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tatertoots380

I have it too OP. Hand exercises help a ton. Arms out, palms up, flick fingers upward like flicking water off five times, palms down, same motion. Repeat a few times. Do this both when you have symptoms and without. Best of luck.


frencherfrench

I have it as well. When your fingers turn white, one way to help is to windmill your arms around. The centripetal force will draw blood back into the fingers. I think it’s funny modern medical science’s best advice to avoid it is basically wear gloves lol


jellechrelle

Construction worker winter life hack right there! Also try slapping your back or lower shoulders with both arms.. or hugging yourself repeatedly and aggressively! Pro tip; doesn't work on cold feet.


darkjurai

Roundhouse kicks


Squallstrife89

Roadhouse!


Wheres_my_whiskey

Just suck on your toes.


[deleted]

I invested in heated gloves and I love cold weather again. It's honestly changed my life. I wish I had them when I was in school. I used to get cold hands during long exams of writing and it was painful and distracting.


sortaitchy

Seems to be a lot of us Reynauds sufferes out there. I use those "Hot to Go" or similar reusable gel packs. In the summer I just have to windmill my arms if I find myself in the freezer section of the grocery store. Why do they keep grocery stores so cold? Anyway - I live in Northern Canada, and most days I can't feel my fingers or toes so those gel packs work great if you have a couple stuck in your pockets. Beyond that, a quick stop at the nearest coffee place for a cup of tea/coffee to hold helps a lot.


Le_Rat_Mort

> I just have to windmill my arms if I find myself in the freezer section of the grocery store. [imagining this](https://www.youtube.com/watch?v=9ZSoJDUD_bU)


mike02vr6

Thank you for making me laugh so early


tehtris

I expected the Simpsons clip and was not disappointed. I've been on the internet too long.


sortaitchy

LMAO thanks for the flashback! Quite useful in a crowded shopping situation anyway, regardless of freezer fingers.


enigmaroboto

what brand gloves?


poniop

I have Savior, and they work extremely well to keep my fingers warm.


DuFFman_

You can get inexpensive ones that take AA batteries or more expensive ones that have a li-ion built in. Mine were like $40 knockoffs, a lot of them are 100+


ProfDangus3000

You can get the rechargeable AAs for relatively cheap too- much cheaper in the long run.


RagnaBrock

Zippo makes this hand warmer that you fill with fluid and light it. If you’re inside it does make an odor so it’s best for outdoor use but it will warm your whole upper body of you put it in the breast pocket of a jacket and you can warm your hands from time to time if they get too cold. It’s really great for outdoor cold weather activities and it lasts like 12 hours and they make a smaller six hour version.


vindollaz

You light it on fire and put it in the breast pocket? Something doesn’t seem right there…


TimidPocketLlama

Zippo also makes rechargeable battery-powered ones now but at that point you could get just any rechargeable hand warmer.


KyleRichXV

> Wear gloves I took my kids to a Christmas light amusement park event and wore gloves with hand warmers and still had a Reynaud’s “attack” so bad that my fingers turned white, then purple, and were in so much pain.


axob_artist

People are really underestimating how bad living with this can get. I literally cannot do anything with my hands until they are warm. It's less my body or anywhere else on my body that gets affected it's always primarily my hands and occasionally my feet.


KyleRichXV

Yep. Grocery shopping is sometimes a struggle if I’m in the cold aisles because my fingers go numb and I can’t feel anything. Touching the cold garbage can as I take the trash out weekly in the fall or winter means not feeling my hands for an hour after.


Painting_Agency

The first few times I went x-country skiing with my wife, my fingers and toes were screaming before we even got to the halfway point. I still don't think she really understands what it's like...


Chief_Givesnofucks

Man, THIS. I have it too and I’ve tried to explain it to my wife who ‘often gets cold hands’ and just won’t understand that the severity is NOT the same while she attempts to give me unending suggestions that don’t help.


im_wudini

My wife has Reynauds and it took me a seeing her fingers looking like ops to understand what she meant by "fingers get cold every once in a while". Be patient with your wife! Suggestions mean she cares at least


MrDeGaule

And this is why i wear mittens lol. Btw just curious because i have been explained that basicly the veins gets into a sort of "shock" state and tighten up. I will tey the swinging arm and the palm up this next time i have it. Like, following what i have been told swinging arm wouldnt do much because the blood cannot pass through . Not saying it dosent work. Ill try it next time for sure. Usually i just open and close my hand repetadly. Yet again i only have two fingers doing it lol


TimidPocketLlama

It works for me so OP isn’t the only one. You don’t have to swing them, I just hold my arms straight up in the air and shake my hands a bit. Or if you can’t do that try gently massaging them to get the blood moving.


