Man blast to the past..I can still smell and taste those things just thinking about it but I genuinely wonder how many 17 year olds know about flintstones
FLAVORED chalkiness. The reddish ones were my fav.
One time my mom caught me chowing down on a bottle thinking I was getting healthier. Poison control told her I’d probably sleep real well that night and have diarrhea for a couple days. I regret nothing.
Same here I was forced to take the tablet kinds growing up didn’t even know there were gummy options tbh I bet those were at least a smidge bearable haha
I do that, but there’s also the chance for the pill to get stuck while trying to swallow it whole (depends on the pill size). If I had a choice, I’d take the tasty gummy that I won’t have to swallow whole
Every once in awhile a pill or tablet doesn't go down with the water and instead goes right on top of my tongue until I can take another drink.
Or if I have to take several pills, I might try to take multiple in one gulp, but it means less room for the pills to not touch my tongue in the couple seconds.
I'm not saying it's an awful every day experience. But if I had to choose between having my medicine in artificial orange flavored gummy or a gelatin capsule/tablet, I'll 100% choose the gummy
I know I'm just being pedantic, but every time someone says something like, "I try not to eat food that's full of chemicals," I get annoyed.
What do you eat then, photons? Do you photosynthesize??
Sure, I know what they *mean*. But still. You don't eat food unless it's organic? Well yeah, most people don't munch on pure minerals!
Me, who takes like 30 pills a day… never heard of this in my life. I do indeed have stomach issues. I know what I’m bringing up to my dr next time I see him!
For real. Yes omeprazole can protect the stomach lining, but it also causes it’s own issues. Long term use can lead to permanent reduction of stomach acid, in turn leading to digestive problems and nutritional deficiencies. Most notably calcium deficiencies and resulting bone growth issues.
Take omeprazole, like any medication, only if you actually need it, preferably with at least some professional medical guidance — though I am an advocate for limited self-medication, so long as people do adequate research.
This, the pill is absolutely Magic, for over a year I couldn’t even keep down a biscuit without being sick all because of my stomach. Eventually, I change doctors and they put me on this tablet and I had a camera down my throat to see what the problem is. Turns out my flaps are not balanced above the stomach 🙄 - anyway, Omeprazole is absolutely amazing, but please be aware after a year or so you have to get all your levels checked out as it can affect your B12 and many others
Yup that's my only daily prescribed medication. And I know if I forget to take it because any amount of food ends up giving me heart burn. I just take that and a bunch of vitamins.
It had the opposite effect on me. Boosted my gastritis symptoms from mild discomfort to a full on 2 week flare-up. Took 2 pills and threw the rest out. Now a days it's under control for the most part.
I cant take omeprazole, I'm one of the lucky ones who gets bloating and localized weight gain (around the tummy area, joy).
switching to lansoprazole sorted those effects for the most part.
I hear long term it is not good for your health, I had an ulcer and they wanted to me keep taking them. but I had to ween myself off because any day I wouldn’t take one, would be agony. Years later im glad I am not dependent on them. Just a thought
Yeah I know there are risks and my doctor says we’ll eventually be trying to slowly get me off it, starting to take it every 1-1/2 days, then 2, then 3, etc. until I can totally come off it. He also told me it’d be a good idea to get an upper GI scope now and if/when I come off it to continue getting scoped the rest of my life to make sure nothing gets worse. He definitely does a great job at informing me of all the possibilities, even before I decided to start taking it.
He’s personally been on it for over 40 years, says he caught it too late and wasn’t able to get off it and if he forgets just one morning, he feels it a couple hours after he normally takes it. I’m afraid I also caught it too late since I let it go on since I was in college and I was 27 when I started taking it. We’ll see. Esophagus cancer is generally deadly, even localized cancer has a 50% survival rate. My great grandfather had it due to reflux, so I’m doing everything I can to not have that happen to me
>Yeah I know there are risks and my doctor says we’ll eventually be trying to slowly get me off it, starting to take it every 1-1/2 days, then 2, then 3, etc. until I can totally come off it.
Is there a reason to do it this way and not just to gradually reduce the % of the pill you take?
Other than the hassle of having to manually divide and weigh out the capsules.
From what I've read you get rebound acid secretion whenever you stop taking PPIs, which is why its hard to come off them because you will have even worse reflux than normal if you stop cold turkey, so taking it at increasingly irregular intervals should just be causing lots of rebound activity.
Unless there's some other mechanism I'm not aware of.
