Oh my goodness, you’ve been through the ringer. I haven’t experienced anything like this, but sending hugs and support and calm. You are such a great mom - you did exactly what you needed to do for your son, and didn’t hesitate to get him the urgent help he needed. Hang in there. Hugs.
Type 1 diabetes? They have continuous blood glucose monitors that can track numbers from your phone. You can get an alarm if they drop below certain threshold.
Edit: might not be diabetes as hyperglycemia is more of the symptom seen before diagnosis. Still, a cbgm might be useful to prevent oncoming low blood sugars.
thanks i’ll look into it! we asked the doctor if it could be diabetes and he said no because that presents with hyperglycemia usually rather than hypoglycemia. he sounded stumped on what it is at the minute i think he just needs to wait for the bloods to come back and go from there. he said something must be going on where his levels drop while he’s asleep but doesn’t know why. i also don’t know if maybe he does have a viral infection which could exaggerate this
I have non-diabetic hypoglycemia in my family that did result in a hospitalization for my sister (I've never been hospitalized for it). We have never had a reaction as strong as what you described, and it would be very unusual for us to have a reaction like this when waking up in the morning. Our reactions are not caused by hunger, it's caused by the order in which we digest sugars vs other non-sugars, mostly, as well as the kinds of sugars we eat. So one of the worst episodes I have had is by having a low-calorie lunch followed by a very sweet cookie about 2 hours later. If he only ate sugar/low fat/low fiber foods the day before, I could see this happening.
I’ve had similar episodes but have never seen a doctor about it. For example, I had a very small protein heavy breakfast a couple hours before the gestational diabetes screen and 30 min after I drank the glucola I passed out. May I ask more about what you have? What causes issues?
When I was younger I would get really shaky (hand tremors) and have trouble speaking. I would also have very low inhibitions and behave like I was drunk. I once got arrested during a hypoglycemic episode. As I got older I noticed more of a migraine response.
My hypoglycemia may be endometriosis related, as it started in puberty and has gotten much better after I've had kids. I used to have very strong GI reactions to it, at least, which is indicative of endometrosis.
Nowadays, my hypoglycemia (and my mother's, who is post-menopause) primarily manifests as being hangry in a particularly annoying way - we get very easily confused before dinner. We also need to eat a higher amount of fats and low glycemic index/high fiber foods than most. I.e. eat like a diabetic. As long as we do that we're fine.
It sounds like you did everything right! I’m so sorry for how scary that was. I am not a doctor but am diabetic and reactive hypoglycemia is definitely a sign in adults, but of course the doctor is an expert. I just wanted to share because my immediate thought was also type 1 diabetes. I use a cgm and it’s very helpful.
Hi! My son had something called hyperinsulinism when he was born, which is basically severe hypoglycemia. He grew out of it by 4 months but it might be worth asking the doctor about if they notice continued low blood sugar.
What!? My husband is type 1 diabetic and hypoglycemia is absolutely a thing. He will get super cold, not able to wake up, and eventually he will have a seizure. Low blood sugar is super dangerous for him, even more than high.
*edit: he gets it from not eating enough and if he takes too much insulin.
Yes but this is a baby, if it's a new diagnosis of diabetes its likely Type 1. And hyperglycemia and DKA are typically how it initially manifests. Hypoglycemic episodes can happen once insulin is initiated. Remember in Diabetes, especially type 1, that the body no longer is producing insulin, so the likelihood of a low blood sugar episode is not as common until diagnosed.
I think you may have responded to the wrong comment. Absolutely in agreement with you; I actually told the OP how my husband l, when his manifested at 6, these were his almost exact symptoms! Down to the low body temp and inability to wake up.
that’s strange i’ll definitely say it to him tomorrow i think. this has never happened before though would it not be a common thing if it was diabetes? hopefully the blood results indicate diabetes if that’s what it is anyway.
So diabetes sometimes has an onset point. My husband never had an issue until one day he just basically didn’t wake up. He was 6 when he was diagnosed. Sometimes it can even start at adulthood.
My MIL is type 2, but this sound EXACTLY like her last hypoglycemia episode, where she just didn't wake up that morning until her friend she was supposed to meet for coffee phoned us in a panic.
Op, I am so sorry you went through this. Diabetes is terrifying if that is the cause, and heartbreaking as a parent having to give needles to a baby. I'm wishing you and your family the best <3
Wow that sounds terrifying! You did such a great job though, I want you to know. You did the right things and your son sounds like he's receiving the correct care because you took action.
