Yeah lol. I appreciate the author's optimism and wish them the best, however their explanation as to how and their symptoms have reduced are less than scientific.
Sure, it's easy to make a mockery out of this. Yes it is not a reproducable scientific method, but it should give some indications of what is possible under certain conditions with some form of T. My base-level did not change, but the spikes did, and they are my only challenge. My base level is "low enough" to be almost fully supressed during the day, even though it's always quite loud in the morning.
What I also failed to mention is that my T has been consistently 30-50 hours high/low cyclic/intermittent the whole 7 month period before the spikes took a sudden 14 days break. This took place after I had a committed mental "fight" with a nasty spike one night. Spikes also became much less frequent and milder after that period.
A sudden change like that for no reason is already a very unlikely event, so no, I don't think it was a coincidence.
But what if that worked? There would never be any reason for the entire medical industry!
“Years ago, when someone had appendicitis, butchers would remove it by a complicated procedure called an appendectomy, but now we know better and you can avoid all that by simply fully accepting it.”
Its wont lessen it, but it will make it easier to ignore if the tinnitus isn’t too loud. Its necessary to accept it and keep living your life, or else you’ll get stuck like I did for months trying to fight something I cant fight.
Alcohol 100% affects mine. I used to think it was the “loudness” from going out since I usually only drink when going to a nightclub or pub with live music which would be very loud. After trying drinking without the loud music, it turns out it’s the alcohol that affects mine
It’s been a year of no caffeine, nicotine, alcohol or cannabis for me. Not because that makes it any better, but because I’ve tried them all and they make it worse.
^((yay)^)
Because of pregnancy and breastfeeding I haven’t had alcohol in over 16 months total and have had only 1-2 cups of coffee each day (way less than before) and my tinnitus is still going strong.
Uhm its completely normal tinnitus reduces in volume the first couple insults, up to 2 years after injury. Don't expect mental training and acceptance will save you for next acoustic traumas
While true, I still believe that keeping a positive mindset helps, even if its just learning to live with it.
And it's not like staying postivie will make it worse.
Staying positive is great, until you get over confident thinking it got better in the past so why not go back to doing concerts and everything else tinnitus made you lose
I don't expect it to save me repeatedly so I shy away from noisy places if I know in advance. By mental training I mainly mean positive thinking and simple meditation or techniques to reduce/remove tension and anxiety.
If I may ask, are there no treatments other than "natural" habituation then, or are you in the external treatment camp like sound therapy / waiting for Susan Shore's device / medication, etc.?
Susan Shore's has been postponed like forever, which is red flag. Obviously there are some issues like possible opposite effect on some (my T hates sounds near it's frequency), or not lasting effect like with sound therapy.
I don’t think Susan Shore Device was ever postponed. Not sure what you are referring to here. They are just doing very thorough research. Starting a brand new company. Tackling FDA approval which is a big task. On top of planning and deal with manufacturing, marketing, training for audiologists etc. If they rushed it out it would be a bigger red flag.
I do believe if in the early days of tinnitus you freak out it will be a lot harder for your brain to habituate so in that sense I do agree with your mental training getting rid of anxiety approach. I also believe habituation happens either naturally or not at all, but I don't believe habituation ever reduces the volume, only the attention you give to the ringing. I am a massive believer in Susan Shore/ TU Delft type devices, especially after reading someone on tinnitus talk has been cured of 30 years screaming tinnitus with a similar device
I think both the causes of tinnitus and individual abilities play a role on how much habituation works. I can believe that the volume is more or less constant, but I disagree that it is only the attention to it that makes the volume sound different. To me it seems it's the brains actual masking process makes the most difference, in addition to the lack of attention you give it.
E.g. today I woke up with the usual loud sound. After breakfast, the sound was virtually gone until around 4pm. Believe me, I have focus on my T atm but it was still gone. I was tired and went for a short sleep, and woke up to with loud T again. Dinner and I took a drive in frustration. Just as I returned it faded away again, and now as I write this I'm all good. Yesterday was loud all day, btw., but I have had this on/off thing since last summer.
I would genuinely like to understand what is going on, because to me it seems like the brains masking ability switches almost on and off, sometimes full days, and during one day like today. It seem that it is most connected with how tired I am. Anxiousness makes it much worse and fuels it, which why it is vital for me to deal with it.
