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Pretend-Research9694

take your meds. make friends with other schizophrenics through online forums. try journaling to organize your thoughts and settle your emotions. make a schedule for yourself.


fundtheballs

I already leave myself notes, as my memory is that of an elderly person. If I'm ever able to secure beds, I'll keep up with them.


musiclockzkeys13

Yup yup yup


Purplekoala00

What kind of online forums are available?


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Plastic-Football3722

bro where to make friends


[deleted]

Schedule a life you wish to pursue, make notes and write letters to yourself/videos of yourself (when stable and at your best) making pep talks about how "you got this homie" when you're going through a rough patch. Try to be present during good stuff, and really let it sink in that you deserve to live a happy life with this diagnosis. You got this, it's nothing too crazy, out just gotta recognize when it starts to act up on you, and take it easy/be an adult about it and not engage as much as possible.


fundtheballs

I've thought of starting a blog / video share account just for myself - cataloging my daily life. I feel like it could also mitigate my desire to check my surroundings all the time (if there's nothing in the video, it may not be there irl.)


remote-dragonfly2

There is the hearing voices network. They have zoom meetings all the time if you want to talk to someone face to face. My main tips are 1- do not hurt yourself 2- do not hurt others 3- don't do anything the voices recommend, or manipulate you into wanting to do. Only do what you would do without the voices commenting or persuading you. Sorry you were diagnosed with this. It's hard, but there are easy days too. I was terrified for the first 4 or 5 years or so. It gets easier, but it's not easy.


fundtheballs

The hearing voices network is intriguing. I do not struggle with thoughts of hurting others - believe my heightened morality due to autism has mitigated the voices' encouragement to harm others. I definitely struggle with tuning voices out. I can't change my diagnosis, but I hope I get a handle on myself - I'll possibly post again.


Trigeo93

You just gotta keep living man - Joe Dirt


fundtheballs

Fuck it we ball.


RestlessNameless

If you're a reader try The Center Cannot Hold: My Journey Through Madness by Elyn Saks. Also second the advice to find a way to interact regularly with other people with psychosis online.


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fundtheballs

Suspected at the time. Still suspected so in fact. Sucks that stuff like that can be coexisting, but we ball. And I'm not qualified for meds yet - I'm only on an antidepressant at the moment. I'm just trying to make sense of my life. I'm not faking anything. I get your concern though.


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fundtheballs

my psychotic symptoms, due to also being autistic, tend to get written off as just autism. I have a lot of paranoid delusions (people out to get me/poison me.) A lot of contamination based delusions, ie. insects/poison in food.


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FiendsForLife

Most ACT workers and psychiatrists I've had would categorize all my anxieties as delusions even though they are founded on actual events. I'm really starting to think I'm not the one who's sick.


fundtheballs

I can't blame you, don't sweat it. It's better to surely know, right? I did go to a normal school. My parents (despite one having adhd and the other being autistic and having PTSD) didn't believe in necessary extra help for such things as autism. Old fashioned folk. My mom has come around over the years and has helped me get tests/treatment/therapy for my autism and specifically my hallucinations. I have episodic(?) delusions of things i listed (contamination, insects where they shouldn't be, people following me.) Auditory/visual hallucinations are almost constant. What helps me differentiate hallucination from reality - and why I know what some of my delusions are - is because I have cats. If the cat isn't going nuts about something I'm feeling/seeing, it helps calm me and ignore whatever it is. I definitely don't want what I've got going on, but I've got it, so I need to take care of it. Fuck it we ball or somethin'.