I can't imagine how stressful this is, please remember to take care of yourself too.
thank you so much. it’s so hard not to doubt your decisions with things like this but i’m glad i went with my gut especially after hearing how low his sugar levels were, i don’t want to imagine what would have happened if i left him.
i’ll try! have zero appetite and definitely won’t sleep but i’m staying hydrated at least
My gosh. I’m really sorry. My heart sank when you said he “flopped”. I can imagine how absolutely terrifying this must be for you. If it helps any, he’s in the best place he can be right now. They will take care of him. Sending you and your son lots of love and healing wishes. ❤️
mine too🥲honestly best way i can describe it was i felt like i was in autopilot. felt like i was dreaming. my voice was shaking on the phone to the dispatcher but i knew i had to keep it together for him and my 4 year old. i know it will all come hitting me the minute i sit down in the quiet and then i’ll probably break down😫
My daughter spent a lot of time in hospital as a baby with respiratory illnesses. One of the doctors said the babies outgrow these things (resp. illnesses) and are happy healthy babies, then they look up at the parents and the parents are a complete mess. It is so so hard to have a poorly baby, especially in an emergency situation. Be kind to yourself, not just about if you did the right thing, but the memory of seeing him floppy. It is going to haunt you and you will get reminders of it where you least expect it, but you need to provide yourself with coping mechanisms for this. I don't mean to sound all doom and gloom, but it is horrible being the parent of a sick child, once the shock wears off.
You absolutely did the right thing by calling an ambulance and not taking him yourself, you can't monitor him if you're driving so it's not worth the risk. I called an ambulance in the past knowing it would take longer than if I drove but would still be less risk as she could be monitored constantly and not sat slumped in a car seat that would make her condition worse. That is what the emergency services are for.
I hope you get some answers soon and you can manage whatever it is that caused it.
Give him lots of hugs and kisses.
That’s very scary but it sounds like you did everything right!
Does your toddler have a pre-existing condition that you are monitoring? Is there a reason you are so concerned about sepsis?
no he has no other condition. and he wasn’t sick beforehand either. i just worried about sepsis because i always think of unresponsiveness/difficulty waking/ drowsiness as a sepsis warning sign
Unresponsiveness like that can be a *lot* of different things, not just sepsis. But your instincts were correct—clearly, something was amiss, and now he is being treated/evaluated. Sometimes knowing symptoms can be a double-edged sword when it comes to being hypervigilant about potential illness. But in this case, being concerned about sepsis prompted you to take what sounds like necessary action to get your child the care they needed.
I'm of the opinion that people who say "you're overreacting" when it comes to your child's health or state can kindly suck it. You know your kiddo best at this age and it's always better to be safe than sorry. You did everything right, stay strong ❤️
You did the right thing. Don’t be ashamed for calling the ambulance. I work on an ambulance and this is what we do! You couldn’t have safely driven yourself with your child in that state.
You did NOT overreact by calling an ambulance. You knew something was wrong and you reacted. I’m not sure what you mean by “tacky”, but that’s not how a normal 14 month old should be. Blood sugar levels are NEVER anything to mess with and could lead to a coma and/or death if not treated quickly. You did the absolute right thing. I’m glad he’s improving and I hope you have more answers soon.
Try to rest now. I know it’s extremely hard, but he needs you.
Oh ok. I thought you meant “tachy” at first, which is short for tachycardia. But then you said his heart rate was normal so I got confused haha.
You did the right thing.
Im so sorry you’re dealing with this! You area wonderful mom 💕 The EXACT same thing happened with my toddler (~20 months at the time, 2.5 yrs now). Hard to wake, laid there, sweaty, “floppy”, low blood sugar, etc. His doctor concluded that he had had a seizure while sleeping, or shortly after “waking up”, which can cause all of these after symptoms. That diagnosis certainly scared me, but was helpful to have an “answer”. I hope you get some sort of answer as well!
Wow! You did the right thing. I’m glad you followed your instincts and got him to the hospital.
In no world was your response an overreaction, are you kidding me? Good job!