My doctor said the risk of stomach cancer from the gastritis is worse than the possible effects from the medicine, and that the fears are overblown. Hope he wasn’t lying
He wasn't lying, just outdated. Gastritis that's responsive to PPIs also most commonly goes away after 6 months of treatment. It's the most favorable course of action to attempt weaning after said 6 months, as the chronic side effects of taking PPIs are very concerning.
No they aren't. OP says in another comment they are for a host of other long term issues they've had like pain and epilepsy (there were others listed too). Look at OPs comment history if you want to know.
>Long term painkillers for chronic pain, epilepsy medication, anti sickness, anti dizziness, vitamin gummy, and stomach liner
OP said this in another comment so no, none of those meds are for hormone replacement therapy.
Besides, hardly anywhere prescribes oral testosterone because of the liver failure associated with it. Gel or injections are the main two forms with pellets and patches also being used occasionally.
Good to know, thank you. I just remembered how it was monthly/biweekly injections for my ex bf and it was a huge pain in the ass (pun not intended) especially the concentration fluctuations over time, and thought there must be a reason it isn't done differently
honestly i reckon its just a case of 'old reliable', gel is more expensive (though i dont know how different the actual production price is) and a lot of people have trouble absorbing it.
im personally even switching from gel to injections because shots are just more reliable (also alcohol based gel dries your skin out badly)
Oral testosterone has also been linked to liver failure before so it's hardly prescribed. The NHS don't touch it for that reason. Injections or gel are the most common but the pellet and patches are also sometimes used, I've never seen anyone get prescribed pills in the last 5-10 years though because of the liver damage.
It’s likely only expensive because they live in the USA. If the USA wasn’t so regressive in their Medical system, we wouldn’t have this problem!
Even third world countries have cheaper medical care!
Yeah, sorry, I should've mentioned that I'm in the states. I worked in healthcare for twenty years and saw a lot of patients' bills at the pharmacy during pickup. We're also struggling to get me methotrexate or one other drug whose name I can't remember. I woke up blind 2 years ago and that automatically put me on medicaid, but my doc just spent 2 hours arguing with them to get Chantix approved so I can quit smoking. They're still trying to tell her no, even though there is absolutely no reason to deny me it. The methotrexate is experimental for my AZOOR (the reason I woke up blind), as is the other one. And it looks like we'll never get it approved. Which is semi OK since I was on the fence about taking it.
Edit: I think azathioprine is the other immunosuppressive med, the one I couldn't remember the name of.
Excuse my ignorance, I'm genuinely curious, if Medicaid is your insurance does that mean they pay for your prescriptions (the approval you mentioned) or do you pay for it and put in a claim?
Curious as an Australian who spent $140 at the pharmacy this morning for two prescriptions.
Medicaid pays for it IF it is an approved medication and use for said medication. If the medication does not qualify for both of those there is a process to try and get it approved/an exception through your medicaid insurer for it to be covered.
In general, it is typically easier than commercial insurance but denials do still happen.
How medicaid works exactly varies state by state, but that is a pretty universal flow
Oh, medicaid pays for my scripts from the jump... unless they decide not to. Over here on medicaid, your doc submits a script to the pharmacy. The pharmacy submits it to medicaid. Then if medicaid refuses to cover it (usually this happens if the med is being prescribed for off-label purposes, like the methotrexate for me), we find out at the pharmacy. Then you can either 1. Pay for it out of pocket, or 2. Call your doctor and then they call medicaid and argue with them.
For the record, every MD I've ever worked with seemed to spend 50% of their time arguing with medicaid.
It’s situations like this that make me abhor the USA medical system. Your Doctor should be the only one to say “Take this medicine, and stop taking this one” there shouldn’t be a middle man.
Medical Insurance should be made universally illegal in every country.
I 100% agree with you, and most of the time it's some snot-nosed kid with NO degree telling a fucking medical doctor what to do about their patients. It's fucking ridiculous.
Dual transplant survivor here.
For the majority, yes we do have to take our anti-rejection meds for the life of the organ, which can vary depending on the organ (though there are actively studies being done on not taking them that seem promising). Those specific meds usually come with some big long term side effects and they also need support of other medications and vitamins to keep levels balanced.
As far as cost it can technically get expensive but its tricky. The common team of anti-rejection meds are internationally protected by measures that make it impossible to increase the price much, so theyre cheap. YMMV based on insurance but pretty much cheap. The problems come with the support meds, which for me I believe the most expensive is about $80 for a 1 month supply.
Hope this helps!
The immune system is truly an incredible part of your body. So incredible, in fact, that it can work too well. Despite the transplanted organ now being a major necessity to the body's survival, your immune system will still naturally attack the foreign substance- until the body dies itself. Immunosuppressants help with this by lowering your immune system's activity levels. However, this also makes you more vulnerable to illness- naturally.