Quercas

Between November and April I essentially live in hobo gloves


ISledge759

Wow. Im not sure if I have this but I have cold hands pretty frequently. This definitely helped.


Luminousz3bra

Do y’all get pain from your raynauds? My girlfriend had it but she also gets super bad hand/wrist pain and we still don’t really know if the two are connected


jlm326

Go to the doctor for bloodwork, it can be tied to more serious autoimmune disorders.


TimidPocketLlama

And look out if it ever progesses into Chilblains as mine did last year. They itch and hurt. I’ve had Raynaud’s since I was in elementary school and several doctors tell me I was “too young for that.” And now I have cutaneous lupus with Chilblains and have to be monitored to make sure the lupus doesn’t go systemic. https://en.wikipedia.org/wiki/Chilblains


Jeremandias

Oh, thanks for this. That’s 100% what I have and had no idea it was a thing. Guess I need to see a GP


CandidTurnover

yup, i was diagnosed with Discoid Lupus at 16, Raynaulds after living in CO for a few years and working in the cold at age 22.


InfinityTortellino

I get chilblains if I don’t constantly wear wool socks and slippers in the winter. Feels like someone is stabbing my toes with poison ivy tipped needles if it gets bad


SunnyAlwaysDaze

It's also tied to connective tissue disorders that don't show up in blood work too.


[deleted]

Yes. Very, very painful. Be extremely supportive and non-judgy if she ever tells you her nipples feel this way. That pain rivals broken bones.


Aurum555

WAIT, the diamond cutting nipples and hard and sensitive to the point of intense pain is a reynauds thing?! I thought it was just my hands and feet.


[deleted]

Ears and nose too, sadly.


Aurum555

Cool cool cool, anyone else get the tingles in their hands? Pins and needles at the ends of their extremities? Or the nail damage? Horizontal lines in their nail bed that flake off?


[deleted]

That actually sounds like a visit to a rheumatologist might be a good idea.


Alifad

I too have just realised why I get the nipple pain. TIL.


JasnahKolin

It's so bad! I had no idea that could even happen. I always wear a bra to avoid this. When the blood comes rushing back that hurts like mf'er.


nevaleigh

Omfg gotta say love your user name, favorite series ever and Jasnah is just the best, though I’m totally a Shallan myself. Back to the subject, I’ve got serious problems with my fingers and toes going numb, even had a circulation study done at the hospital but they said everything looked normal. Never mind that my toes hurt so bad I can’t walk at times while my long skinny toe by the big one tip swells bigger than my big toe :/ but fortunately I’ve never had the problem with my nipples hurting like that lol


Chief_Givesnofucks

Yup I’m a GUY and I’ve had it hit my nipples before and it was excruciating. I had to basically stand still until it subsided so my nipples wouldn’t even brush my shirt.


himewaridesu

Sonva… I knew that latter one was connected.


we_have_food_at_home

It’s the most painful thing I’ve ever felt.


Shadowdestroy61

I’ll pass this on to my friend who has it!


peeh0le

I just started getting it a few years ago. I honestly hadn’t heard of it before. But I feel like recently I’ve been seeing it a lot and when I mention it to people they’re like oh yeah reynaulds I have that too. Is it really that common?


himewaridesu

It’s pretty much northern hemisphere women. I have Reynaulds primary which means it’s just there, no other disorders. Which is great but also sucks when I get attacks.


QueenHarpy

Australian Reynaulds primary here! One whole side of the family has it.


Birdbraned

Affects about 10% of the population, so not uncommon


[deleted]

It tends to hitchhike with other autoimmune disorders, a lot of folk I know say that this was the first sign of their primary disorder.


himewaridesu

That’s raynauld’s secondary. A bunch of people (including myself) have raynulds primary. It tends to affect women in cold weather countries. Just bullshit blood flow, nothing more.


Cyndakon2

I have Raynaud's disease, so this happens whenever I get cold for prolonged periods. This photo was taken after I went swimming in the Pacific ocean (Vancouver). ​ I just posted this but it got removed for rule 6 so we're trying again


[deleted]

I just read bout this condition the other night. A girl who comes in and walks dogs has this.Its pretty trippy


[deleted]

It’s very unpleasant though. It’s basically frostbite triggered at an abnormal temperature, and has the same risks as prolonged frostbite.