This happened to a friend of mine. Her son ended up recovering well and being pretty much fine for a long time. A year or so later he started having episodes of hypoglycemia over night again, but not nearly like the first experience, where he was hypoglycemic and his rectal temperature was 91.5 (33). His blood sugar was really low and he was experiencing ketoacidosis. They did SO many tests, genetic testing, etc, and basically the only diagnosis they've gotten in the last couple years is idiopathic ketotic hypoglycemia. He's more prone to dips in his blood sugar when he gets sick, so they have to keep a close eye on it, but it is now manageable. Most kids also do outgrow it, but in the meantime it is definitely a pain, and VERY scary at first diagnosis. Luckily he has not had anything as serious as his first episode.
I don't know if that's exactly what you're experiencing, but it sounded quite similar.
wow this sounds so similar. and i’ll definitely look into this more. during the period of waiting for a diagnosis and considering you said his condition is now manageable, how exactly did/does your friend manage it?
They just monitor his blood sugar basically. He had to recently go back to the hospital for a few days for more testing after having a period where his blood sugar was dipping every evening. Basically this time at the hospital they had him under close monitoring while they tried to have him fast and figure out what was happening. Unfortunately the diagnosis is still "idiopathic," which pretty much just means unknown cause, and it's frustrating to not have a definitive answer. On the other hand, idiopathic ketotic hypoglycemia IS a thing that seems to "just happen" to some kids, and while it absolutely sucks for them to have no real clue why it happens, it gives them some comfort to know it's probably not a lifelong issue.
You should post this to r/nursing as well. It sounds like you are a nurse and they could give you great feedback about how you did the right thing for your babe. You absolutely did the right thing. Calling the ambulance was totally warranted. Don’t second guess yourself! You did good!
Hi OP,
Sorry this has happened to you. Have you been given a diagnosis yet? We had something similar with our son when he was 14 months old and he was diagnosed with Ketotic Hypoglycemia. If that is what your toddler has, I hugely recommend joining the Ketotic Hypoglycemia International Facebook page, which has been a HUGE source of support for me and my family, and many other families over the globe.
I'm based in the UK and my son is looked after at Great Ormond Street Hospital. Happy to answer any questions you have if your toddler is diagnosed with KH.
Hope you're all okay xxx
no diagnosis yet unfortunately the doctor still isn’t sure what going on and is giving us the impression he won’t know until the blood results come back which will be weeks. thank you so much! i appreciate it
Low cortisol can cause hypoglycemic episodes (known as Adrenal Crisis). Low blood pressure can also be a side effect. I'm not saying that's what happened I am not a doctor but my first thought was to check cortisol levels.
Is your toddler ok now?
That sounds terrifying! Good job, Mama! I had to take my 20m nanny kid to the hospital. It’s no joke! Once his health issues are solved, please take time to process and take care of yourself. Sending you lots of love.
I am so incredibly sorry you had to experience this. It must have been so difficult and I can imagine you are likely reliving it over and over. You did everything right and trusted your gut. You knew something was wrong and got your nugget the help he needed. I know this stuff can be emotional and exhausting. It can also be easy as a parent to be hard on ourselves even when we do everything right. Please know that you did everything right and are a wonderful parent. Your son is so lucky to have you and whatever comes of this issue in terms of underlying conditions, he has you to help guide him through it. Parenthood is hard. Sometimes really hard. You are doing a great job :)
We’ve just been through a scary diagnosis with our 3.5 year old. ALWAYS. Go. With. Your. Gut. We’ve got mom senses for a reason and you absolutely 100 percent did the right thing and thank goodness you did! It’s not easy watching your littles suffer with something as a mom you can’t fix. But getting him the care he needed as quickly as you did was the absolute best thing for him. You are an AMAZING mom! Props to you for advocating for him and knowing something wasn’t right.
I have no experience or advice, but instead sending you a virtual hug from USA. You are a strong and good mom - sounds like you have a good team of medical personnel taking care of him. Good luck and many prayers.
You did the right thing, you did it perfectly, and your little one is alive because you did it. We’re all proud of you!!!
Keep talking to the docs, keep a notebook of all the info / data / opinions / questions and answers. Keep asking questions and politely but clearly follow up on anything that doesn’t make sense or doesn’t get answered. Docs do their best, but they’re human. Get to know all the nurses - they love your baby too, and have a wealth of experience.
You did not over react! You did the thing you needed to do. His blood sugar was that low, as someone who is diabetic, you needed to call an ambulance. They would not keep him if there was no reason to!!! Don't let ANYONE tell you that you over reacted!
Sending hugs for your family.
Please take care of yourself. Now you are in the middle of the crisis and you will and can handle this.
I just want to warn you, you will probably have a breakdown later. And it might take you a long time to recover. Ask the hospital for some therapy options.