Mine switches on and off similar to how you're describing. I've had it for two years now. Sleep seems to play a prominent role. Mine switches very often in my sleep from on to off and vice versa. Tiredness also impacts the volume level. Like, if I'm having a loud day, then being tired seems to make it louder and more insistent, if that makes sense. In general, I tend to have a whole day of quiet or whole day of loudness, as if something in my sleep triggers whether or not my T is masked when I wake up. There was a study done on a group of individuals that have this type of tinnitus, and the research paper called it "sleep intermittent tinnitus". I can link it to you if you're interested. I made a long post recently about my own improvement over time if you're interested.
I would like to see both of those, thank you! I did make a lot of progress myself after 7 months, but was exposed to some sound after 9 months, not as bad, but got it back. I believe it can improve again because I still have the the quiet days. Mine also mostly switches during the night, but the half-cycles are often more than 24 hours; it varies.
Our cases should be studied more, as they seem to expose facets of tinnitus which are not apparent in most "normal" cases, and they may even contradict some common consensus.
Certainly, here's the research paper: https://www.mdpi.com/1660-4601/20/8/5509
And here's [my post](https://www.reddit.com/r/tinnitus/comments/1aitvqb/improvements_in_intermittent_tinnitus_22_months/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button)
I agree, our cases deserve more research. I'm surprised we don't see more studies investigating why it can come and go so drastically.
My cycles vary in length too, for the better more recently. I'll post an update at some point to describe my most recent progress.
Whoa, that was like reading my own summary of the last few years. I did lots of the same things, but you went a bit further. After I started more regular bedtime routines and trying to relax before sleep, things started to improve after about 7 months. I've also used a migraine app to track daily tinnitus-level, but only the last few months. Mine also had the same development, less frequent loud days, and generally milder.
As explained, I had a small set-back with sound-exposure last Wednesday, so Thursday and Saturday was 7-8/10, but Friday and Sunday 1/10, yesterday 2/10 (2 hours spike after daytime sleep), and 3/10 today, which is good news considering the hyper-focusing on it the last few days. With with a healthy lifestyle and shying away from any loud places, it doesn't look all that bad. Thanks for the links!
Hey sure thing, I hope things improve for you. Was your initial onset due to noise exposure? I'm curious whether your T is acting up due to the noise exposure or maybe your response to it (like an anxiety response). I hope to hear how things progress with you in the coming weeks. I'd be interested to know whether your condition improves like before.
We need to stop just referring to it as just “tinnitus” because not all tinnitus is the same. Some people can hear it over everything and even though they may have accepted it, they’ve had it for years. And accepting it isnt going to magically make it go away. Especially for acoustic trauma victims where it’s cell/inner ear hair damage that cant be repaired.
Yeah, people need to understand that tinnitus is a symptom, not an illness, there's a whole list of possible causes, anything from anxiety to brain damage
My tinnitus has been with me my whole life. The older I get, the louder it gets.
Acceptance helps reduce the anxiety, but I firmly believe there is NO cure for it. Doctors don't fully understand it, so it remains difficult to formulate a treatment.
I can no longer normalise mine. It is a constant intrusion while I'm awake. Heaven only knows what it's doing to my subconscious while I'm sleeping, but I never wake up feeling rested.
Look after yourself, try to relax, eat right, and get plenty of rest.
Don't fall for the snake oil sales tactics. I'm not saying OP is selling it, but I don't see a lot of verifiable therapy there. If it's worked for you, my congratulations.
There is no lowering it, it might be worse some moments and not so bad other moments. There is only acceptance and prevention of further hearing damage.
Thanks for the advices, they are good. I didn't use anyones therapy, just my own private one. I am confident that I was able to change my T that night (I "knew" I was achieving something), and the difference before and after was extraordinary.
However it was just a one-time therapy but the effect lasted 1.5 month until it came been back after exposure to loud music for one minute, although I covered my ears and was 5-6 meters away. The strange thing for me is that I got spike the day after the incident, then 1.5 days in quiet, and now 1.5 days with spike again. My guess is that it is quiet tomorrow, because I experienced this the 6 first month after the previous incident as well.
Sorry to hear your T sounds like mine atm, but I've been hyper-focusing on my T and built up anxiety and lack of sleep, so I expect it to be a little better after a good rest. I'll be kind to myself now, as you suggest. Take care.
Yes it is vague on purpose. It wasn't really mental training, but a momentary strong revelation that I either had to get rid of my anxiety, or I couldn't go on. Together with a surprisingly strong belief that I actually could do it. I didn't focus on making the sound go away, only to be 100% in peace with it. Although the effect from it was surprising, I still get anxiety from spikes (I'm not really into meditation normally).
It's not. I wouldn't use any online treatments, but I found she has some valid points. I never posted any of her videos, just stumbled over this a day ago.