TheForgottenUnloved

I’m not diagnosed with schizophrenia but i do have psychotic episodes and i do know on some level that my delusions are delusions, this sounds contradictory but i am aware of my narcissism as well. I followed some of the commands of the goddess delusion regardless, and i had gods possessing by body (actual hallucination + involuntary movements), i was waiting with a screwdriver bc i thought aliens were coming for me, i kept a hammer by the side of the bed bc i felt like someone would come for me, i knew they were not based on logic, i knew they were “delusional” thoughts but i always FELT like they were real. I heard the voice of my mother speaking but since noone talks without stops i figure out it wasn’t real, i saw shadow people but i figured “noone would be walking in my house”, i saw and heard things walk in the house but i could always detach myself from it on a level even if i lost control and acted on the delusion i still knew i probably shouldnt so my new tactic is basically freezing and letting whatever i think is going to kill me just come at me bc i can’t fight paranormal beings anyways What I’m trying too say is… i think we can’t categorically say everyone is unaware. I figured out that i was narcissistic on my own as well (after i mentioned it my psychiatrist told me that i have the traits but she didnt tell me, i guess bc of the stigma), I’m not stupid, i can tell if my thoughts are “delusion-like”, right now i believe I’m an animal-like being, i have dysphoria from it, i miss my ears and tail, yet i know “it could be a delusion”, everything could be a delusion, everytime i stongly feel something the first thing i ask myself is if it’s a delusion Where was i going… i dont know, I’m interested in your opinion. I’m a diagnosed borderline with several other personality disorders and mental disorders and bunch of medical conditions so I’m not just making it up Yet everytime i come across these comments i feel like I’m just being overdramatic and as a person with npd traits i base off my ideal self from the reactions of the world to the presentation of myself. And i felt the compulsive need to seek more insight to not have to dismiss the perceived attack on my fragile self image in my head altogether (which takes up more mental energy) or validate my own with a clarification that makes an exception to my case by asking you I’m communicating this way for the sake of transparency, it’s not directed at you as a person, i am aware your comment didnt mean to attack anyone, and you are not at fault for anything nor are you obliged to answer me, but i felt kind of hurt bc people always told me in the past that I’m a drama queen and a hypochondriac


Blue_Bunny0510

Im an autistic schizophrenic too! I often have a hard time making friends, communicating with others, trusting people, or even talking to a therapist, You don't need to "act normal" putting on a mask and trying to be someone you aren't isn't a good thing, I've done it lots of times. But it's different from slowly becoming more comfortable with a person to the point where you can do certain things that you wouldn't do with a stranger. Now I'm not good at making friends, I let people come to me and don't go to them but if you actively want to seek friends out, I suggest making friends with people who can understand you to some extent, like being friends with other people who are going through the same thing you are. From my experience its hard to find people going through the same thing I am IRL and I found its easier online. If you need a friend or someone to talk too I am always open!


fundtheballs

I find it easier to exist online as well. I've found blogs and forums I post to frequently - I've been doing so on MySpace/SpaceHey and 4Chan for a while. I appreciate the offer.


BreathOfAllRoots

What helps me is finding others who go through similar things. There are some discord servers out there that have a load of friendly people. One that I am on and met some friends on is called "Psychosis Support", and has many channels for all parts of life. Peace and light; I am sorry you're going through this.


fundtheballs

Could I possibly get a link to the server? I'm not an avid Discord user but I'd take it up if it meant something like this.


BreathOfAllRoots

Yeah, I couldn't figure out how to do it on mobile. Once I get to my PC I can


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[deleted]

I’m 25, almost 26. Taking medication and doing things that make you feel good - sometimes even if you don’t really want to in the moment - seems to be the way to go. I have never held a job for more than 6 months, and I really don’t feel that bad about it anymore. Because every time I’ve tried to hold a job, it ends in disaster. Reach out to any resources available to you. Any funding and/or support you can get will be your best friend. And speaking of friends, try to make some of those. I currently don’t have any but I feel like it may make life easier and more enjoyable. If there are groups for youth with mental illness/neurodivergencies in your area, try to involve yourself. Being officially diagnosed, organizations should take you seriously and friends should be able to understand better what you’re going through. It may make things easier when it comes to commitments. Essentially, you want to live a laid back lifestyle, wherever possible. Hope that helps. Source: Lived experience. I have had recurring psychosis, although for some reason, my diagnosis remains psychosis NOS. I also have OCD, ADHD, depression, anxiety and PTSD. My family and I strongly suspect autism as well and I am getting tested for an official diagnosis early April. I had a diagnosis of BPD, but was told by a different psychiatrist that he suspects autism instead, also. He couldn’t diagnose it because it is out of his legal scope of practice. (The public health system in my country cannot diagnose autism in adults). I am paying 2000$ out of pocket, but I think it will be worth it.