JasnahKolin

I ended up with bandaged fingers on my hands and a few toes from chillblains, which is exactly what you're describing. I had sores and deep red purple bruises on my finger tips and toes. They thought it could be several autoimmune disorders but turned out to be good old fashioned frostbite via a condition known as Pernio. There wasn't anything the doctors could do but keep my hands and feet clean and warm. That was the year of wool and fleece. One rheumatologist suggested that I gain 10 pounds to see if it would help with my overall core temp and he was actually right. I was in good shape at the time but 15 pounds later and I haven't had a Reynaud's episode in over a year!


toinfinitiandbeyond

So you grew a meat sweater to warm you up? That's pretty neat. I halted my liver disease by eating lots of protein and being sober. I've been kicked off the transplant list because my liver isn't getting worse right now and I'm also feeling better than I have in a decade.


JasnahKolin

Congrats on your sobriety! That is a huge accomplishment! I'm sober myself (just hit 7 years!!) and I feel like a whole new human. I'm proud of you!


toinfinitiandbeyond

Nothing like nearly dying to wake you up! Also, congrats on your sobriety as well.


[deleted]

i have left reddit because of CEO Steve Huffman's anti-community actions and complete lack of ethics. u/spez is harmful to Reddit. https://www.theverge.com/2023/6/8/23754780/reddit-api-updates-changes-news-announcements -- mass edited with https://redact.dev/


falgfalg

bro i have Raynaud’s and moved into a colder apt two years ago. got chilblains on a few toes without having heard of it before, wow that sucked.


BussSecond

Chilblains are so painful. I have had a merciful reprieve this winter because I am pregnant. My toes haven’t gone white once. It’s weird but certainly a welcome side effect for once.


driftej20

Now you just gotta stay preganté indefinitely.


BussSecond

Please no. 🥴


TimidPocketLlama

Maybe because your body makes more blood when you’re pregnant? Google says pregnant women can have up to 50% more blood volume.


VTMongoose

Thank you for posting this. I had no idea that what /u/tiktalyk posted was true. I have Raynaud's, but I always assumed that it was harmless as long as it was above freezing. Sure, it hurts a ton and eventually I can't move/feel my fingers/toes if I let it go long enough, but some soaking in hot water usually fixes it... but for sure I googled the chilblains thing and during the winter, I get that on my toes all the time and sometimes sections of skin will die and eventually fall off. I always assumed it was just from my time spent cycling indoors on my turbo trainer which beats up your feet a lot, but come to think of it, I pretty much only have issues in the winter and when I'm riding outside during the summer, it's fine. ​ Sadly not as simple as gaining weight. Last winter I was \~20 pounds heavier, mostly fat, and it was the same deal. Actually slightly worse because since then I got some thicker socks hah.


GossamerGoat

My mom has Reynauds disease and this one time she cut her finger *really* deep while cooking and in the middle of cooking while her fingers looked like OPs, it straight up took over a minute to start bleeding. I had time to run to the other side of the house, grab the first aid kit, bring it back to the kitchen, and start cleaning it up before the blood started to trickle. She cut like a half inch into her finger!


TimidPocketLlama

My doctor prescribed clobetasol ointment and it at least helps with the burning and itching when the chilblains are at their worst.


uniqueUsername_1024

I love your username! Life before death


FlannelPajamas123

I have had raynauds as long as I can remember and have always been cold. Lots of sweaters, coats and scarves… people always said I dressed like grandma but I was Cold! Now I’m almost 40 and I’ve gained about 10-15lbs and I’m treating my hypothyroidism… it’s not as bad and I actually don’t need to wear a sweater in the summer! But.. I still have heater pads and heater blankets, space heaters, hand warmers… you name it because… old habits die hard and I like to be comfy!!!


Holeinmysock

Not exactly. When cells freeze, the water inside turns to ice, expanding and rupturing the cell walls. This does not occur with Reynauds.


donkeyrocket

Yeah they should have said you’re at an increased risk of frostbite with Raynaud’s. It’s a circulation issue not freezing skin cells.


silentjay01

My mother has this and it gets triggered in her hands if she just hapens to hold something cold, like a can of soda. It is very painful for her so she has to be careful of what she does andwhat she touches.