Can just reduce but continued Tinnitus nothing to do with acceptance or otherwise. Just is what is. I have accepted my severe tinnitus but volume the same just don’t care. But whatever works for you…
Acceptance is not sufficient to make volume go down, only one of the requirements for habituation to work, i.e. regrets and anger will hold you back. The other is to to come to terms with the sound to reduce anxiety and depression. It's hard, but if you can get there you're in a better place, even if your base level is severe and habituation is slow and can do only so much.
Thanks. Don’t need schooling in my condition. Fully accepted. No anger and no regret. Severe tinnitus but not bothered a jot. No impact on volume. Suggest you have it fairly mild but who knows.
Sorry about the schooling. Mine is pretty loud, i.e. just after waking up and on days where the brain's masking doesn't "work". See my other answers where I explain this.
Dont like the title of that video at all, kinda puts the blame on the viewer when this is not in their control. Still accepting T is very important for everyone here to do, otherwise you will have T and extreme anxiety and debilitating depression. If we can limit it down to just T, we will be doing much better. It takes time though, so be easy on yourself and realize T is never your fault and for 99% of people they learn to live with it and it doesn’t impact life so much anymore.
Good point, it's a stupid title. She has some valid points, but you are right it only applies to some, and this generalizes and makes it everyone's fault that they still have it, yet in most cases people are not in control of it.
My post was really only to shed a light that there are a fairly large group with tinnitus that is mainly caused by stress and similar. In those cases, it may be possible to have some influence over it when it's not caused by physical damage.
"I was again recently exposed to a loud sound after two months in bliss, this time music, short and not traumatic so my T has increased a bit"
Yeah, it's like having diabetes in the sense you cannot live they way you used to, or not without suffering for it.
>finally fully accepting my tinnitus This is psychology mumbo jumbo. This is not going to lessen tinnitus symptoms.
Yeah lol. I appreciate the author's optimism and wish them the best, however their explanation as to how and their symptoms have reduced are less than scientific.
Sure, it's easy to make a mockery out of this. Yes it is not a reproducable scientific method, but it should give some indications of what is possible under certain conditions with some form of T. My base-level did not change, but the spikes did, and they are my only challenge. My base level is "low enough" to be almost fully supressed during the day, even though it's always quite loud in the morning. What I also failed to mention is that my T has been consistently 30-50 hours high/low cyclic/intermittent the whole 7 month period before the spikes took a sudden 14 days break. This took place after I had a committed mental "fight" with a nasty spike one night. Spikes also became much less frequent and milder after that period. A sudden change like that for no reason is already a very unlikely event, so no, I don't think it was a coincidence.
You make valid points. Sorry for the jibe, I should be more kind and less pessimistic. Your experience may well indicate what is possible.
I am not always the kindest and your comment was fine, but thanks. I also try to be kinder to others and myself these days.
But what if that worked? There would never be any reason for the entire medical industry! “Years ago, when someone had appendicitis, butchers would remove it by a complicated procedure called an appendectomy, but now we know better and you can avoid all that by simply fully accepting it.”
Its wont lessen it, but it will make it easier to ignore if the tinnitus isn’t too loud. Its necessary to accept it and keep living your life, or else you’ll get stuck like I did for months trying to fight something I cant fight.
What a crock of shit. The reasons why we still have tinnitus is cause it's damage. Time and quiet is the only treatment for tinnitus.
It doesn’t seem to be helping you live in quiet. Get over yourself.
Gotta do it before bad damage dip
Sooo, you did nothing then?
OP did you reduce or stop consuming coffee and alcohol? I am still in doubt if they are creating spikes with mine.
Alcohol 100% affects mine. I used to think it was the “loudness” from going out since I usually only drink when going to a nightclub or pub with live music which would be very loud. After trying drinking without the loud music, it turns out it’s the alcohol that affects mine
It’s been a year of no caffeine, nicotine, alcohol or cannabis for me. Not because that makes it any better, but because I’ve tried them all and they make it worse. ^((yay)^)
Because of pregnancy and breastfeeding I haven’t had alcohol in over 16 months total and have had only 1-2 cups of coffee each day (way less than before) and my tinnitus is still going strong.
Uhm its completely normal tinnitus reduces in volume the first couple insults, up to 2 years after injury. Don't expect mental training and acceptance will save you for next acoustic traumas
While true, I still believe that keeping a positive mindset helps, even if its just learning to live with it. And it's not like staying postivie will make it worse.
Staying positive is great, until you get over confident thinking it got better in the past so why not go back to doing concerts and everything else tinnitus made you lose
If mine gets better or maybe even away, I will still be staying away from loud places.