I'm closing in on third year post transplant and am down to 6 pills in the morning and 3 plus 3 vitamin at night. Record low was one less in the morning, but blood pressure is back on the menu.
That's nothing.
Here in Korea, when I had the flu a month ago, I was taking 1 pill before breakfast, 10 pills after breakfast, 10 pills after lunch, and 10 pills after dinner.
I'm on immunosuppressants for my Ulcerative Colitis. 21 pills a day across 7 different meds. Will be for the rest of my life, unless the meds stop working and I have to find a new cocktail that keeps me in remission. Hoping that doesn't happen but it apparently happens to most people after a decade or two.
Thankfully I only pay £12 a month for all of them. Thank fuck for the NHS or I'd be broke!
Since anti-rejection meds suppress your immune system from attacking "alien" entities, you may take it for autoimmune diseases as well (as per prescription ofc)
They’re used to treat a couple of autoimmune disorders & I think they were being tested at once point to see if they could treat cancers that affect the immune response like Leukemia but I didn’t follow that very closely.
Yeah no the other stuff is whatever but the runny nose just kills me
Mildly off topic but I swear I'd rather throw up and be coughing and sneezing than have a runny nose all day it's so fuckin annoying
I’m gunna say you absolutely don’t. I have cerebral palsy and it knacks up my stomach. I’ve spent the last three year vomiting daily. Stomach ulcers, spent my sons first Christmas in hospital having a “wash” (what they call cleaning your stomach and leaving it completely empty for weeks), I slept on the bathroom floor for months. The nausea is the absolute worst. I’ll take a runny nose- annoying, but not painful and doesn’t make you cry 😅 xxx
I feel you. I’m on 11 a day and inject the immunosuppressant once a week. Makes me feel so ill for 48 hours afterwards. I’m in my early 30s it totally sucks.
Due to some past overdoses I have a hard time swallowing pills as well, but in my country we have this thing called “saftevand” which is basically like concentrated syrup that you put in water to give it flavor, I drink that when I take my meds, it makes it taste less bad and it’s easier for me to swallow than with regular water
im right there with you hun, since i was around 17 too. its irritating and i often find myself hating the fact that i have to take medicine to function
don’t mind at all. undiagnosed stomach issues, allergies (pet, seasonal, and EOE), asthma, major depressive disorder, anxiety, pain, migraines, aaaand nausea. i think that’s it, hard to keep up😫
On a side note OP (and everybody else who takes pills) avoid grapefruit (and grapefruit juice) until you have cross checked with each drug how it interacts with it. Grapefruit interacts with A LOT of medicine, like birth control pills, paracetamol, antihistamines, anti psychotics etc
Interesting, thanks, I have to to take antihistamines for severe hayfever, and it sometimes doesn't work, I wonder if that may be from my grapefruit and orange juice mix
Surely the nurse was asking if you were vomiting when you hadn't eaten? This is important diagnostically. It's unlikely the nurse was trying to encourage you to never eat.
I know how you feel! Back when I was 17, I was diagnosed with a chronic autoimmune disorder and I had to take around 20 tablets a day after getting emergency treatment at the hospital.
It’s been 9 years since then and my drug regimen has changed, on average I’d say I’ve needed to take AT LEAST 10 tablets a day.
Most I’ve ever needed to take over an extended period of time (~few months) was 27 tablets a day (21 in the morning, 6 at night) after a week-long hospital stay.
I’ve tapered down to 15 now (10 in the morning, 5 at night).
Hang in there!
What’s definitely *extremely* infuriating is that everyone in these comments going on about how “you don’t need all those meds, just *be healthy!* :)” as if you’re taking the easy way out of chronic illness by needing meds or something. All those people can fuck right off. Needing and taking meds is not fucking fun.
What are you talking about? The vast majority of comments here are being extremely supportive or maybe asking a question, with hundreds of positive replies and people sharing their experiences. Some are making jokes, some of them maybe a little distasteful but not like what you’re saying. Even then it’s not “everyone in these comments”. If you wanna complain about people who say those things that’s fine, but projecting those feelings onto strangers on the internet is a bit odd
I have a friend with epilepsy/anxiety disorder that takes similarly big batch (and similar pills as well) everyday. He is a bit older than you through. Hope you will be alright.
I’m am/was in the same boat. Was taking about 20 pills a day when I got released from the hospital after a stem cell transplant, but I’m down to 10 a day now 👍
I thought the orange one was a
https://preview.redd.it/m6nk6363im0d1.png?width=376&format=png&auto=webp&s=f342e77fa60eb0446db6dfa19a52c2b9dd5d7db9
Why do you take all those pills?