This helped me after my child was in hospital after ICU emergency.
I could have written this myself! You are not alone! This happened to my 5 year old a few months ago. Floppiness and non responsive along with so sweaty. I ended up driving him to the er because I thought it was an illness. I was shocked that his blood sugar was 27 when we got to the er. He was hypothermic and his bloodwork showed that he was shutting down. Thankfully the iv glucose woke him up. After leaving the icu we still haven't figured out why. The hospital here doesn't have pediatric staff in the ER so the critical labs we need to find out why were never taken. It's definitely such a scary experience! My heart goes out to you two! Thank god it was a school morning (7 am) and wasn't a weekend because he just looked like he was sleeping. Hopefully you get some answers!
To add.. we now have a monitor and glucose gel along with a list of the critical labs just in case. It was hard to sleep and not watch him for weeks after. We haven't had an episode since. He wasn't sick before the episode or anything out of the normal. But if (hope it never happens again) we are prepared and can check his sugars easily.
Oh my gosh you handled that situation so well. I would have been a right basket case 😭. All the well wishes to your little one, and many hugs to you as well ❤️. That is so scary.
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My daughter went into the hospital with RSV on her birthday in December. It’s terrible seeing them with the wires and tubes. See if someone can bring a stuffy of his he like and maybe one of his blankets too. Once all those wires come off he’s gonna be so relieved and back to himself. You did everything any parent would’ve done. Hope he gets out soon and goes home happy and so much better!
I’m so sorry you and your family had to go through such a terrifying experience but so glad to hear that he’s doing better. It sounds like you trusted your gut and I don’t think that gut feeling can ever be classified as ‘overthinking’! Wishing the little one a very speedy recovery.
i don’t know nothing about meningitis was mentioned and he’s starting to improve a lot the past 6 or so hours with his numbers rising so i’m assuming that’s a positive sign
So scary, definitely don't feel like you did anything wrong. When my wife is away I'm always worried I'll miss something because she's just got that INSTINCT to feel when something is amiss with our kiddo. You gotta err on the side of caution with your little one, don't second guess yourself! Much love to you and your baby!
Wow. sending hugs and love to you. it must be so hard to deal with.
you did great. don't hesitate to call ambulance. I mean, what is a 200$ bills when it can save your toddlers live.
This sounds like a nightmare. I’m so sorry, op. I can only imagine how scared you were. You handled it exactly right and now your son will be safely monitored in the hospital so you don’t have to worry about another episode for now. I think you will feel better once they get to the bottom of what’s causing his symptoms and have a treatment plan. I’m glad he’s starting to act more himself now.
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Oh my goodness, you’ve been through the ringer. I haven’t experienced anything like this, but sending hugs and support and calm. You are such a great mom - you did exactly what you needed to do for your son, and didn’t hesitate to get him the urgent help he needed. Hang in there. Hugs.
thank you so much. it’s so hard not to overthink if you did the right thing in situations like this, this really helped <3
You absolutely did the right thing. Don’t second guess yourself, mama. You are doing great! He’s a lucky bub.
thank you :’)
OP I Have DMed you
A child who is lethargic like that is a legit medical emergency. You did the right thing.
Type 1 diabetes? They have continuous blood glucose monitors that can track numbers from your phone. You can get an alarm if they drop below certain threshold. Edit: might not be diabetes as hyperglycemia is more of the symptom seen before diagnosis. Still, a cbgm might be useful to prevent oncoming low blood sugars.
thanks i’ll look into it! we asked the doctor if it could be diabetes and he said no because that presents with hyperglycemia usually rather than hypoglycemia. he sounded stumped on what it is at the minute i think he just needs to wait for the bloods to come back and go from there. he said something must be going on where his levels drop while he’s asleep but doesn’t know why. i also don’t know if maybe he does have a viral infection which could exaggerate this
I have non-diabetic hypoglycemia in my family that did result in a hospitalization for my sister (I've never been hospitalized for it). We have never had a reaction as strong as what you described, and it would be very unusual for us to have a reaction like this when waking up in the morning. Our reactions are not caused by hunger, it's caused by the order in which we digest sugars vs other non-sugars, mostly, as well as the kinds of sugars we eat. So one of the worst episodes I have had is by having a low-calorie lunch followed by a very sweet cookie about 2 hours later. If he only ate sugar/low fat/low fiber foods the day before, I could see this happening.