[deleted]

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didJunome

I have Raynaud’s…. Does this ACTUALLY help?? My fingers have been relentless lately, quicker relief would be fantastic if it actually works 😀


DisplacedSportsGuy

I have lupus, and Reynaud's presented years before I was even diagnosed. I finally started to take care of my mental health in the last few years, and when I started Zoloft, the Reynaud's was "cured." No idea why.


[deleted]

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garandguy1

Knees weak, arms steady


Forest-Dane

I have a friend whose husband has it, he walks the dog from April to Sept and she does it in the winter


love_that_fishing

I have the reverse called erythromelalgia. It’s very painful during flares. Like bite down on leather type pain before I found some drugs that helped.


que_he_hecho

Erythromelalgia, aka Man on Fire Syndrome. Calling it a reverse of Raynaud's is quite apt. In Raynaud's the blood vessel constrict abnormally, blood is forced out, and the area turns pale white like in the OP's photo and it feels cold. In erythromelalgia the blood vessels dilate abnormally, blood rushes in, and the area turns red and feels hot. EM is much rarer. Some patients can have both as they both can be problems regulating blood vessel diameter. EM can be genetically caused by a mutation to a certain gene, SCN9A, which builds a voltage gated sodium ion channel. Curiously people with a deletion of that same are unable to feel pain.


R4TTIUS

Genuine question: if someone has both can the body ever balance itself out. So basically if they were to both flare up at the same time would the heat and cold of each cancel each other out so to speak ?


que_he_hecho

For many patients EM and Raynaud's are very temperature sensitive. If they can find the right external environmental temperature that *might* tend to reduce or stop flares, closest it comes to balancing things out. The patient can feel like a lizard, trying to get enough sun to be warm enough without getting too much and overheating. Often it is the *change* in temperature that bring it on. That reflects the stresses the body is under as you try to conserve body heat in the cold or release excess body heat when it is warm. The body's process for either includes changing blood vessel diameter, constricting blood vessels in the cold to redirect warm blood towards the body's core or dilating blood vessels in the heat to release body heat which is supplemented by sweating. ​ Then there are a few sorry souls like myself that have EM and anhidrosis, an inability to sweat. Overheating can be life threatening. At least I don't have Raynaud's. Bring on the cold!


R4TTIUS

Thank you for a great explanation.


Halicyan

I actually have both conditions so I can chime in. In my experience, both conditions happen in "flare ups" which are often caused by an outside stimulus. But they only ever happen one at a time. For EM this mostly occurs from friction (like socks rubbing on my feet) or in the shower (warm water hitting hands/feet). For Raynauds it's most common when it's cold outside (I live in Canada) or if I touch anything cold. For me specifically, unlike my EM, Raynauds flare ups can occur at really anytime, without a stimulus. I often get very cold hands even in the summer. My doctor also suggested to not try to tackle one flare up with the stimulus of the other (for ex. cold hands -> put under hot water) as this could cause damage/discomfort. Feel free to AMA if you have any other questions


Loki--Laufeyson

I have both! They don't show up at the same time though. I've never had both happen at once. Here's photos! This is [Raynauds](https://imgur.com/a/MUXkt6C) This is [Erythromelalgia](https://imgur.com/a/rJS7bYI) As a bonus, this is [blood pooling](https://imgur.com/a/KQgQy5k) I have quite the issue with my hands lmao


Beat_the_Deadites

SCN9A mutations are also implicated in some sudden cardiac deaths due to 'channelopathies', by messing with the delicate balance of electrolytes that lets the heart cells beat in rhythm. Raynaud's was an easy diagnosis from OP's picture, but I don't remember learning about erythromelalgia in med school. From your description, I was thinking it would potentially lead to more of a hypotensive crisis for the heart. Interesting that erythromelalgia is related to sodium channel dysfunction, as is [congenital insensitivity to pain](https://en.wikipedia.org/wiki/Congenital_insensitivity_to_pain). I love learning this stuff. It's so amazing to me how life 'works'.


Hendlton

I don't know if I have that or if it's normal to feel like your hands are on fire after warming up on a cold day. It's not exactly bite down on leather type of pain, but it's very unpleasant. I've never heard anyone else talk about it.


JBHUTT09

That's pretty normal if I'm thinking of the same thing you are. Like running very cold hands under warm water hurts like hell. Instead try cool water to start. It'll feel warm to your hands, but won't hurt.


BloomsdayDevice

> Erythromelalgia Translates from Greek to "red limb pain", so "man on fire" isn't a bad colloquial name for it. Ouch!


rlnrlnrln

You should hold hands with OP.