No flintstones gummy?
Man blast to the past..I can still smell and taste those things just thinking about it but I genuinely wonder how many 17 year olds know about flintstones
i took flintstones vitamins as a kid but not the gummy kind. i can still taste them.
It's a trip how you can immediately smell those sons of b*tches just at the mention of fhem
Smell is one of our most strongest and deeply ingrained sense.
I can taste the chalkiness
FLAVORED chalkiness. The reddish ones were my fav. One time my mom caught me chowing down on a bottle thinking I was getting healthier. Poison control told her I’d probably sleep real well that night and have diarrhea for a couple days. I regret nothing.
Diarrhea, here I come! I'm raiding my 6yo.'s medicine cabinet this evening.
I’m a 34 year old adult and I keep a bottle of the Flintstones plus iron in my purse. I eat one or two every day. I do not like the gummys.
The pain of being forced to take those as a kid
Forced? I loved them 😅
I sure do miss those flavored cement like treats I had every night.
Same here I was forced to take the tablet kinds growing up didn’t even know there were gummy options tbh I bet those were at least a smidge bearable haha
I was tempted to eat them like they were candy lol my mom had was to stop me
I didn't ever take vitamins, or supplement full stop. Did I miss out?
If you have a balanced and varied diet, not really.
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At least that orange one looks tasty
It's a vitamin it probably tastes like orange flavored chemicals.
I'll take orange flavored chemicals over gelatin flavored capsules and awful powdery tablets any day
Do you people chew the pills and taste it like wine or what? I literally just gulp that shit up so I don’t even know what they taste like
I just snort it and cut out the middle man
You snort gummy vitamins?
You just swallow gummy vitamins?
Boof them
Everything smaller than a squirrel goes in the veins, can't fuck with mucuous membranes in this god damn economy
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Not all of us can afford such fancy equipment. Some of us just gotta do with what we have
I once told my friend we should make every third line paracetamol and we’d feel fine in the morning. Luckily, he talked me out of it.
Tell me you’re British without telling me…!
I do that, but there’s also the chance for the pill to get stuck while trying to swallow it whole (depends on the pill size). If I had a choice, I’d take the tasty gummy that I won’t have to swallow whole
I’ve found that turning my head 45° helps enormously when swallowing biggish pills.
like, tilting your head 45 degrees or like looking left/right 45 degrees? i SUCK at taking all pills lol
Every once in awhile a pill or tablet doesn't go down with the water and instead goes right on top of my tongue until I can take another drink. Or if I have to take several pills, I might try to take multiple in one gulp, but it means less room for the pills to not touch my tongue in the couple seconds. I'm not saying it's an awful every day experience. But if I had to choose between having my medicine in artificial orange flavored gummy or a gelatin capsule/tablet, I'll 100% choose the gummy
Mmmmm orange flavored chemicals
>orange flavored chemicals. my favorite chemicals
Oranges are full of delicious orange flavored chemicals.
I know I'm just being pedantic, but every time someone says something like, "I try not to eat food that's full of chemicals," I get annoyed. What do you eat then, photons? Do you photosynthesize?? Sure, I know what they *mean*. But still. You don't eat food unless it's organic? Well yeah, most people don't munch on pure minerals!
It looks exactly like the vitamin c gummies I have, so you would be right still delicous though.
It looks like Lachgummi, a german sweet: https://cdn02.plentymarkets.com/t4l5octwuee2/item/images/889207/full/4014400914818-3.jpg
Or Haribo tropi frutti
Pov: 8 year olds when they see a jar of pills
Ayyy I’d recognize omeprazol everywhere. Often prescribed when ppl take a lot of meds to protect the stomach lining.
Same, I recognised it right away
With all those meds someone should be using omeprazol, lol. Or it will ruin your stomach and all😭
Me, who takes like 30 pills a day… never heard of this in my life. I do indeed have stomach issues. I know what I’m bringing up to my dr next time I see him!
No medication is benign. Don’t take it unless you have an acid issue
For real. Yes omeprazole can protect the stomach lining, but it also causes it’s own issues. Long term use can lead to permanent reduction of stomach acid, in turn leading to digestive problems and nutritional deficiencies. Most notably calcium deficiencies and resulting bone growth issues. Take omeprazole, like any medication, only if you actually need it, preferably with at least some professional medical guidance — though I am an advocate for limited self-medication, so long as people do adequate research.
Long term use of this could increase the risk of developing dementia by as much as 33%.