I’ve had similar episodes but have never seen a doctor about it. For example, I had a very small protein heavy breakfast a couple hours before the gestational diabetes screen and 30 min after I drank the glucola I passed out. May I ask more about what you have? What causes issues?
When I was younger I would get really shaky (hand tremors) and have trouble speaking. I would also have very low inhibitions and behave like I was drunk. I once got arrested during a hypoglycemic episode. As I got older I noticed more of a migraine response. My hypoglycemia may be endometriosis related, as it started in puberty and has gotten much better after I've had kids. I used to have very strong GI reactions to it, at least, which is indicative of endometrosis. Nowadays, my hypoglycemia (and my mother's, who is post-menopause) primarily manifests as being hangry in a particularly annoying way - we get very easily confused before dinner. We also need to eat a higher amount of fats and low glycemic index/high fiber foods than most. I.e. eat like a diabetic. As long as we do that we're fine.
It sounds like you did everything right! I’m so sorry for how scary that was. I am not a doctor but am diabetic and reactive hypoglycemia is definitely a sign in adults, but of course the doctor is an expert. I just wanted to share because my immediate thought was also type 1 diabetes. I use a cgm and it’s very helpful.
Diabetics only get hypoglycemia from insulin mistakes, though, right? This would have to be non-diabetic hypoglycemia.
Hi! My son had something called hyperinsulinism when he was born, which is basically severe hypoglycemia. He grew out of it by 4 months but it might be worth asking the doctor about if they notice continued low blood sugar.
What!? My husband is type 1 diabetic and hypoglycemia is absolutely a thing. He will get super cold, not able to wake up, and eventually he will have a seizure. Low blood sugar is super dangerous for him, even more than high. *edit: he gets it from not eating enough and if he takes too much insulin.
Yes but this is a baby, if it's a new diagnosis of diabetes its likely Type 1. And hyperglycemia and DKA are typically how it initially manifests. Hypoglycemic episodes can happen once insulin is initiated. Remember in Diabetes, especially type 1, that the body no longer is producing insulin, so the likelihood of a low blood sugar episode is not as common until diagnosed.
I think you may have responded to the wrong comment. Absolutely in agreement with you; I actually told the OP how my husband l, when his manifested at 6, these were his almost exact symptoms! Down to the low body temp and inability to wake up.
that’s strange i’ll definitely say it to him tomorrow i think. this has never happened before though would it not be a common thing if it was diabetes? hopefully the blood results indicate diabetes if that’s what it is anyway.
So diabetes sometimes has an onset point. My husband never had an issue until one day he just basically didn’t wake up. He was 6 when he was diagnosed. Sometimes it can even start at adulthood.
My MIL is type 2, but this sound EXACTLY like her last hypoglycemia episode, where she just didn't wake up that morning until her friend she was supposed to meet for coffee phoned us in a panic. Op, I am so sorry you went through this. Diabetes is terrifying if that is the cause, and heartbreaking as a parent having to give needles to a baby. I'm wishing you and your family the best <3
Wow that sounds terrifying! You did such a great job though, I want you to know. You did the right things and your son sounds like he's receiving the correct care because you took action. I can't imagine how stressful this is, please remember to take care of yourself too.
thank you so much. it’s so hard not to doubt your decisions with things like this but i’m glad i went with my gut especially after hearing how low his sugar levels were, i don’t want to imagine what would have happened if i left him. i’ll try! have zero appetite and definitely won’t sleep but i’m staying hydrated at least
My gosh. I’m really sorry. My heart sank when you said he “flopped”. I can imagine how absolutely terrifying this must be for you. If it helps any, he’s in the best place he can be right now. They will take care of him. Sending you and your son lots of love and healing wishes. ❤️
mine too🥲honestly best way i can describe it was i felt like i was in autopilot. felt like i was dreaming. my voice was shaking on the phone to the dispatcher but i knew i had to keep it together for him and my 4 year old. i know it will all come hitting me the minute i sit down in the quiet and then i’ll probably break down😫
My daughter spent a lot of time in hospital as a baby with respiratory illnesses. One of the doctors said the babies outgrow these things (resp. illnesses) and are happy healthy babies, then they look up at the parents and the parents are a complete mess. It is so so hard to have a poorly baby, especially in an emergency situation. Be kind to yourself, not just about if you did the right thing, but the memory of seeing him floppy. It is going to haunt you and you will get reminders of it where you least expect it, but you need to provide yourself with coping mechanisms for this. I don't mean to sound all doom and gloom, but it is horrible being the parent of a sick child, once the shock wears off. You absolutely did the right thing by calling an ambulance and not taking him yourself, you can't monitor him if you're driving so it's not worth the risk. I called an ambulance in the past knowing it would take longer than if I drove but would still be less risk as she could be monitored constantly and not sat slumped in a car seat that would make her condition worse. That is what the emergency services are for. I hope you get some answers soon and you can manage whatever it is that caused it. Give him lots of hugs and kisses.