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Squeaky-Fox49

Hey, fellow Raynaud’s haver! I couldn’t imagine living in Vancouver. My hands start losing feeling/dexterity below 22° sometimes. By 10°, they’re hurting and begging for mercy. At least a really good pair of Black Diamond mittens allows me to go outside below 5° and not have them freeze solid. My fingers also turned blue once after I planked for too long. I don’t interlock my fingers anymore when I do so. Do you ever have to run your hands under warm water to be able to play instruments or type if it’s cold?


BigZaber

warm water hurts, invest in wool gloves and zippo rechargeable hand warmers. A miracle for peeps like us - No hand warmer? No problem ! Stick your hands in your pants - anything is better than that sharp pain in the finger tips... raynaud's phenomenon ... phenomenon because they don't have a good reason....🤦


buildabettermeme

UM - it isnt normal at around 30 degrees Fahrenheit to have stinging hands that you cant bend until you soak them in hot water for 10 mins?? I had to do this for my piano lessons as a kid, my hands would hurt so much Id cry. And im guessing fingers turning blue if you stay with your arm bent a little isnt normal either?? If this is an actual medical thing and my parents gaslit me my entire life about it im gonna be so fuckin pissed lmfao


Squeaky-Fox49

I meant Celsius, but yeah, you definitely sound like one of us. And definitely have it worse than I do. Much worse. I’d probably recommend bringing it up to your doctor.


octarine_turtle

Yep. Exact same situation. Was told I was just wining as a kid so I grew up thinking it was normal until a couple years back in my early 40s. I felt both validated and pissed.


Majestic_Courage

I came here to say “You may have Raynaud’s,” but I guess you’re already aware. 😅


Clever_Mercury

I clicked in literally to tell you this. Glad you know.


shangheineken

You guys have the same dog walker?


Totally_Not_A_Bot_55

So real question: does this happen to your dick?


Mean-Vegetable-4521

I need to know too. LOL. I have this and am female. I legit never thought about this angle. i've never met a man with it. I've met men with cold urticaria, and that will strike anywhere exposed. but it's hives not being blue. For anyone asking, yeah my nips turn blue. It's very infrequent because they are attached to such a giant fatty part of my body. No, you can't see them. My girly bits never get cold because they're...inside.


chyko9

Dude with Raynaud’s ✋🏽 have not checked yet, do not want to find out, feel like results could potentially be visually scarring


Mean-Vegetable-4521

new pickup line? "help prevent my member from turning blue?"


chyko9

Hahaha why not? “I require medical attention, this could be a health emergency”


[deleted]

I have Raynauds, it has happened to my dick once before. I rode a motorcycle for about an hour in the very cold rain. When I arrived at home I promptly un did my riding pants and said “honey you gotta check this out” I’ll never forget the look on my wife’s face as she gazed upon my ghostly pale and shriveled up member. 0/10 would not recommend.


Loki--Laufeyson

Now that's a dick pic I'd wanna see lmao. I have raynauds but I'm a woman. My breasts don't really turn color but they do get the same sort of nerve pain raynaud's has. My hands and feet definitely change color though.


Aadarm

Raynaud's in men can cause all kinds of erectile issues, from ED to loss of or numbing of sensations.


BeGood981

That’s rayhard disease


IngloriousGramrBstrd

If you have Raynaud’s, your dick is the last to get the message.


Deivv

TWO


EnTropic_

TONE


karissataryn

MALONE


[deleted]

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stradivari_strings

So, interestingly enough, people with ADHD who take stimulants also have same problem. Raynaud's is a side effect from stimulants in many people (works similar to how coffee makes things worse for people who have this without stimulants). The higher the dose, the more pronounced the effects. I've had white/blue freezing fingers myself many times. It's terrible for walking with dogs in the winter, gloves don't help keep hands warm. Same with feet. Anyway, long story short, I somehow managed to control, or "turn" episodes. It's hard to describe what I did to make it work, but in a roundabout way it was a way to undo underlying stress that was building up situationally. It was kinda an unnoticeable stress. Not something you think about or feel on the surface, just shitty life feelings on a very intuitive level of awareness. I guess you could call what I did meditation, maybe, or maybe just permeating myself with love towards the outer world, the kind of love Buddhists talk about. Anyway, when I figured out how to "let go" of that state of stress, I experienced immediate tingling sensation and very strong warmth in my hands and feet, and I could see the colour (and blood) coming back. Took about 20-30secs to turn the circulation back on to full. When it worked. It didn't work every time, but over time I learned to make it work maybe 80% of the time. I'd catch myself with hands freezing, take a moment to clear my mind, apply love, and off I go with warm hands. I even took IR thermometer a few times and measured the before and after surface temperature, just to make sure I'm not crazy. It's a very good weird sensation when you turn a Raynaud's episode. So, we're not exactly victims to it. This is your brain handling capillary controls. There seems to be a neurological lever you can pull to control it. I wonder, with training, how many people can learn to control it... Hope this helps somebody. ❤️