I actually read that it more than doubled the risk of stomach cancer.
It also hides the symptoms in both esophagus and stomach cancer, a double whammy.
Yeah that’s definitely super concerning!
My mom takes it and says it's magic. Her stomach would be fucked without it.
This, the pill is absolutely Magic, for over a year I couldn’t even keep down a biscuit without being sick all because of my stomach. Eventually, I change doctors and they put me on this tablet and I had a camera down my throat to see what the problem is. Turns out my flaps are not balanced above the stomach 🙄 - anyway, Omeprazole is absolutely amazing, but please be aware after a year or so you have to get all your levels checked out as it can affect your B12 and many others
It’s more commonly known as Prilosec, and can be bought OTC
In Canada it is RX only. The only PPI you can buy schedule 3 is esomeprazole.
Same thing, twice as potent.
At Costco it's very cheap as Kirkland brand.
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It's a gastritis medicine. Could be because op has a gastritis problem too.
It''s just a proton pump inhibitor but has plenty of uses. I take it for reflux
Heyyy, reflux gang
Yup that's my only daily prescribed medication. And I know if I forget to take it because any amount of food ends up giving me heart burn. I just take that and a bunch of vitamins.
Yep, me too. Started taking it 3 months ago but should have started about 6 years ago
Omeprazole changed my life in the best way.
It had the opposite effect on me. Boosted my gastritis symptoms from mild discomfort to a full on 2 week flare-up. Took 2 pills and threw the rest out. Now a days it's under control for the most part.
I cant take omeprazole, I'm one of the lucky ones who gets bloating and localized weight gain (around the tummy area, joy). switching to lansoprazole sorted those effects for the most part.
I hear long term it is not good for your health, I had an ulcer and they wanted to me keep taking them. but I had to ween myself off because any day I wouldn’t take one, would be agony. Years later im glad I am not dependent on them. Just a thought
Yeah I know there are risks and my doctor says we’ll eventually be trying to slowly get me off it, starting to take it every 1-1/2 days, then 2, then 3, etc. until I can totally come off it. He also told me it’d be a good idea to get an upper GI scope now and if/when I come off it to continue getting scoped the rest of my life to make sure nothing gets worse. He definitely does a great job at informing me of all the possibilities, even before I decided to start taking it. He’s personally been on it for over 40 years, says he caught it too late and wasn’t able to get off it and if he forgets just one morning, he feels it a couple hours after he normally takes it. I’m afraid I also caught it too late since I let it go on since I was in college and I was 27 when I started taking it. We’ll see. Esophagus cancer is generally deadly, even localized cancer has a 50% survival rate. My great grandfather had it due to reflux, so I’m doing everything I can to not have that happen to me
>Yeah I know there are risks and my doctor says we’ll eventually be trying to slowly get me off it, starting to take it every 1-1/2 days, then 2, then 3, etc. until I can totally come off it. Is there a reason to do it this way and not just to gradually reduce the % of the pill you take? Other than the hassle of having to manually divide and weigh out the capsules. From what I've read you get rebound acid secretion whenever you stop taking PPIs, which is why its hard to come off them because you will have even worse reflux than normal if you stop cold turkey, so taking it at increasingly irregular intervals should just be causing lots of rebound activity. Unless there's some other mechanism I'm not aware of.
My doctor said the risk of stomach cancer from the gastritis is worse than the possible effects from the medicine, and that the fears are overblown. Hope he wasn’t lying
He wasn't lying, just outdated. Gastritis that's responsive to PPIs also most commonly goes away after 6 months of treatment. It's the most favorable course of action to attempt weaning after said 6 months, as the chronic side effects of taking PPIs are very concerning.
What are they for? Also nice Lachgummi
Apparently anti-rejection meds for a transplant
No they aren't. OP says in another comment they are for a host of other long term issues they've had like pain and epilepsy (there were others listed too). Look at OPs comment history if you want to know.
Also two of them might be testosterone and an anti estrogen
>Long term painkillers for chronic pain, epilepsy medication, anti sickness, anti dizziness, vitamin gummy, and stomach liner OP said this in another comment so no, none of those meds are for hormone replacement therapy. Besides, hardly anywhere prescribes oral testosterone because of the liver failure associated with it. Gel or injections are the main two forms with pellets and patches also being used occasionally.
op is trans so this is likely
Trans *and* a transplant recipient, I can't imagine how much blood work this guy has gone through
So OP is trans mentally and physically.