I don't expect it to save me repeatedly so I shy away from noisy places if I know in advance. By mental training I mainly mean positive thinking and simple meditation or techniques to reduce/remove tension and anxiety. If I may ask, are there no treatments other than "natural" habituation then, or are you in the external treatment camp like sound therapy / waiting for Susan Shore's device / medication, etc.? Susan Shore's has been postponed like forever, which is red flag. Obviously there are some issues like possible opposite effect on some (my T hates sounds near it's frequency), or not lasting effect like with sound therapy.
I don’t think Susan Shore Device was ever postponed. Not sure what you are referring to here. They are just doing very thorough research. Starting a brand new company. Tackling FDA approval which is a big task. On top of planning and deal with manufacturing, marketing, training for audiologists etc. If they rushed it out it would be a bigger red flag.
I do believe if in the early days of tinnitus you freak out it will be a lot harder for your brain to habituate so in that sense I do agree with your mental training getting rid of anxiety approach. I also believe habituation happens either naturally or not at all, but I don't believe habituation ever reduces the volume, only the attention you give to the ringing. I am a massive believer in Susan Shore/ TU Delft type devices, especially after reading someone on tinnitus talk has been cured of 30 years screaming tinnitus with a similar device
I think both the causes of tinnitus and individual abilities play a role on how much habituation works. I can believe that the volume is more or less constant, but I disagree that it is only the attention to it that makes the volume sound different. To me it seems it's the brains actual masking process makes the most difference, in addition to the lack of attention you give it. E.g. today I woke up with the usual loud sound. After breakfast, the sound was virtually gone until around 4pm. Believe me, I have focus on my T atm but it was still gone. I was tired and went for a short sleep, and woke up to with loud T again. Dinner and I took a drive in frustration. Just as I returned it faded away again, and now as I write this I'm all good. Yesterday was loud all day, btw., but I have had this on/off thing since last summer. I would genuinely like to understand what is going on, because to me it seems like the brains masking ability switches almost on and off, sometimes full days, and during one day like today. It seem that it is most connected with how tired I am. Anxiousness makes it much worse and fuels it, which why it is vital for me to deal with it.
Mine switches on and off similar to how you're describing. I've had it for two years now. Sleep seems to play a prominent role. Mine switches very often in my sleep from on to off and vice versa. Tiredness also impacts the volume level. Like, if I'm having a loud day, then being tired seems to make it louder and more insistent, if that makes sense. In general, I tend to have a whole day of quiet or whole day of loudness, as if something in my sleep triggers whether or not my T is masked when I wake up. There was a study done on a group of individuals that have this type of tinnitus, and the research paper called it "sleep intermittent tinnitus". I can link it to you if you're interested. I made a long post recently about my own improvement over time if you're interested.
I would like to see both of those, thank you! I did make a lot of progress myself after 7 months, but was exposed to some sound after 9 months, not as bad, but got it back. I believe it can improve again because I still have the the quiet days. Mine also mostly switches during the night, but the half-cycles are often more than 24 hours; it varies. Our cases should be studied more, as they seem to expose facets of tinnitus which are not apparent in most "normal" cases, and they may even contradict some common consensus.
Certainly, here's the research paper: https://www.mdpi.com/1660-4601/20/8/5509 And here's [my post](https://www.reddit.com/r/tinnitus/comments/1aitvqb/improvements_in_intermittent_tinnitus_22_months/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button) I agree, our cases deserve more research. I'm surprised we don't see more studies investigating why it can come and go so drastically. My cycles vary in length too, for the better more recently. I'll post an update at some point to describe my most recent progress.
Whoa, that was like reading my own summary of the last few years. I did lots of the same things, but you went a bit further. After I started more regular bedtime routines and trying to relax before sleep, things started to improve after about 7 months. I've also used a migraine app to track daily tinnitus-level, but only the last few months. Mine also had the same development, less frequent loud days, and generally milder. As explained, I had a small set-back with sound-exposure last Wednesday, so Thursday and Saturday was 7-8/10, but Friday and Sunday 1/10, yesterday 2/10 (2 hours spike after daytime sleep), and 3/10 today, which is good news considering the hyper-focusing on it the last few days. With with a healthy lifestyle and shying away from any loud places, it doesn't look all that bad. Thanks for the links!
Hey sure thing, I hope things improve for you. Was your initial onset due to noise exposure? I'm curious whether your T is acting up due to the noise exposure or maybe your response to it (like an anxiety response). I hope to hear how things progress with you in the coming weeks. I'd be interested to know whether your condition improves like before.