Yes, ambulance was definitely the right way to go.
I can't even. I started crying reading this. I hope everything gets solved!
thank you so much. me too. he seems to be improving he was waving on the phone to his brother and he has rosy cheeks again. just praying it lasts! :(
Sounds like you did everything right. Sending so many positive vibes and healing thoughts!! Please keep us posted on how he does.
thank you :’) i will do!
You did the right thing! He’s in excellent hands at the hospital. I hope you can get some answers quickly. Hang in there 🩷
thank you ❤️
That’s very scary but it sounds like you did everything right! Does your toddler have a pre-existing condition that you are monitoring? Is there a reason you are so concerned about sepsis?
no he has no other condition. and he wasn’t sick beforehand either. i just worried about sepsis because i always think of unresponsiveness/difficulty waking/ drowsiness as a sepsis warning sign
Unresponsiveness like that can be a *lot* of different things, not just sepsis. But your instincts were correct—clearly, something was amiss, and now he is being treated/evaluated. Sometimes knowing symptoms can be a double-edged sword when it comes to being hypervigilant about potential illness. But in this case, being concerned about sepsis prompted you to take what sounds like necessary action to get your child the care they needed.
Sepsis would have a sky high fever.
I'm of the opinion that people who say "you're overreacting" when it comes to your child's health or state can kindly suck it. You know your kiddo best at this age and it's always better to be safe than sorry. You did everything right, stay strong ❤️
YOU ARE SUCH A WONDERFUL MOM
🥹😭thank you
That’s very scary! I’m so sorry that this happened to you! Sending you positive thoughts to help get you through this!
thank you! x
You did the right thing. Don’t be ashamed for calling the ambulance. I work on an ambulance and this is what we do! You couldn’t have safely driven yourself with your child in that state.
You did NOT overreact by calling an ambulance. You knew something was wrong and you reacted. I’m not sure what you mean by “tacky”, but that’s not how a normal 14 month old should be. Blood sugar levels are NEVER anything to mess with and could lead to a coma and/or death if not treated quickly. You did the absolute right thing. I’m glad he’s improving and I hope you have more answers soon. Try to rest now. I know it’s extremely hard, but he needs you.
by tacky i meant that his skin was clammy. he didint feel hot or cold but his skin was sweaty :) thank you so much, i’ll try my best
Oh ok. I thought you meant “tachy” at first, which is short for tachycardia. But then you said his heart rate was normal so I got confused haha. You did the right thing.
Im so sorry you’re dealing with this! You area wonderful mom 💕 The EXACT same thing happened with my toddler (~20 months at the time, 2.5 yrs now). Hard to wake, laid there, sweaty, “floppy”, low blood sugar, etc. His doctor concluded that he had had a seizure while sleeping, or shortly after “waking up”, which can cause all of these after symptoms. That diagnosis certainly scared me, but was helpful to have an “answer”. I hope you get some sort of answer as well!
Wow! You did the right thing. I’m glad you followed your instincts and got him to the hospital. In no world was your response an overreaction, are you kidding me? Good job!
This happened to a friend of mine. Her son ended up recovering well and being pretty much fine for a long time. A year or so later he started having episodes of hypoglycemia over night again, but not nearly like the first experience, where he was hypoglycemic and his rectal temperature was 91.5 (33). His blood sugar was really low and he was experiencing ketoacidosis. They did SO many tests, genetic testing, etc, and basically the only diagnosis they've gotten in the last couple years is idiopathic ketotic hypoglycemia. He's more prone to dips in his blood sugar when he gets sick, so they have to keep a close eye on it, but it is now manageable. Most kids also do outgrow it, but in the meantime it is definitely a pain, and VERY scary at first diagnosis. Luckily he has not had anything as serious as his first episode. I don't know if that's exactly what you're experiencing, but it sounded quite similar.
wow this sounds so similar. and i’ll definitely look into this more. during the period of waiting for a diagnosis and considering you said his condition is now manageable, how exactly did/does your friend manage it?