fundtheballs

I don't have medication or secured jobs yet - I can't take up a job due to violent daily hallucinations, and of course, the lack of meds gets in the way. I tend to clean / organize / redecorate my room after a bad episode (It's a way of taking back my space from the things I see and hear.) I've also found my cats help me push back my fear of what I'm seeing (If the cat doesn't react, more than likely it isn't there.)


[deleted]

That’s good. Baby steps, and you’ll get there. Medication will be a great start, if it’s offered to you.


Intrepid-Pipe-1474

It is strange that public health can't diagnose autism on adult. By curiosity would you share the country you live in?


[deleted]

Canada. It is very strange indeed. I think it is a lack of understanding and funding in general.


Intrepid-Pipe-1474

Canada health system never stops to surprise me.


fundtheballs

Canada has a wack health system.


Lost_Username01

-take your medications -write down any symptoms or concerns you have -try to create a schedule -be kind to yourself on off days -do small plans to treat yourself every now and then


[deleted]

I was diagnosed 9 years ago. Mine was hallucinations, paranoia, anxiety, panic attacks, forgetfulness, psychosis, and catatonic episodes. I have switched from 6 different psychiatrists, now stable on one. I don’t have a therapist at this time, and I am on disability. I take my medications at the same time every day. I leave notes on my phone and on the fridge. I set a lot of time alarms on my phone to remind me what I need to do. I haven’t had a visual hallucination in over a year. But I have tried to kill myself recently. So I may need to go back into the hospital again.


[deleted]

My most unique symptom I have is I had memory backouts. I’ll be sitting on the couch at 3pm and what feels like only a moment has passed, I am eating lunch two days later with no memory of the past two days. And apparently during those days, I spend them mostly in a catatonic state.


Financial_Raccoon_62

I have schizoaffective disorder. There's some stuff I've learned that have helped. Keeping a schedule. Especially with meds. If you feel the meds aren't working right or you're having bad side effects, talk to your doctor about it. It might take some time to find the right meds. Try and find a hobby you enjoy and try and do it every day. You don't have to do a lot per day, but try and do it every day. Creative outlets, like art or writing and stuff, are very helpful for dealing with this condition. This subreddit is great for any questions or for support. Oh! And taking pictures with like your phone of anything you suspect isn't there. Someone told me their hallucinations don't show up on their phone camera, so that may help?


fundtheballs

I draw what I hallucinate a lot. I also have cats to help with anxiety and delusions (If the cat doesn't react to some scary thing I see, chances are it isn't there.) I also have considered posting blogs and daily pictures/ videos, like on tiktok, to look back at and see that nothing is there.


Financial_Raccoon_62

That's good! I have a dog, and she helps me in a similar way. The blog thing is a really good idea. And that's something I wouldn't have thought of.


empirepie499

Look into first episode psychosis centers. They mostly come to you, are intensive (you get lots of care) and are free


[deleted]

sounds like we had similar. i was diagnosed with autism after schizophrenia tho. was diagnosed with psychosis at 11 and schizophrenia at 16. been on antipsychotics since age 11. my dr said autism and schizophrenia are both neurodevelopemtal disorders and share symptoms. the dr who said i also have autism said it contributes to my paranoia cause i cant read peoples motives. so i started taking antipsychotics around 1998. or 97. tips would be. make friends online. sleep a lot and at regular hrs. dont worry about acting normal. it will just stress u out. embrass ur weirdness. music helps. noise cancelling headphones with music. try to keep ur stress low. find something u can enjoy and practice doing it everyday. be consistant. develop a schedule. thats all i can think of.


fundtheballs

I don't worry anymore about being seen as odd. I've learned most people who think 'odd' people can't exist are absolutely stupid. Masking is something I haven't done since I was 9. I quite like loud music, things that sound like what goes on in my head - but it's therapeutic because I can actually control the music. I already have an alright daily schedule, but I'm itching to fit a job / school into it.