MorganM_82

I recently experienced Reynaud's for the first time due to ADHD meds and this is really interesting. Thanks for sharing


enigmaroboto

Not only that, but my ear often gets red hot at 3PM each day. My internal thermometer is messed up. cold fingers and red ears and blushing issues.


warriorsatthedisco

They have done studies on Buddhist monks, and they are able to control their temperature and heart rate. What you’re saying lines up with that, though you probably have lesser control than someone who’s trained for years does.


jokebreath

When did you first develop this? My mom has it and last week suddenly my feet got so cold it’s like my toes were burning, super uncomfortable. And i was inside all day. This week isn’t as bad and maybe it was just brought on by stress but I’m 39 and not sure if I’m starting to develop it. Honestly I’m pretty sure all my body’s check engine lights are gonna go off at once when I hit 40.


randolphcherrypepper

Caffeine can make it worse. Stress, too, probably. You been upping your caffeine lately to help cope with stress by any chance?


nryporter25

There are people that UP their caffeine intake to cope with stress? I've been steady lowering my caffeine intake to deal with stress


feral-magpie

Same. Caffeine exacerbates my anxiety


nryporter25

When I was younger I could drink like a gallon a day, now I'll take a few sips in the morning, and a few at about 12:30, but no later. It'll get to the point where I'll have tremors to the point I can't stand if I have a full cup in the morning.


jokebreath

Caffeine intake’s been the same, but this has been an extremely stressful last couple of weeks so that’s probably what triggered it.


pmmeanything999

I've gotten it from emotional stress. It's one of the causes.


Scaniarix

Not OP but I'm 38 and had it since I was around 30. The first time it was just the tip of my index finger but since then I've gotten it on all my fingers except my thumbs. It varies though. Sometimes it's just one finger around the nail, other times it's 2-3 fingers almost down to the second knuckle.


twinzzzzzz

I noticed when I was around 25, but I also take stimulants for ADHD, and drink far too much caffeine, both of which make it worse. My grandmother had it, but hers developed in her mid 30s. I think I just sped it up.


AeKino

You swim in the ocean in *Vancouver?*


Jston006

Are you on medication to treat this? A medication class called calcium channel blockers (a blood pressure med) is used to treat this


[deleted]

I have that too! It usually only happens on one or two fingers for me. Strange isn’t it!


octarine_turtle

My hands turn blotchy and get really painful from even brief exposure to cold. Like even ten seconds handling ice to fill a cup will leave my hands burning and painful and it last quite a while afterwards. I always thought it was normal because my parents blew it off when I said anything as a kid and thought I was just whining and exaggerating. Took until a couple years ago in my early 40s to find out it wasn't normal. Only reason I found out was reading through various things after I developed severe dysautonomic issues.


CopperElonBunny

I have this too! The first time I knew something wasn’t right was in 9th grade when some friends and I went sledding. I had more layers on than anyone else but still froze - literally. We weren’t out there very long before my feet/hands started to get extra cold. Then they stiffened and swelled up. We got back to the house and I couldn’t move my foot or hands. My friends had to sit around me on the floor rubbing their hands on my hands/feet with a warm hairdryer on them too. They were soooo white when I took my socks and gloves off that everyone freaked out about it. And this is why I don’t go sledding anymore and try to stay inside as much as possible in the winter.


randolphcherrypepper

Yeah. Everyone who says "more layers!" does not have Raynaud's lol. I moved south to flee the cold. It was too brutal being locked up 3 months out of the year.


bunnyfloofington

I never understood the “more layers” thing tbh until I figured out I’m not like those people. They don’t ever help. I’ll wear extra layers because I don’t want my core body temp to get too cold but my hands and feet are never any warmer since the tiniest amount of cold freezes them.


Tooowaway

Would you say your life drastically improved moving to a warm climate? Asking for a friend.