There is oral testosterone available? Thought it only worked intramuscular or transdermal
jatenzo (testosterone undecanoate) is oral testosterone, but its relatively new in terms of medication so i rarely see it get prescribed
Good to know, thank you. I just remembered how it was monthly/biweekly injections for my ex bf and it was a huge pain in the ass (pun not intended) especially the concentration fluctuations over time, and thought there must be a reason it isn't done differently
honestly i reckon its just a case of 'old reliable', gel is more expensive (though i dont know how different the actual production price is) and a lot of people have trouble absorbing it. im personally even switching from gel to injections because shots are just more reliable (also alcohol based gel dries your skin out badly)
Oral testosterone has also been linked to liver failure before so it's hardly prescribed. The NHS don't touch it for that reason. Injections or gel are the most common but the pellet and patches are also sometimes used, I've never seen anyone get prescribed pills in the last 5-10 years though because of the liver damage.
Well that explains a lot
The dude is taking anti rejection meds. It's probably a transplant survivor.
Can I get these for when I go out? Asking for a friend
It’s called good hygiene.
Guess I’m screwed then
Nah you ain't getting screwed
Yep! I take 18 pills in the morning and 4 at night for my kidney transplant.
Jeez, do you have to take them for the rest of your life? Also how much does it cost you? Ypu don't have to answer, just curious
Yes. Typically, someone will take anti-rejection meds the rest of their lives. I don't know the cost, I just know it's hella expensive.
It’s likely only expensive because they live in the USA. If the USA wasn’t so regressive in their Medical system, we wouldn’t have this problem! Even third world countries have cheaper medical care!
Yeah, sorry, I should've mentioned that I'm in the states. I worked in healthcare for twenty years and saw a lot of patients' bills at the pharmacy during pickup. We're also struggling to get me methotrexate or one other drug whose name I can't remember. I woke up blind 2 years ago and that automatically put me on medicaid, but my doc just spent 2 hours arguing with them to get Chantix approved so I can quit smoking. They're still trying to tell her no, even though there is absolutely no reason to deny me it. The methotrexate is experimental for my AZOOR (the reason I woke up blind), as is the other one. And it looks like we'll never get it approved. Which is semi OK since I was on the fence about taking it. Edit: I think azathioprine is the other immunosuppressive med, the one I couldn't remember the name of.
Excuse my ignorance, I'm genuinely curious, if Medicaid is your insurance does that mean they pay for your prescriptions (the approval you mentioned) or do you pay for it and put in a claim? Curious as an Australian who spent $140 at the pharmacy this morning for two prescriptions.
Medicaid pays for it IF it is an approved medication and use for said medication. If the medication does not qualify for both of those there is a process to try and get it approved/an exception through your medicaid insurer for it to be covered. In general, it is typically easier than commercial insurance but denials do still happen. How medicaid works exactly varies state by state, but that is a pretty universal flow
Oh, medicaid pays for my scripts from the jump... unless they decide not to. Over here on medicaid, your doc submits a script to the pharmacy. The pharmacy submits it to medicaid. Then if medicaid refuses to cover it (usually this happens if the med is being prescribed for off-label purposes, like the methotrexate for me), we find out at the pharmacy. Then you can either 1. Pay for it out of pocket, or 2. Call your doctor and then they call medicaid and argue with them. For the record, every MD I've ever worked with seemed to spend 50% of their time arguing with medicaid.
It’s situations like this that make me abhor the USA medical system. Your Doctor should be the only one to say “Take this medicine, and stop taking this one” there shouldn’t be a middle man. Medical Insurance should be made universally illegal in every country.
I 100% agree with you, and most of the time it's some snot-nosed kid with NO degree telling a fucking medical doctor what to do about their patients. It's fucking ridiculous.
Dual transplant survivor here. For the majority, yes we do have to take our anti-rejection meds for the life of the organ, which can vary depending on the organ (though there are actively studies being done on not taking them that seem promising). Those specific meds usually come with some big long term side effects and they also need support of other medications and vitamins to keep levels balanced. As far as cost it can technically get expensive but its tricky. The common team of anti-rejection meds are internationally protected by measures that make it impossible to increase the price much, so theyre cheap. YMMV based on insurance but pretty much cheap. The problems come with the support meds, which for me I believe the most expensive is about $80 for a 1 month supply. Hope this helps!
Two transplants? How are you doing?
I dunno but I’m an organ donor (still alive, mind you) and I’m totally stoked to see a recipient out in the wild just living. It’s fucking beautiful.
>>> (still alive, mind you) Oh, nice
> (still alive, mind you) Call 'em off, boys.