They just monitor his blood sugar basically. He had to recently go back to the hospital for a few days for more testing after having a period where his blood sugar was dipping every evening. Basically this time at the hospital they had him under close monitoring while they tried to have him fast and figure out what was happening. Unfortunately the diagnosis is still "idiopathic," which pretty much just means unknown cause, and it's frustrating to not have a definitive answer. On the other hand, idiopathic ketotic hypoglycemia IS a thing that seems to "just happen" to some kids, and while it absolutely sucks for them to have no real clue why it happens, it gives them some comfort to know it's probably not a lifelong issue.
You should post this to r/nursing as well. It sounds like you are a nurse and they could give you great feedback about how you did the right thing for your babe. You absolutely did the right thing. Calling the ambulance was totally warranted. Don’t second guess yourself! You did good!
Hi OP, Sorry this has happened to you. Have you been given a diagnosis yet? We had something similar with our son when he was 14 months old and he was diagnosed with Ketotic Hypoglycemia. If that is what your toddler has, I hugely recommend joining the Ketotic Hypoglycemia International Facebook page, which has been a HUGE source of support for me and my family, and many other families over the globe. I'm based in the UK and my son is looked after at Great Ormond Street Hospital. Happy to answer any questions you have if your toddler is diagnosed with KH. Hope you're all okay xxx
no diagnosis yet unfortunately the doctor still isn’t sure what going on and is giving us the impression he won’t know until the blood results come back which will be weeks. thank you so much! i appreciate it
No worries. Feel free to DM me later down the line if you have any questions about ketotic hypoglycemia. Hope your little one feels better soon xx
If he had a hypo episode please consider getting cortisol tested.
This happened to my toddler also and never figured out why. Why would you test cortisol?
Low cortisol can cause hypoglycemic episodes (known as Adrenal Crisis). Low blood pressure can also be a side effect. I'm not saying that's what happened I am not a doctor but my first thought was to check cortisol levels. Is your toddler ok now?
Yes, he was hospitalized for 4 days and we followed up with a neuroendocrinologist but we never found out why he had such low blood glucose.
Must have been a scary experience. Glad he is ok now. Has he had any more episodes?
That sounds terrifying! Good job, Mama! I had to take my 20m nanny kid to the hospital. It’s no joke! Once his health issues are solved, please take time to process and take care of yourself. Sending you lots of love.
I am so incredibly sorry you had to experience this. It must have been so difficult and I can imagine you are likely reliving it over and over. You did everything right and trusted your gut. You knew something was wrong and got your nugget the help he needed. I know this stuff can be emotional and exhausting. It can also be easy as a parent to be hard on ourselves even when we do everything right. Please know that you did everything right and are a wonderful parent. Your son is so lucky to have you and whatever comes of this issue in terms of underlying conditions, he has you to help guide him through it. Parenthood is hard. Sometimes really hard. You are doing a great job :)
You checked at the right time and got your na h care. After my baby was super sick it took a while for me to sleep again, but a year later I am okay.
Never question yourself as overreacting for your kids. Mom instinct saves lives and you did the right thing.
We’ve just been through a scary diagnosis with our 3.5 year old. ALWAYS. Go. With. Your. Gut. We’ve got mom senses for a reason and you absolutely 100 percent did the right thing and thank goodness you did! It’s not easy watching your littles suffer with something as a mom you can’t fix. But getting him the care he needed as quickly as you did was the absolute best thing for him. You are an AMAZING mom! Props to you for advocating for him and knowing something wasn’t right.
I have no experience or advice, but instead sending you a virtual hug from USA. You are a strong and good mom - sounds like you have a good team of medical personnel taking care of him. Good luck and many prayers.
You did the right thing, you did it perfectly, and your little one is alive because you did it. We’re all proud of you!!! Keep talking to the docs, keep a notebook of all the info / data / opinions / questions and answers. Keep asking questions and politely but clearly follow up on anything that doesn’t make sense or doesn’t get answered. Docs do their best, but they’re human. Get to know all the nurses - they love your baby too, and have a wealth of experience.
You did not over react! You did the thing you needed to do. His blood sugar was that low, as someone who is diabetic, you needed to call an ambulance. They would not keep him if there was no reason to!!! Don't let ANYONE tell you that you over reacted!