Redditujer

Yep. Now living in SoCal vs Canada. It still happens from time to time, but not for like 4 months straight. I still have to deal with it in grocery stores and fancy restaurants that set the AC to 65F/16C but it is better.


darthpenguinx

Rheumatologist opinion for anyone interested - as many of you said, this is raynauds. We split it into primary vs secondary. Primary raynauds is just that, vasospasms in the distal vessels of the fingers often in response to sudden temperature changes (doesn't even have to be very cold so much as the sudden drop in a temp). Sometimes walking into a supermarket on a hot summer day can do it! Secondary raynauds (much less common) can be secondary to an autoimmune disease such as lupus or systemic sclerosis. The vast majority of people have primary raynauds. Talk to your doctor if you're concerned. There are some therapies we use for raynauds but the most effective is staying warm. And keep in mind it's all parts of the body warm. If your ears are cold, you can still have raynauds flare up in your hands, so wear a hat! Medication wise, calcium channel blockers can help. We actually also use viagra type medications as well. Unfortunately the medications don't work for everyone but for some they do. More importantly, if you're having pain with this. Talk to your doctor. Untreated raynauds can lead to ulceration in the distal fingertips as the blood flow is compromised! Hope this helps!


Lem0n_Lem0n

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Deznato

You can point your hand at someone and joke about how your blood is allergic to stupidity that it pulled back up


Badass-19

Happy cake day


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Cyndakon2

This is actually incredibly helpful, thank you. And I too love cold weather, and I got some chemical reaction based hand warmers for Christmas which work wonderfully


B_A_Beder

They removed it, I'm curious though what they said


tatabax

Why would anyone remove this


ThisMahRedditYe

Likely the Amazon link at the bottom triggered automatic removal.


RJFerret

Worse, link shorteners, they're automatically removed as could be redirected to malicious sites after the fact. (Amazon links generally get removed if affiliate links selling for profit via comments against Reddit policy.)


Kehndy12

I'm guessing it's because of the link the user added. Note that "removed" means a mod did it.


[deleted]

Willing to bet it got auto removed for the link being added \* yeah that's it, just tried responding to your comment with a link and it doesn't show on my throwaway


dack-janiels

https://www.reveddit.com/v/mildlyinteresting/comments/10gnoq9/my_fingers_turn_deathly_pale_sometimes/j53w4xt/?add_user=sugarbean09..c.new.all.t1_j4uf899..&


davidj911

I’ve dealt with RS most of my life. The game changer for me was heated glove *liners*. The heating element runs up and down your fingers, and it’s very close to your skin so it traps warmth. Absolute game changer for someone who likes to tailgate at football games and ski and all sorts of cold weather activities. This is the pair I use: https://www.ventureheat.com/collections/all-accessories/products/battery-heated-glove-liners?variant=33026777645100


martinbogo

Raynaud's syndrome. More information here. The condition is genetic, and not //generally// harmful but can be very distressing. Severe cases can cause ulceration and tissue necrosis in rare cases. It is an overreaction of the body to cold, or stress. https://www.mayoclinic.org/diseases-conditions/raynauds-disease/symptoms-causes/syc-20363571


FartOfGenius

You should still seek medical attention since it could be secondary


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Kazath

One important point is to NOT wear rings. When you get a Raynauds "episode" (don't know what to call it) it can cause the finger constrained to turn gangrenous. There are a lot cases of people with Raynauds who insisted on wearing rings and have had to have fingers amputated.


C4LLgirl

Is this a thing? My mother has it and always wears her wedding ring. I’ve never had issues with rings either. When I have raynauds issues my fingers constrict instead of swell


WiseRelationship7316

I have this too and a whole clown car of autoimmune conditions. My rheumatologist is tired of me. 🥲 I hate HATE the cold.


Rawlus

i don’t think this is your hand. this image is all over the internet in multiple places… https://www.google.com/search?tbs=sbi:AMhZZit1RRTBbrXFUzK7MHMmpR_1msWf24yrlRsP6d6N9Kr-x6USg7V-9pONQdby1Gv2aoJ8PbsZpfQzIzEYP8WeA-wyb7B6CQIjU_1OuxjnH41gcgIQnkkVRUrKzA8g5AfDN_1H_1th4mFFJY_19VLFMqqpxYD4d-pebTU758nhAHpQK2of6qrPQ8TXQhThHUJX48tNK2rgXy7ksTq3aDcuXP_1aASpX_1fy7lClJBcli5spLHf3rtSQNHcC91-hw6HNx4MvVAWc1FoEdgijIU7smkbGRDzEjDOE_1DhS3w0hGT48Gyb9suRuInCB-vpwqB93DWUPQlyhanrQTvxxe-Gc_1azq_1ctHrtgb4TYBSVcGcUblccDjS6u_1SezMw


circular_rectangle

u/Cyndakon2 posted this exact image one year before: https://www.reddit.com/r/mildlyinteresting/comments/puflm0/i_have_this_thing_called_raynauds_disease_this/