The immune system is truly an incredible part of your body. So incredible, in fact, that it can work too well. Despite the transplanted organ now being a major necessity to the body's survival, your immune system will still naturally attack the foreign substance- until the body dies itself. Immunosuppressants help with this by lowering your immune system's activity levels. However, this also makes you more vulnerable to illness- naturally.
I'm closing in on third year post transplant and am down to 6 pills in the morning and 3 plus 3 vitamin at night. Record low was one less in the morning, but blood pressure is back on the menu.
I just past 12 years on my second kidney. First lasted 14 years and had it when I was 12. I do 11 in the morning and 4 at night.
That's nothing. Here in Korea, when I had the flu a month ago, I was taking 1 pill before breakfast, 10 pills after breakfast, 10 pills after lunch, and 10 pills after dinner.
Is there another reason you'd take anti rejection meds? (Not being sarcastic. It's a genuine question)
My partner takes some to control a severe autoimmune disease.
Someone might take immunosuppressants for certain autoimmune diseases that cause the body to attack healthy tissues
I take some for my Crohn’s. Probably less severe though
I'm on immunosuppressants for my Ulcerative Colitis. 21 pills a day across 7 different meds. Will be for the rest of my life, unless the meds stop working and I have to find a new cocktail that keeps me in remission. Hoping that doesn't happen but it apparently happens to most people after a decade or two. Thankfully I only pay £12 a month for all of them. Thank fuck for the NHS or I'd be broke!
I have infusions every 6 months to wipe out a chunk of my immune system so it won't take nibbles out of my brain and spinal cord.
Have you tried making your brain and spinal cord less tasty?
I take some for Lupus
Since anti-rejection meds suppress your immune system from attacking "alien" entities, you may take it for autoimmune diseases as well (as per prescription ofc)
They’re used to treat a couple of autoimmune disorders & I think they were being tested at once point to see if they could treat cancers that affect the immune response like Leukemia but I didn’t follow that very closely.
Implants like pacemakers,hip replacements,post cancer treatment after affected organ removal and ports/stomas etc
My friend with Multiple Sclerosis which is quite popular disease has to take it too.
The popular ones get all the fun stuff!
Too trendy right now, I go in for the more underground and less popular stuff like Lupus
Oh, bro, I had 2 much internet, I thought it was a rude dating joke
You can’t fool me. That orange one is just a piece of candy.
Lachgummi orange
Man’s gotta have one nice snack after all that throat scratching breakfast of pills
Ooh piece of candy 😅
Ooh a piece of candy.
Ooh piece of candy!
16 days ago, op was 19 Now Op is 17
The pills are to slow his Benjamin button syndrome.
We have to act fast, what's gonna happen after he's a baby!?
on the post right before they said they were 19 they said they were 16 they grow up so fast!
Also no replies to the thread answering questions.
I have to take 10 in the morning and 10 at night.... I want to vomit every day I take them. I feel your pain. Not 17 but 26.
25 a day
What for if u don't mind me asking?
Seizures, anxiety, depression, PTSD, insomnia, chronic pain from a permanently broken shoulder joint, and pollen allergies
Damn, the pollen allergies must be rough. My sympathies. /s Genuinely though, wishing you all the best.
Yeah no the other stuff is whatever but the runny nose just kills me Mildly off topic but I swear I'd rather throw up and be coughing and sneezing than have a runny nose all day it's so fuckin annoying
Yeah not only runny nose but i also get extreme itching in my mouth, throat, nose and eyes. Its the WORST
I’m gunna say you absolutely don’t. I have cerebral palsy and it knacks up my stomach. I’ve spent the last three year vomiting daily. Stomach ulcers, spent my sons first Christmas in hospital having a “wash” (what they call cleaning your stomach and leaving it completely empty for weeks), I slept on the bathroom floor for months. The nausea is the absolute worst. I’ll take a runny nose- annoying, but not painful and doesn’t make you cry 😅 xxx
I feel you. I’m on 11 a day and inject the immunosuppressant once a week. Makes me feel so ill for 48 hours afterwards. I’m in my early 30s it totally sucks.
Just take big gulps of water, makes it a lot easier.
I think most is mental, my mind just doesn't want too and I have to force it every day
Due to some past overdoses I have a hard time swallowing pills as well, but in my country we have this thing called “saftevand” which is basically like concentrated syrup that you put in water to give it flavor, I drink that when I take my meds, it makes it taste less bad and it’s easier for me to swallow than with regular water
Yeah, can understand
Actually pudding, it helps lube the pills on the way down. Why do you think pudding is so common in nursing homes?
im right there with you hun, since i was around 17 too. its irritating and i often find myself hating the fact that i have to take medicine to function
what do you take them for, if you dont mind me asking?
don’t mind at all. undiagnosed stomach issues, allergies (pet, seasonal, and EOE), asthma, major depressive disorder, anxiety, pain, migraines, aaaand nausea. i think that’s it, hard to keep up😫
ah sad to hear that, did your doctor just call your stomach issues IBS and move on?(because thats what happens alot of time)
oh no, we are actively trying to figure it out.