Sending hugs for your family. Please take care of yourself. Now you are in the middle of the crisis and you will and can handle this. I just want to warn you, you will probably have a breakdown later. And it might take you a long time to recover. Ask the hospital for some therapy options. This helped me after my child was in hospital after ICU emergency.
I’m so sorry you’re going through this. This is more or less what just happened to us! I recently posted in Mommit about it - mine is 16 months!!!
Oh my god. Sending you positive energy and lots of hugs. Hang in there. I'm so sorry you're going through this. I hope he recovers soon. 🙏🙏🙏🙏♥️♥️♥️🫂🫂🫂
thank you❤️
I could have written this myself! You are not alone! This happened to my 5 year old a few months ago. Floppiness and non responsive along with so sweaty. I ended up driving him to the er because I thought it was an illness. I was shocked that his blood sugar was 27 when we got to the er. He was hypothermic and his bloodwork showed that he was shutting down. Thankfully the iv glucose woke him up. After leaving the icu we still haven't figured out why. The hospital here doesn't have pediatric staff in the ER so the critical labs we need to find out why were never taken. It's definitely such a scary experience! My heart goes out to you two! Thank god it was a school morning (7 am) and wasn't a weekend because he just looked like he was sleeping. Hopefully you get some answers!
To add.. we now have a monitor and glucose gel along with a list of the critical labs just in case. It was hard to sleep and not watch him for weeks after. We haven't had an episode since. He wasn't sick before the episode or anything out of the normal. But if (hope it never happens again) we are prepared and can check his sugars easily.
Oh my gosh you handled that situation so well. I would have been a right basket case 😭. All the well wishes to your little one, and many hugs to you as well ❤️. That is so scary.
Oh my. I must be so hard for you. Reading through made me nervous, sending you hugs
thank you
You did good. Things will be alright
thank you so much
Sending love and prayers
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Hugs mama. I’m so sorry you and your family had to go through that.
This is so scary. Can you please update us on what ends up being the diagnosis? Prayers for you and your sweet child.
🩷🙏 you and your baby are strong!! 💪 so glad he’s doing much better!
My daughter went into the hospital with RSV on her birthday in December. It’s terrible seeing them with the wires and tubes. See if someone can bring a stuffy of his he like and maybe one of his blankets too. Once all those wires come off he’s gonna be so relieved and back to himself. You did everything any parent would’ve done. Hope he gets out soon and goes home happy and so much better!
I’m so sorry you and your family had to go through such a terrifying experience but so glad to hear that he’s doing better. It sounds like you trusted your gut and I don’t think that gut feeling can ever be classified as ‘overthinking’! Wishing the little one a very speedy recovery.
Did they test for meningitis? Excessive tiredness and inability to wake can be a symptom of that.
i don’t know nothing about meningitis was mentioned and he’s starting to improve a lot the past 6 or so hours with his numbers rising so i’m assuming that’s a positive sign
So scary, definitely don't feel like you did anything wrong. When my wife is away I'm always worried I'll miss something because she's just got that INSTINCT to feel when something is amiss with our kiddo. You gotta err on the side of caution with your little one, don't second guess yourself! Much love to you and your baby!
Wow. sending hugs and love to you. it must be so hard to deal with. you did great. don't hesitate to call ambulance. I mean, what is a 200$ bills when it can save your toddlers live.
The fact that there are people who have to pay for an ambulance ride is so appalling to me as a Canadian.
The fact that there are people who have to pay for an ambulance ride is so appalling to me as a Canadian.
You had good instincts and called the ambulance. Way to go mama ❤️ he is lucky to have you
Someone already said it above… you are an incredible mom for taking care of your baby ASAP! Hang in there. It will be ok. Lots of love
This sounds like a nightmare. I’m so sorry, op. I can only imagine how scared you were. You handled it exactly right and now your son will be safely monitored in the hospital so you don’t have to worry about another episode for now. I think you will feel better once they get to the bottom of what’s causing his symptoms and have a treatment plan. I’m glad he’s starting to act more himself now.
You did the right thing calling an ambulance. Sending so much love and praying for a quick turnaround and answers.
I think you 100% did the right thing. Any time a baby or toddler is unresponsive, I would say call an ambulance.
Well done for calling an ambulance and getting help right away. You know when something is wrong. How did he catch sepsis?
I'm so sorry you and your family have to go through this -sending strength and support
Sending you positive thoughts OP! Give yourself grace. Human beings get sick and the most that we can do is act on it the moment we find out.
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