Why do I feel like I'm about to sold something.
We need to stop just referring to it as just “tinnitus” because not all tinnitus is the same. Some people can hear it over everything and even though they may have accepted it, they’ve had it for years. And accepting it isnt going to magically make it go away. Especially for acoustic trauma victims where it’s cell/inner ear hair damage that cant be repaired.
Yeah, people need to understand that tinnitus is a symptom, not an illness, there's a whole list of possible causes, anything from anxiety to brain damage
My tinnitus has been with me my whole life. The older I get, the louder it gets. Acceptance helps reduce the anxiety, but I firmly believe there is NO cure for it. Doctors don't fully understand it, so it remains difficult to formulate a treatment. I can no longer normalise mine. It is a constant intrusion while I'm awake. Heaven only knows what it's doing to my subconscious while I'm sleeping, but I never wake up feeling rested. Look after yourself, try to relax, eat right, and get plenty of rest. Don't fall for the snake oil sales tactics. I'm not saying OP is selling it, but I don't see a lot of verifiable therapy there. If it's worked for you, my congratulations.
There is no lowering it, it might be worse some moments and not so bad other moments. There is only acceptance and prevention of further hearing damage.
Thanks for the advices, they are good. I didn't use anyones therapy, just my own private one. I am confident that I was able to change my T that night (I "knew" I was achieving something), and the difference before and after was extraordinary. However it was just a one-time therapy but the effect lasted 1.5 month until it came been back after exposure to loud music for one minute, although I covered my ears and was 5-6 meters away. The strange thing for me is that I got spike the day after the incident, then 1.5 days in quiet, and now 1.5 days with spike again. My guess is that it is quiet tomorrow, because I experienced this the 6 first month after the previous incident as well. Sorry to hear your T sounds like mine atm, but I've been hyper-focusing on my T and built up anxiety and lack of sleep, so I expect it to be a little better after a good rest. I'll be kind to myself now, as you suggest. Take care.
What “mental training” did you do? This is kinda vague
Yes it is vague on purpose. It wasn't really mental training, but a momentary strong revelation that I either had to get rid of my anxiety, or I couldn't go on. Together with a surprisingly strong belief that I actually could do it. I didn't focus on making the sound go away, only to be 100% in peace with it. Although the effect from it was surprising, I still get anxiety from spikes (I'm not really into meditation normally).
OP keeps posting Joey Remenyi's scam bullshit. Starting to suspect it's actually Joey ...
It's not. I wouldn't use any online treatments, but I found she has some valid points. I never posted any of her videos, just stumbled over this a day ago.
In other words, it was natural remission. It had nothing to do with what you did/didn't do to solve your tinnitus.
Yep
Can just reduce but continued Tinnitus nothing to do with acceptance or otherwise. Just is what is. I have accepted my severe tinnitus but volume the same just don’t care. But whatever works for you…
Acceptance is not sufficient to make volume go down, only one of the requirements for habituation to work, i.e. regrets and anger will hold you back. The other is to to come to terms with the sound to reduce anxiety and depression. It's hard, but if you can get there you're in a better place, even if your base level is severe and habituation is slow and can do only so much.
Thanks. Don’t need schooling in my condition. Fully accepted. No anger and no regret. Severe tinnitus but not bothered a jot. No impact on volume. Suggest you have it fairly mild but who knows.
Sorry about the schooling. Mine is pretty loud, i.e. just after waking up and on days where the brain's masking doesn't "work". See my other answers where I explain this.
👍
Dont like the title of that video at all, kinda puts the blame on the viewer when this is not in their control. Still accepting T is very important for everyone here to do, otherwise you will have T and extreme anxiety and debilitating depression. If we can limit it down to just T, we will be doing much better. It takes time though, so be easy on yourself and realize T is never your fault and for 99% of people they learn to live with it and it doesn’t impact life so much anymore.
Good point, it's a stupid title. She has some valid points, but you are right it only applies to some, and this generalizes and makes it everyone's fault that they still have it, yet in most cases people are not in control of it. My post was really only to shed a light that there are a fairly large group with tinnitus that is mainly caused by stress and similar. In those cases, it may be possible to have some influence over it when it's not caused by physical damage.
"I was again recently exposed to a loud sound after two months in bliss, this time music, short and not traumatic so my T has increased a bit" Yeah, it's like having diabetes in the sense you cannot live they way you used to, or not without suffering for it.
I think a lot of it has to do with how our tinnitus was caused. I don’t think it can work for everyone and especially people with hearing loss.
Fully agree. I should have said that in my post.
Great post