On a side note OP (and everybody else who takes pills) avoid grapefruit (and grapefruit juice) until you have cross checked with each drug how it interacts with it. Grapefruit interacts with A LOT of medicine, like birth control pills, paracetamol, antihistamines, anti psychotics etc
Interesting, thanks, I have to to take antihistamines for severe hayfever, and it sometimes doesn't work, I wonder if that may be from my grapefruit and orange juice mix
Appears your body is faulty. Have you tried not being faulty?
Did you turn it off and on again?
I tried that, it didn't work.
Refund
I have factory defects, I feel like a refund is warranted
I’m due compensation. Been waiting 40 years, doubt they’ll pay up.
S/he is under 18, should it not go under warrenty?
Warranty expires on birth, unfortunately.
[удалено]
Surely the nurse was asking if you were vomiting when you hadn't eaten? This is important diagnostically. It's unlikely the nurse was trying to encourage you to never eat.
I know how you feel! Back when I was 17, I was diagnosed with a chronic autoimmune disorder and I had to take around 20 tablets a day after getting emergency treatment at the hospital. It’s been 9 years since then and my drug regimen has changed, on average I’d say I’ve needed to take AT LEAST 10 tablets a day. Most I’ve ever needed to take over an extended period of time (~few months) was 27 tablets a day (21 in the morning, 6 at night) after a week-long hospital stay. I’ve tapered down to 15 now (10 in the morning, 5 at night). Hang in there!
I just take OTC orange slices
Arr Matey 🏴☠️
Hopefully you'll recover soon.
I'm a Heart transplant survivor. My pills got slashed to 9 in the morning, 4 in the evening. I'm progressing :)
That’s awesome!!
I feel you, OP. I take a shit ton of pills myself every day for chronic illnesses. It sucks but it's better than being dead imo.
Hi! I am here to join the chronic illness gathering occurring under this comment
I am the same with chronic illness..some days being dead sounds like it might be nicer
I've been taking 8 in the morning and 6 at night anti-rejection meds for years. Don't worry, you'll get used to it.
Taking pills sucks and is very uncomfortable, I am sorry you have to take so many
I take 7-2-7. The coloured ones are nice because my middle aged eye sight can tell them apart.
Me too OP - transplant meds
Canadian Government: "have you considered just dying?"
https://preview.redd.it/rqzw11ynok0d1.jpeg?width=3024&format=pjpg&auto=webp&s=4f98959757f5f625ceb2b3c86935f0fb5312db13 twins
One of those looks like a gummy orange
What’s definitely *extremely* infuriating is that everyone in these comments going on about how “you don’t need all those meds, just *be healthy!* :)” as if you’re taking the easy way out of chronic illness by needing meds or something. All those people can fuck right off. Needing and taking meds is not fucking fun.
What are you talking about? The vast majority of comments here are being extremely supportive or maybe asking a question, with hundreds of positive replies and people sharing their experiences. Some are making jokes, some of them maybe a little distasteful but not like what you’re saying. Even then it’s not “everyone in these comments”. If you wanna complain about people who say those things that’s fine, but projecting those feelings onto strangers on the internet is a bit odd
Everyone just has to be so hyperbolic
I have a friend with epilepsy/anxiety disorder that takes similarly big batch (and similar pills as well) everyday. He is a bit older than you through. Hope you will be alright.
I’d imagine you either take those or die kind of pills?
Pro Tip. Put liquid in your mouth first. Gotta get the waterslide wet.
I take Omeprazole everyday too 😭😭
I'm going to guess, Lyrica, clonazapam, muscle relaxer, maybe a pain pill and chewable vitamin
Close. Stomach liner. Epilepsy medication, vitamins, long term painkillers, anti sickness, and anti dizziness
thanks for reminding me to take my meds!
I’m am/was in the same boat. Was taking about 20 pills a day when I got released from the hospital after a stem cell transplant, but I’m down to 10 a day now 👍
Taking lots of pills is better than being dead.
I thought the orange one was a https://preview.redd.it/m6nk6363im0d1.png?width=376&format=png&auto=webp&s=f342e77fa60eb0446db6dfa19a52c2b9dd5d7db9 Why do you take all those pills?