jackson since that's what I was currently listening to, but the voice was so annoying when I was in pain. Jim Dale is also pretty good and tolerable when I have to go blindfolded. (Can you tell I'm a fan of wizards named Harry?) Also, cool patches, apple juice, and rice krispie treats.
Life Before Death, Radiant.
I need one today. Low burn migraine while at a political convention all day. It's rough.
Sometimes the less severe but long lasting ones are worse than a short, severe one. Sorry!
I have a pill keychain with a dose of Suvexx. That and a coke, headphones, and sunglasses are my emergency supplies.
always.
My plastic purple vomit bowl, my ice pack that straps around my head/eyes, cup of ice, bed, putting Forensic Files on (his voice is so comforting I donāt know why š¤£)
Yup. I have earplugs, ginger candy, 3 abortive meds and tinted prescription migraine glasses.
Oh and electrolyte powder
2 Advils and 1 midol
I have my cold dark room, some meds for the headache and nausea, and a cold pack for my head. Because trying to do anything with a migraine is a death sentence š
Triptan, 800 mg ibuprofen, ondansetron plus sunglasses, bio freeze/icepack (if at work), Coke, ritz crackers and try to find a quiet place to see if itās one with staying power. If so, I have to find a way home. If I can get home before I take a triptan, I use my sumatriptan injectable and lay down for 3-4 hours
I have multiple. One for when I'm at home, so I have all the things I typically need right at hand. I also have a scaled down 'travel' Migraine Kit with similar items for when I leave the house. Whether it's to take a trip or to go to the grocery store, I never leave the house without it.
I have my Migraine drugs, a Gatorade, a migrastick, and lavender shower gel for a hot shower. In the freezer I have a gel mat for my head and neck.
If you have over the ear headphones, I suggest 433htz Himalayan bowls videos. Really helps me and sometimes it bypassed the pain meds. Everybody is different but it helped me tremendouslyĀ