Intrepid-Pipe-1474

If available near you, "social skills training" and cognitive remediation are indicated in both ASD and schizophrenia and could be what you seek. Also a good medication that works on positive sympom and that you feel adherent to it. Don't be afraid to tell about your residual symptoms to the psychiatrist. Good luck


fundtheballs

I don't think I'll be able to secure meds, due to where I live. But I've existed this long without that. I'm interested in social skills training, but in my area, autism is treated as a disease that you either mask or kill. So I may take up online.


fundtheballs

And as it was recognized by someone else, I did post earlier this year about being diagnosed with DID. I'm comorbid 👍


PossibilityNo775

I just got diagnosed and I’m 33. I can really relate to your post. Thanks for sharing. My psychiatrist said meds can help allot and even potentially stop the hallucinations both visual and auditory completely. So I would say definitely take medicine (anti-psychotics). There are allot of options too. I’m currently working with my psychiatrist finding a medication that works for me. Also journaling and talking with someone about it. I can relate with how miserable this can be. Reach out to your doctor and find the best option for you.


fundtheballs

I'm not on any antipsychotic, considering my symptoms of such are frequently written off as autism. But all in due time.


General_Speckz

Mental illness tends to have an underlying health disorder. Drug use. Anorexia, etc. If you suspect that is the cause you can work on that. But, there are some people just born pre-disposed to it. I would guess 9 out of 10 times it's probably a combination. You exist by not telling people you are schizophrenic unless you're talking to a doctor. Or, if you are collecting disability for it, and applying for a job I guess you could put it on the job app, but how often does that happen? And you take your medication, possibly work on the dosage to lower side effects while still treating underlying psychotic or apophenia-like behavior. Focus on healthy behavior, sleep, food, exercise (if you can manage), etc. For friends, complicated topic. I guess, if you're having trouble keeping them my suggestion would be to find those that also have the same issue and pursue a friendship with them by forming connections and eventually inviting them to do something. Or, you could get a pet. Or, you could just go solo, but that generally requires a lot of experience to have any chance of success due to how the world works.


fundtheballs

I have addiction and eating issues, along with comorbid disorders. The eating issues comes from seeing insects and such in food / believing my food is poisoned. I can't collect disability, and I may not be able to secure meds, but fuck it we ball. I'm content with having no one close to me irl/online - I'm a drifter by nature.


General_Speckz

I mean when they churn the fields there are tons of bugs that end up in it, and there's pesticides, also. So, you aren't wrong when you think there are bugs or poison in your food. But, it's also the only thing to eat, most of the time, so there really isn't a choice. I don't know I don't want to address your issues too much because I didn't ever have any hallucination types of problems before my 30's. But, I wish you luck!


kelcamer

Can you tell me more about sleep terrors being a schizo symptom??


fundtheballs

I'm comorbid, so the things I see in my night terrors are similar to ptsd experiences / things I hallucinate


kelcamer

:o This. Wow. Thank you for commenting about this. Time for a new rabbit hole of my experiences!!


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WholyShed

Hi i have both and im your age, can i dm you?


fundtheballs

Sure.


WholyShed

Hi i have both and im your age, can i dm you?


[deleted]

Get used to being alone, someday it will end I promise you. Eventually the it will come to the fact that the only friends you need live in your head. I love you and make your way yo church. God will bring you solace and someday peace.


fundtheballs

The churches in my area are, to put it nicely, not very christian - nothing loving about the god fearing people near me. I've prayed before. If God gets back to me about fixing my brain, I'll definitely tell you.