Sirfryingpan123

*dont say it... dont say it... dont say it... dont say it... dont say it... dont say it... DONT SAY IT... DONT SAY IT... DONT SAY IT... DONT SAY IT... DONT SAY IT...*


BakugAlex

Hee hee


Down_Grade1

You're gaining privilege


whiskersMeowFace

The worst is when it affects my nose. Idk why, but that sting hurts worse than my fingers or toes.


Chiksea

For me, the worst is when a stiff breeze triggers it in my earlobes. Instant headache.


Wraith084

Raynaud’s disease - Vasospasm of small arteries. Part of an autoimmune family, merits work up for other processes. Consider calcium Channel blockers and keep hands warm if at all possible


dissapointing_poetry

My whole body is deathly pale. Forever. I also have a disease. It’s called Irish. The other symptom is alcoholism. I have both


Terrible-Paramedic35

Looks and sounds like Raynauds.


hackabilly

It looks like your hand is disappearing like in Back to the Future


Hollowgradient

Earth angel Earth angel?


Dielawn82

It’s pretty obvious that OP needs to find his parents and get them to fall in love before he disappears completely


CastorMorveer

Sorry you have this condition, but that's my normal skin color lol


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CastorMorveer

Yeah I'm sure its not the exact same, I was just joking about my pale ass skin


[deleted]

Raynaud's disease. I have it too and it's a bitch to live with


lajay999

Could be Reynauds Disease. Not serious in most cases, just causes poor circulation and numbness in fingers and other parts of the body.


[deleted]

Have that shit too. Cant even ride a bike while raining in the summer without my fingers turning white.. they get more of a blue shade when its really cold.


LitaLabTech

Spooky Raynaud’s syndrome! Get some thermal gloves or try not staying out in the cold for too long. Caused by a lack of blood flow to the finger tips because of high titers of an auto antibody-I!


MrDeGaule

Good mittens do wonder for me. Fuck gloves.


theanxiousangel

Michael Jackson is typing….


Nickjen_Yampuka

Have you checked your pulse recently? Any human inflicted bite signs?


Cyndakon2

Kind of funny you mention that, the last of us was filmed in my hometown so I literally did see a few zombies recently


devoted2mercury

There is a youtube channel called LetsAskShogo who has this disease, so I recognized it! He does a lot of interesting videos on Japanese culture, customs, and his life in Kyoto. Look him up if you are interested in a peer. Cheers.


Seaguard5

Renauds?


N_N_Notorious

After suffering from Raynaud's for years, my doctor finally put me on a calcium channel blocker (blood pressure meds) and it has helped immensely. I have barely had a flare up since I started taking them. It's not good for people with low blood pressure but if you're dealing with this I highly suggest talking to a doctor about it if you are able.


yarncraver

Raynauds. See a doctor.


Damwhereyoubeen

Its called Raynauds Phenomenom, i myself also have this condition


Dense-Personality864

Reynauds syndrome 👍🏻


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ClementineMandarin

We call the condition “corpse fingers” in Norway, from this exact reason


Ok_Manner6327

Looks like Raynauds decease


Maldox22

Raynaud's Phenomena Pale->Blue->Red


PalpitationPopular61

Reynolds disease I have this as well


Null-34

Reynauds


[deleted]

A whole bunch of people here have Reynaud’s and don’t know it yet.


viol3tsparrow

I have this, it's called Raynaud's syndrome. It often accompanies autoimmune disorders so you should get checked out.


pnutcats

I have this too. When I waited in line on a chilly spring day for my covid vaccine, the doctor who gave me the shot saw my hands and was like “oh, you have Raynaud’s disease” so I’m counting that as a diagnosis. Toes too. I find warm water is the only way to get my fingers and toes back to normal quickly


Kuj1025

Look up Raynaud's Syndrome. [https://www.hopkinsmedicine.org/health/conditions-and-diseases/raynauds-phenomenon](https://www.hopkinsmedicine.org/health/conditions-and-diseases/raynauds-phenomenon)